Hernia Repair: Secrets Patients Should Know

Mar 1st, 2012 | By | Category: Medical News

Synthetic Hernia Mesh, WikiCommons, author: droftcm

The Wall Street Journal’s Laura Landro writes about hernia repair and the secret patients should understand before undergoing the operation. The secret appears to be that hernia repair, one of the most common surgeries, carries a high risk of chronic pain after surgery – 30% of patients have restricted movement and chronic pain that can last a long time.

A hernia is the bulging of the intestine or fat that pushes its way through a weak area in the abdominal wall. A number of patients choose watchful waiting but that can result in an emergency surgery which carries additional risks if the intestine is strangled after punching through the wall.

The fact that hernia surgery carries a risk of pain and other complications is not news to MDND readers. See MDND Patient Profiles of Jeff Silverman (here) who still suffers the pain from mesh because the removal threatens severe complications.

Patient Hal Samples still suffers nerve pain even after mesh removal. See his story here.

Sheri Ragan suffered complications from two types of mesh, one synthetic, the other a biological mesh that was used off-label. Her story is here.

An MDND story, Hernia from Hell talks about an extreme hernia mass that was treated by a Sarasota, Florida doctor with biologic mesh made from cadavers rather than synthetic polypropylene mesh that can carries a higher risk of infection and can migrate within the body.

The article says there are more than one million hernia surgeries a year, the majority are located in the groin area and are called inguinal hernias. Men and women, even children can be affected, but men are the majority of hernia patients.

One patient profiled in the WSJ story, a 27-year-old from Virginia, couldn’t walk and experienced stabbing pain after his hernia plug and patch technique. He tells the WSJ that the risk of postoperative pain was not discussed. In his case, the mesh plug had partially detached and was producing the pains. He had three surgeries to remove the mesh which was entangled with nerves.

Quoted in the story is Dr. B.Tom Heniford, head of the American Hernia Society, who says patients need to be informed of all the risks versus benefits of synthetic surgical mesh for hernia repair. “This is not a 100% benign procedure,” he says.

Recall

On July 6, 2011 plaintiffs injured by the Composix Kugel Mesh hernia patch made by C. R. Bard received an offer for a $184 million settlement in 2,600 claims, most of those outstanding over the faulty hernia patch. The amount was negotiated with more than 100 law firms around the country representing plaintiffs who had suffered the effects of a broken plastic ring or defective mesh including infection, bowel perforation, fistulas, even death.C.R. Bard subsidiary Davol Inc. is based in Warwick, Rhode Island and manufactured the Kugel.

Patients have Two Choices

LAPAROSCOPIC SURGERY
A small video camera is inserted through small incisions in the abdominal wall. The cavity is inflated with carbon dioxide and the surgeon can pull the hernia back into place securing it with mesh and staples or tacks and glue. Recovery time can be one or two weeks but there is a risk of infection. Because general anesthesia is used the procedure may be more expensive than open surgery.

OPEN SURGERY
After making an incision in the groin by the surgeon, the hernia is pushed back into place and the abdominal muscle wall is stitched together if the muscle is healthy or by sewing in mesh patches if the area is weak. This technique is recommended for children, but without mesh. The infection rate and risk of nerve injury is higher. The procedure can be done with a local anesthesia and sedation.

Share this:
Share this page via Email Share this page via Stumble Upon Share this page via Digg this Share this page via Facebook Share this page via Twitter
Tags: , , , , ,

