Your Turn: Blocking the Pain

Dec 11th, 2013 | By | Category: Your Turn
Anonymous woman, WikiCommons

Anonymous woman, WikiCommons

A woman known to Mesh News Desk (MND) who wishes to remain anonymous because she is involved in litigation has these thoughts on blocking nerve pain. MND does not give out legal or medical recommendations so we rely on others who have had experiences they want to share. This is not intended to substitute for a discussion with your medical professional or lawyer.  Thank you!

 

Dear Friends

I feel all your pains. I have been going through the same problems. Pudendal Neuralgia is hard to diagnose. Many times doctors mistake it with pelvic floor dysfunction and treat you for that. I searched as much as I could about my symptoms online and diagnosed myself and found a doctor Neurosurgeon in Santa Monica who will be treating me. He recommended nerve blocking injections and possible surgery if necessary. The doctor name is Dr Filler.

He invented an MRN – M R Neurograpy system that actually proves and the images shows your nerve. I recommend you find help from a neurosurgeon because symptoms are getting worse not better by time. Also stress will flares up mine usually. Maintaining with regular chiro and acupuncture, massages and even colonics what’s gets me through the days. I am wishing you all the recoveries. I have been through a lot with this also.

Get well everyone. It is possible!

 

WikiPedia has more on MRN with resources and links to research mentioned in the post.
http://en.wikipedia.org/wiki/Magnetic_resonance_neurography

 

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5 Comments to “Your Turn: Blocking the Pain”

  1. guest says:

    Thanks jane, anonymous woman, Have you had the mesh implant? Also have you had to have it removed . I know my pain is getting not bearable , and the pain it seems to being getting worse, all over in bottom part of my body, and weakness with it. Do the neurosurgens stop the pain? Is this just a bandaid that you have to keep going back for. what about infections also ?what can we do about these infections that also cause pain severely. to get well , even to stop the pain, we still have other problems to deal with and finding doctors that will be kind and understand , that we know some did not do this to us, and neither do we hold them responsible, so why are doctors so angry at the women that need their help, and them talking to us , to the best of their knowledge to help us.

    The funding to get to the doctors that other women have mentioned , is what is impossible to some, and hope runs out. Is this a shot that I have heard about that goes in the back spine and blocks pain for awhile and you cannot do anything for a few days , not pick up anything over 10 pounds?

    thank you. Thank god for these web sites that opened up for women to get infomation that we were denied . It makes me sick at my stomach to think the FDA will allow any chemical company to continue putting this mesh out, and doctors tell that the mesh is ok to use now and then the next thing you hear another woman with mesh, and suffering starting up. why do politicians and media keep covering this mess up?

    • kim says:

      I also find this site very helpful= I’m now using a walker with a seat with tears – but have excepted this device as a means of getting from one place to another with out crawling or sitting on floor for 5 min to get enough energy to get up when I’m home alone. I’ve also gotten 2 nerve blocks threw the anus for Pudendal nerve damage on both side’s off my buttocks, took a rectal Dr. to find where my pain has been for the past 3yrs. 10 months – I loved the first test- I was numb for a whole 4 1/2 day’s – felt like if it was summer I could have roller bladed- something I had a passion for – but it was not it was November 2013 very cold up state NY- but I didn’t realize until 2 day’s later that I at least had those 4 1/2 day’s of pain free – took my pain med’s for the first 2 day’s only because this was my routine, no heating pad’s didn’t have to take a 102 degree hot bath to make pain some where else for a change – that’s right I take bath’s that hot to put pain some where else for just that few min.
      Today I will be walking with a walker with a seat on it – I saw a lady at my pain management Dr. and it look like such a relief I was looking for – I asked the older woman about it and she let me try hers – Wow more freedom to come. Now I feel funny thinking of what color I would like it in – this will allow me to wash my refrigerate=stove-dishwasher- lower kitchen cupboards – toilets with out waiting for someone to come to house for I need help sometime getting off the floor. also to use my shark steam mop .I’ve heard these words many time’s in my life The Lord give it and the Lord take it – I no now that that is not true – OUR DEAR LORD DOSE GIVE US – BUT HUMANS TAKE IT. I’m rambling here- thank you- for your searches for this technology M R N this will help a lot of women and men – kim

    • Susan says:

      Hello Fellow Hernia Mesh Sufferers,
      I have been in pain since 7-2-1010, with Atrium Medical’s ProLoop Mesh Ref.# 30900, and Lot#: 10610950. No surgeon will take the mesh and plug out!!! They all want to send me to a Pain Doctor. PLEASE anyone out there that has Atrium Medical’s polypropylene Mesh and Plug inside them causing them EXTREME PAIN, report your Adverse Event under FDA’s Medical Device report, and get an attorney. Atrium Medical has to be held accountable. You need to get the Ref. and Lot numbers from your surgery copies, (to put in the report), it all helps.
      Thank you,
      Sue

  2. Stacy says:

    I have had many rounds of Botox, until I finally had pudendal nerve blocks. Botox is a temporary band aide, with side effects such as urinary retention (paralyzed muscles) which resulted in self catherization for 3 months.
    Female Pelvic Med Reconstr Surg. 2013 Sep-Oct;19(5):288-92. doi: 10.1097/SPV.0b013e3182989fd8.
    Botulinum toxin type A (BOTOX) for refractory myofascial pelvic pain.
    Adelowo A, Hacker MR, Shapiro A, Modest AM, Elkadry E.
    Author information

    Abstract
    OBJECTIVE:
    To assess intralevator botulinum toxin type A (Botox) injections for refractory myofascial pelvic pain with short tight pelvic floor.
    METHODS:
    Retrospective cohort study of all women with intralevator Botox injection (100-300 Units) from 2005 through 2010 for refractory myofascial pelvic pain. Primary outcomes were self-reported pain on palpation and symptom improvement. Secondary outcomes included postinjection complications and a second injection. Pain was assessed during digital palpation of the pelvic floor muscles using a scale of 0 to 10, with 10 being the worst possible pain. Follow-up occurred at less than 6 weeks after injection and again at 6 weeks or more. Data are presented as median (interquartile range) or proportion.
    RESULTS:
    Thirty-one patients met eligibility criteria; 2 patients were lostto follow-up and excluded. The median age was 55.0 years (38.0-62.0 years). Before Botox injection, the median pain score was 9.5 (8.0-10.0). Twenty-nine patients (93.5%) returned for the first follow-up visit; 79.3% reported improvement in pain, whereas 20.7% reported no improvement. The median pain with levator palpation was significantly lower than before injection (P<0.0001). Eighteen women (58.0%) had a second follow-up visit with a median pain score that remained lower than before injection (P<0.0001). Fifteen (51.7%) women elected to have a second Botox injection; the median time to the second injection was 4.0 months (3.0-7.0 months). Three (10.3%) women developed de novo urinary retention, 2 patients (6.9%) reported fecal incontinence, and 3 patients (10.3%) reported constipation and/or rectal pain; all adverse effects resolved spontaneously.
    CONCLUSIONS:
    Intralevator injection of Botox demonstrates effectiveness in women with refractory myofascial pelvic pain with few self-limiting adverse effects.

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