201 Comments to “Hernia Repair: Secrets Patients Should Know”

  1. Naomi Riley says:

    In 2006, I was diagnosed having with having a large endometrioma grown into my abdominal wall. The tumor needed to be removed and a large hernia was created in my lower pelvis. In 2007 my first major surgery happened as a result of this. The endometrioma was removed, along with the lower rectus muscles. An implant of “Proceed” mesh was placed to hold my pelvis together. My abdomen constantly felt full. The itching and the burning never went away. In September of 07, I had another surgery as the first implant did not hold. POP happened, and I was miserable. My bowel hung out of one side from my pelvis. It was disgusting and embarrassing. Two layers of mesh were implanted. Dual Mesh Plus and Ultra Pro Mesh. Angioplasty was performed due to the deformity of my lower pelvis from the past surgeries. I can remember that surgery being very hard to get through. I’m not sure if the burning pain, I felt when I woke up from the surgery was from the angioplasty or the actual meshes. The pain eventually subdued but, for the most part the burning was still present. 11/08 I was seen again for POP, the meshes came apart. The Dual Mesh was taken out completely. In 2010, Dr. Paulson and Rodrigues worked together to find a way to re-build my lower abdominal wall and pelvic floor to try and stop the recurrence of POP. Permacol mesh was placed and Ultro-Pro mesh was left in place. After, the surgery, both meshes were lying flat and they were intact. July of 2011, I feel a sharp Pop in my abdomen and my lower pelvic begins to swell and the pain is hard to bear. All of the meshes have felt like permanent rug burns from the inside that have been unable to heal. August 2011, another C-Scan reveals a large seroma. There is an open wound this time in my lower pelvic area. After several, in office debridement attempts, and out- patient surgery is performed Nov.2011. The findings are that a small area of the mesh was rolled up and it was excised. A suture was attached to nothing, so it was removed. Again, thinking that this was the root of the problem, the procedure was completed. It is now March and the hole that started in July is still present. The mesh feels tight and hurts all of the time/ My surgeon is hopeful that the wound is closing slowly but, only time will tell. SHe has reccommended that we possibly take out the mesh but, it is risky. This wound continues to drain fluid every day. It has been very frustrating not only for me but, for my family. I was never told of the recurrences, and other problems any pelvic mesh could cause. Since 2006, I have been in and out of the hospital more times than I can even count. I have missed much time with my kids, lost my job not once but, twice due to the pain and suffering the meshes have caused.

    • Naomi, did they use Ethicon Pro-Plus Mesh for your hernia? My niece is having similar problems to yours.

      • Maty says:

        I had ethicone Prolene mesh used to repair a small hernia just below my belly button in 2008. After spending 2 years feeling sick on and off with flu like systems and throwing up bile, I discovered I went septic from infection caused by that mesh dislodging. I found out that the rings had broken and had to have what they could find of the mesh removed. In 2011, I ended up in the hospital for infection again and this time, my kidneys were affected. In 2012, I had more of the mesh removed. In 2013, I spent researching alternatives to mesh and keeping myself as healthy as possible so that I could fight against reinfection. I’ve had an opening in my body secreting fluids since 2010. The mesh has nearly killed me several times and I’m still fighting for health. I’m in if you want to pursue any action. I’ve been robbed some of the best years of my life. Mesh use should be outlawed completely. It’s not worth it.

        • Jane Akre says:

          Maty- Do you have your medical records? Do you have competent medical help? An ongoing infection should be addressed! I see you have Prolene… the type of mesh that has been the subject of now two trials naming J&J. lease contact brosenberg1@bellsouth.net and locate a doctor who can give you an assessment of your situation…. thank you.

          • Robert S. says:

            I had mesh implanted for a abdominal hernia and in 2009 I went to the doctor because of extreme pain and the doctor told me the mesh was so infected that they had to remove it all, along with most of my abdominal wall, and had to make a new abdominal wall by pulling my muscles from the back around, and I was in the hospital for 3 weeks and the pain has been horrible and now whatever they did has gone bad, and I can hardly breathe and can’t take the pain but finding a doctor to do this is very hard, and I just don’t know if this mesh was recalled but I don’t know where to go and am searching out what I can do about this….Any suggestions would be very much appreciated…

        • PHYLLIS says:

          i TOTALLY AGREE WITH THIS ASSESSMENT. i HAD RECONSTRUCTION SURGERY (TRAM FLAP) AND MESH WAS USED WITHOUT MY KNOWLEDGE. i HAD ALL THE SYMPTOMS OF PELVIC MESH IMPLANT BUT MANY ATTORNEYS ARE REFUSING TO TAKE MY CASE BECAUSE IT WAS NOT RELATED TO TRANS VAGINAL MESH LAWSUIT. THEY DON’T SAY i DON’T HAVE A CASE, THEY JUST ARE NOT TAKING THOSE TYPE OF CASES. THIS IS ASHAMED. ANY WOMEN WHO HAVE HAS MESH IMPLANTS SHOULD QUALIFY FOR THIS LAWSUIT. IT SEEM I HAS PROLENE AND BARD MESH IMPLANTED. i AM DISABLE BECAUSE OF THIS PRODUCT.

          LET’S START OUR OWN CLASS ACTION LAWSUIT. THESE CASES ARE TOO SIMILAR. IF YOUR HAD ANY KIND OF MESH IMPLANTED DURING THIS TIME FRAME, YOU SHOULD BE COMPENSATED FOR YOUR PAIN AND SUFFERING. I HAD 6 SURGERIES BEFORE THIS NIGHTMARE EVEN STARTED TO IMPROVE AND SEVERAL YEARS OF HEALING. i STILL GET STABBING AND BURNING PAIN IN MY ABDOMEN . I HAVE BEEN ON MORPHINE SINCE 2009. I LOST MY JOB AND RECEIVING SOCIAL SECURITY BENEFITS THAT BARELY COVER MY BILLS. THIS IS SO UNFAIR. LET’S NOT BE DOORMATS AND GET THIS MESSAGE OUT LOUD AND CLEAR TO SAVE AND EDUCATE OTHERS TO AVOID WHAT OUR LIVES HAVE BECOME. CHAOTIC AT BEST!.

          • Jane Akre says:

            Phyllis- You make some good points. Like hernia mesh injured patients, the FDA has not acknowledged your injuries as it has with transvaginal mesh, that is mesh that is implanted vaginally. I’d love to do a story with you if you are willing. Do you have your medical records? Contact me at janeakre@meshnewsdesk.com Thank you and I’m sorry.

          • Laurie says:

            Phyllis,
            I to had tram flap surgery almost 5 years ago and than 3 years ago herniated through that mesh and had to have another large piece put in. My pain is always minimum a 5 ….it is extremely tight, pulls, burns, and after eating it is extremely painful…….I can not twist, sit up from a laying down position without rolling, it feels like the nerves are right to the edge of my rib cage from my hip bones to above my breasts. My belly button feels like someone is on the inside pulling to my back……..where does all this fit in…..not vaginal mesh I am told!

    • robyn says:

      yeah what if the doctor doesnt tell the specifics of what meshing was put in you just says he had to use wire meshing because the intestinal walls were weak?

      • danyelle says:

        The type of mesh should be in the surgical report itself. Just ask them to look it up, or better yet request the original surgery notes.

    • Joan says:

      No statue of limitations. Doesn’t work. There was a case in texas that proved the following:

      How can a patient with no medical experience diagnosis that all health problems are related to a past problem with a devise known as a mesh.

      No date on this until there is diagnosis.

      • danyelle says:

        thank God, I too am looking at a statute of limitations and, to-date, I am the only person diagnosing the problem!!! I have no medical training. I feel like a guinea pig after 20-years of this… when did they start using the mesh? Marlex?

        • Michele Fletcher says:

          I had the same mesh 2 years ago been sick and in pain and the dr say nothing is wrong with me

        • Melissa says:

          Thank you God! I too have been dealing with this bologna for 18 years. I can barely walk. Every step is painful and exhausting. Mesh changed my life and I cannot find a lawyer that will help me. Any suggestions? I have Atrium, Marlex, and two pieces of Bard in my pelvis and now have developed MS symptoms. I am barely making it! Please, after 10 abdominal surgeries, I really could use some guidance. I TRUST NO ONE!

          Melissa

    • Pamela Evans says:

      Hello your story is exactly like mying .I keep going to dr n they send me back to the surgeon that did the repair. I had the shots to so called kill the nerve. When it didn’t work she wouldn’t return my call.So I went to other Dr.But they all send me back to her.An here I am w pains that are getting worse an no were to go. Very frustrated

      • DIANE says:

        TOOK MY MOM TODAY,SHE’S GOT DOUBLE HERNIAS.OVER A YEAR NOW,FAILED TO EXPLAIN TO HER THEY GROW.WENT TO SET UP FOR SURGERY,HE TOLD MY MOM TO QUIT SMOKING AND LOOSE WEIGHT,UNTIL THEN DONT BOTHER COMING IN,VERY RUDE! SHE QUIT AND GAINED,HE WAS SO HARSH ON HER ;(

    • danyelle says:

      Naomi, Like you I had a tumor that required the removal of part of the abdominal rectus muscle…. am told that the hernia and TVT mass tort cases don’t apply to us…. Mayb we should get group of this type of surgery for a different mass tort case?

    • Cornelia says:

      I know some who had a surgical mesh for hernia three years ago is it possible for it to rupture from him having borderline pnuemonia and heavy bronchitis?

  2. Pvrp says:

    a perfix plug was used to repair an abdomen trauma and right inguinal hernia12/11/2008 as result of the trauma ever since I have had nothing bbut excruciating pain I lost my $90,000 per year job and remain off work today having seen doctors for pain in and around my incision spreading am getting pain injections every 2 – 3months in my abdomen and on opiate drugs and others ms contin 30mg. Norco 10-325mg neurontin 400mg lisinopril 20mg ambien 10mg alavert d prevacid 30mg cymbalta 60 mg  most days Are  a blur and some I cannot hardly move at all I remain disabled today

    • Jane Akre says:

      You bring up an excellent point- what is the cost when mesh goes wrong, very wrong? Loss of jobs, disability, pain meds, Medicare, Medicaid…. it’s more than a little inconvenience or “manageable” as so many will agree….

      • Lisa LoPiccolo says:

        I recently had a cold, which went to my lungs. Coughing so much I became dizzy and lightheaded. One of the many times coughing, my lower right abdomen felt like it ripped. I have had a hernia repair in the same area 5 years ago and has never been pain free. There has been pain if pressed or strained since the surgery. The moment of the cough/rip took the pain level to a 10+++++. It has been 4 days and the cold is over but the pain is the same. Not sure what to do from here and have no health insurance at this time. Any suggestions?

        • Womens health Services says:

          To those people who wants to recieve a cash settlement because of your failed mesh imlplants, Please do not hesitate to give me ur number so that we can call you and we can explain further what is your potential claim. You wont be paying even a single cent , so need not to worry.
          Email me @ glennson_08@yahoo.com

          Thanks.

          • Jane Akre says:

            Hello-

            I’m glad you see the Mesh News Desk as a viable option for advertising. Wouldn’t it be better to support this effort with advertising? Consumers could then be treated to the details of how you work in a Frequently Asked Questions section. We believe in transparency here. I’m happy to approve your comment but going through the front door might be the best option for everyone… thank you! Jane A.

          • sheila moses says:

            I had physiomesh placed in me for an inscional hernia while undergoing gastric bypass. After I was in acute pain. The doctorivnored mycomplai ts of paid said it was gas and I was a big baby. I came back in an ambulance the next morning. Hospital doctor ignored me again said it was gas. My friend co tactexthe surgeon and he figured it might be the mesh. In fact it was it had punctured my bladder and there were holes that were leaking urine into my system. They removed the mesh. Now I feel the bladder protruding through the abdominal wall and prior to my surgery I had no idea I had a hernia. Please advise if I have a suit against ethicon.

          • Jane Akre says:

            Sheila- Please talk to Bruce Rosenberg at the Meshoma Foundation 954-701-5094… he is not a doctor but mesh injured. He will be very helpful… thank you.~ ja

      • Sabrina B says:

        Hello, I was wondering if you could maybe answer a question for me, I had hernia surgery a few years back but my question has to do with the pain. I normally do not having pain but have been exercising lately to lose weight. I feel I may have torn it, if that is even possible because it really is painful but the pain is getting better. Is it possible to tear or do something to hurt it? and can it get better?
        Thank you
        Sabrina B.

        • Jane Akre says:

          brosenberg1@bellsouth.net with the Meshoma Foundation can help you with your questions. Generally these things do not heal on their own but Bruce could better answer that. Thank you for writing please stay in touch.

        • Jane Akre says:

          Sabrina- Bruce Rosenberg of the Meshoma Foundation replies here:

          “You need to know what type of hernia repair: Inguinal/groin, umbilical or femoral (near where the leg attached to the groin) or some other type such as ventral/incisional (usually these happen after a previous surgery splits back open.) Do you know what product was used?

          Is the pain right over the place where the mesh is, or does it travel to other places such as down the inside or outside of the leg? Is it a deep pain like it is deep inside you, or a burning or stabbing near the surface in the scar area or a burning that travels. Recurrence of the hernia can cause pain, make sure you check with your internist to see if you have a recurrent hernia or even new hernia. Mesh does not insure that a hernia will not recur. Mesh does not “give” and can split or pull away from the point of fixation and the hernia can recur around it, or the mesh can migrate depending on what device has been implanted.”

        • Greg K says:

          Hello,

          I saw your comment & have experienced the same. I had an inguinal hernia, repair done 2002 w/ mesh. Then in 2012, I re-injured it. I have been struggling w/ it w/out much success from doctors & have had MRI’s, CATSCANs, x rays & did physical therapy, nerve block, etc. I keep asking if the mesh tore, shifted, etc. I have also tried ART physical therapy techniques, graston or grafton techniques & accupuncture. They helped a little. You could try them also. My pain level has gone down but then again, my activity level/life is pretty low so who knows what has worked.

          I will keep looking & good luck.

          Greg

          • Jane Akre says:

            Greg- check with Bruce Rosenberg of the Meshoma Foundation brosenberg1@bellsouth.net 954-701-5094 He is very knowledgeable about hernia mesh complication being hernia mesh injured himself.

          • angie k says:

            My husband just had the surgery. Two weeks. Ago and feels a pain now and then that feels like a needle poking him…im concerned now after. Reading. These posts

          • Joey a says:

            Greg, I would love to talk with you about your experience with all this, my story is EXACTLY the same, even down to the dates, graston, all that, still no answers to my pain or cause. Feel free to hit me up
            Joeyadams80@gmail.com

  3. Patty says:

    Its been 11 months and my husband is still suffering. One implant, one removal, one more implant and a massive infection which nearly took his life. now needs a third very difficult surgery to remove the second implant. Loss of over 96,000 a year income form our business, loss of life as he knew it, constant pain. Its not a pretty picture. Started with a small reducible hernia, and is now in irreducible hernia. had the mesh worked the first time and not caused such a significant foreign body reaction and had it healed like the manufacturer had stated that it would in all of its online publication on its wonderful product, my husband would be back to normal. Had we known ahead of time how to research and even that we had reason to research the mesh, we would ahve gone a different direction. Its too late now.

    • Jillian says:

      Your story sounds alot like ours.My husband had a hernia repair May 9, 2012 went back to work late June and went back off September 4th. He has been in extreme pain ever since, hes lost his wages and no surgeon wants to touch him because they dont want to be responsible! Almost a year later and he still cant even lift his kids or play any games with them!

      • Better Now says:

        If you need revision surgery due to chronic groin pain, likely related to a hernia repair – you need to reach out to Dr Bruce Ramshaw in Daytona, Fl. He does this surgery on a regular basis. If he is too far from you, I would ask his office for the other 4 or 5 top “hernia revision” surgeons across the US. Bruce is the 2013 President of the American Hernia Society, and should be able to make a professional recommendation.
        Most hernia surgeons do not do revision surgery as it is more difficult, may not work and requires extraordinary surgical skills with years of practice doing nothing but hernias.
        Do yourself or your loved one a favor. Take the time to find (and perhaps wait to be seen), so that you or they have the best possible opportunity for a good outcome.
        Lastly, as a patient of Dr Ramshaw, I can tell you he is very straight up about how long complete healing (and maximum pain relief) take. This is not a one or two week recovery. It takes as long as 6 months, which while hard to hear, is better than being disappointed. Mesh (good mesh, properly done), is still a foreign body and as such takes time to be accepted and incorporated into the body.
        Good luck!
        Oh, 6 months does not mean you cannot work all that time. I am at 6 weeks and working a few hours each day, trying to walk at least a 1/2 mile a day. Pretty good when I was completely on my back, only 6 weeks ago.

  4. kathy says:

    Although, I have previously spoken with two legal offices, I was told that my case was not the type of mesh in question or that the statute of limitations was over. ( I had heard that in the 90’s also.).

    It is a very long painful story, but a brief synopsis is:

    I had a right inguinal hernia repair, with marlex mesh, in 1994, after which I suffered bradycardia. This was followed by a hysterectomy(1996), nerve transection (1995), multiple nerve blocks, and mesh removal(1996,Pathological results stated that there was a giant cell reaction to the mesh).There was another surgeryin 1999. Constant , continuous bladder and neuritis issues still exist.

    Originally, the surgeon told me had never had a problem with the mesh.before. ( Before what? Before I woke up from surgery and they were CODING me? )Subsequent coversations within a few weeks were statments that he only had a problem with 2 men and that only 5 percent of the population has a problem.

    My gynecologist had another patient who had the mesh and he sent both of us to the Mayo Clinic in Rochester.
    At the UMDNJ , there was another woman with mesh issues.

    HOW, is it statistically probable for all of these individuals to be treated by medical professionals that I was seeing? Can we all be in the 5 % of mesh problems? Can we all live in NJ?There must be more of us.

    Final mesh removal was done at Mt. Sinai in NYC, where I asked the surgeon “how many mesh removals” he had performed and was shocked by the numbers.

    Hopefully, this will come to a head soon due to the advocacy.

    • Jane Akre says:

      Kathy- I’d love to talk to you further about your story! jane a.

    • Eden says:

      Kathy, I’m interested to know what surgeon removed your hernia mesh and if you were happy with that surgeon, and how your results were. Or, if anyone out there reading this has had mesh removed, I’d very mush like to know how it went as I am considering it myself. My email is edentess@gmail.com. Thanks.

    • Neil says:

      I’m having surgery next week at Mt Sinai. Who was the doctor that you were happy with. I hope it’s the same doctor.

      • Jillian says:

        If someone knows a surgeon in canada please contact me! My husband has had non stop problems for almost a year and has chronic pain after his hernia repair and every surgeon we see will not help him :(

        • Patrick says:

          I am also having alot of pain, I went back to the surgen, a recomendation of Schouldice. and she was arrogant telling me it is not possible that she or the surgery caused it, I had to argue with her to take it out and she booked my surgery, but withing 6 hours she has already bumped me back more then a month. she was very upset that I get a second and third opinion.
          No one told me of the risks before, wish they had of I never would have had it done by anyone else but schouldice clinic.

        • cheryl says:

          Hi My husband had inguinal hernia repaired with mesh in 2007 had pain since
          finally by accident found Dr. Bohnen at St. Michaels Hospital in Toronto Ontario he successfully removed the mesh and plug in October , 2012 if you would like more info contact c.rouse150@yahoo.ca

        • cheryl says:

          Hi My husband had inguinal hernia repaired with mesh in 2007 had pain since
          finally by accident found Dr. Bohnen at St. Michaels Hospital in Toronto Ontario he successfully removed the mesh and plug in October , 2012 if you would like more info contact c.rouse150@yahoo.ca

        • frances says:

          Jillian
          Did you get a response on your request for a surgeon in Canada?
          My sister has been in excruciating pain for a yr and now has at least 6 hernias, a large mass, and cannot function. She is in rural Ont. and the medical care is terrible — and now ‘no one can do anything’ because her condition is so poor.

        • Suza says:

          I’ve been researching hernia repair and came across the Shouldice Clinic in Toronto, which has an excellent reputation. good luck!

      • Nancy Clarke says:

        Having problems with sepramesh. What is the doctor in mount sani who removes mesh. Can anyone help me or offer suggestions. Can’t take it anymore

  5. Pat O'Toole says:

    The health industry, FDA, and the insurance industries are all a big joke. It is well documented by now by the numerous complications yet not one of them is stepping to the plate to stop the mesh. They are all making money off of our misery and misfortune of being victims in their game. If this isn’t cruel and unusual punishment I don’t know what is! More people are being killed and injured in hospitals than from guns on the streets; yet, no one is trying to stop it or warn the patients of the problems. Instead they are trying hard to keep it silent. It is simply a crime what is happening today. Yet, they ask if we want help to quit smoking because of being hazardous to our health. I lost my right testicle in less than a year after the hernia operation and nothing yet after 30 years of smoking. does this put it in perspective? Not to mention in pain and can’t work. Need more convincing read some of the horror stories and the shame , rejection and blame the patients suffer from the professionals who swore to help and save lives as part of their creed. This is what to expect more from health care after it is government owned and run. Is this what we the people want??? Think it over real good!!!

    • Wayne B. says:

      I am behind you 100 percent. I was a living liver donor ten years ago, had two follow-up operations for incisional hernias and had mesh implanted. Have been in pain, take medication daily, can’t do anything physical even so much as picking up a 20 lb child aggravates it. Every meal aggravates it. And the surgeons actually were blaming me for the infection I got after the first operation and for the hernias. They do not want to know you after they receive all the insurance money. They will not admit about adhesions, scarring tissue, and mesh and how that affects nerve endings, etc. the big lie — every operation causes adhesions which in turn can cause problems especially if it is an abdominal operation. Nothing at all was said about this before or after the operation even when I asked them. Bad karma for them. And there is one NY hospital tranplant team that is always advertising on any internet site dealing with transplants. Shame on them. Over 100,000 “reported” accidental deaths happen every year in U.S. hospitals. Almost twice the number of deaths from the Vietnam War. And this is only what they admit to — how many more are they responsible for that they cover up? Ever try to get medical records? They make it impossible. And if you do, you see the notes are so heavily edited and biased and omit many things that happened. Good luck to you, friend.

      • Barbara C says:

        Hey Wayne, You are 110% right on with each and every word you said !! I was prepped, attached to machines and had IV’s in when the Doctor walked into the operating room and the last thing I remember him saying, right before being put under, was “This won’t get rid of your pain but will make you feel better BUT that pain is going to be a HARD NUT TO CRACK !!! The pain was what made me go to him in the first place so…wasn’t that a fine thing to say just as he gave the signal to put me out ???? M-O-N-E-Y is the one and only thing Doctors care about…FORGET that Hippocratic oath they swore to !! I still live in pain 24/7 but I have never been back to a Doctor for it sice that day, didn’t even go back for my check ups !!

      • Taishna says:

        I got a question for you Wayne. I have been doing research for my father because he has had 2 inguinal surgeries done through out several years and he has recently come into some weird symptoms that we are trying to figure out its origin.
        What were your symptoms with the problems with the mesh?
        Ive just been finding a lot of stories of lots of pain but nothing specific, I would like to learn more to see if any of this seems close to my father’s symptoms. Please email me at taishna@yahoo.com
        Thank you!

  6. debra reichard says:

    Why can we not follow the UK and sue theFDA? We need a remedy fir our lost lives.I am bedridden with 19+ pain…I have had RSd Since 84 which I had learned to live withhad 3 back surgeries,3 sympathetomies,knee has been end stage arthritis for 12 years ,move to desert for a stabile climate…start bleeding @time of 5+ years into menopause cant find anything except pain under pain pump put in 20 years ago and tiny fat trapped hernia same level as pump .maybe it is incarcerated.it is 1×1 inch..I go to surgery @ 200# b/p. 110/70 no problem until 21/12 ears later. I am really sick end up in Er with b/p 210/107 cannot touch my belly…I had felt a pop that day and thought I had ruptured thesmall sweling I could see where the hernia hab been and had been sick for @2 months had no medigap,so was praying for all to resolve..Not to be the 1st question ER doc says do you have mesh?I had no idea was never told about mesh and still did not find out until May that I had mesh.I got HMO in Jan and started with belly stabbing..they were worried about my b/p..since it keeps going up,had ovaries checked colonoscopy could not poo or pass gas for @6 months would have to use mom every week eat like a vegan,gave up glutens,added metamucil 2x a day got my bpwels to move by giving up pain meds which is oxycodone 30mg,8 a day but pain is in low belly where it bends. I am a hostage of pain ..if my belly is too empty or lose weight the stabbing is worse.I am 25# lighter than surgery gave up salt and dairy and still b/p keeps going up…Dr just took it so I asked him if I could be rejecting the mesh…he says it can happen but he is new so has no idea what Rsd/crps is. He is @65..this is a small community and all docs know each other and use same famous nonprofit hospital..new neighbor moves in in a wheelchair,she just came out of hospice..had 3h/a and strokes gangreen in both legs and had her mesh removed for the 1st time 2 years before mine was put in,she has constant bowel blockages and just got out of ICU where they took out another portion or bowel and more mesh which her doc described as chewing gum..she’s 54. They just found another piece of wadded up mesh under her boobs..She is not as concerned about taking care of herself as how much sympathy and drugs. She has state paid medical so pay zero..but somehow she is getting terrific care? Very frustrating as she had no clue mesh has caused al her problems. She is the reason I see my future is bleak..the rsd has moved to face which is constant burning any hissing in ears..no relief for this..do not sleep constant bladder problems,infection, and only doc that will address problem is PA at pain doc office. He used to work with naturopath so understands the rejection process and says you know that stuff has to come out…No doc has acknowledged that I have mesh and I get blank looks from anyone in medical field about the mesh. Suspect the surgeon that put it I is going to retire after finding that @so far @ 30% reject after 3 years or upon- waking.Giant moneymaker for docs,hospitals, and Bard. My piece of mesh

    cost @1_2,000 dollars and was 4×5″ which means the doctor had to cut it to that size he is not in online store..I am really surprised the hospital has not banned all meshes..or maybe the removal is so rewarding to there bottom line that they are holding their tongue. I a hoping this is not true but since minkas care has probably cost 20 million by now paid for by state. Her parents are from Germany so they do not know this was caused by the medical and drug Co andFDA..anyone feel good enough to draft a petition .useUK as a template…if I could stand up I would I can make phone calls that’s just sad. I was very active before this lived as caregiver/chef for a wealthy widower..at the end of 3 years I was getting miserable walking on marble floors…and He would not let me leave though I was paying rent for26 months before he lost his house and masons took care of him.got the hrnia while being treated like a slave. No pay…that is how People are treated Inca..igf they can get it by stealing it or lying…Do not ever take anyone at face value.I a from the Midwest and we knew who to avoid..so few out here it is like the wild west..been robbed so many times by people paid to help it is just sad…I am now wary of everyone and need to go back to Mi to get health insurance since none available to me due to medical problems..and that is why they are all acting like they never heard of mesh…HMO and doc do not want the problems since my new doc never heard of rsd..does not give SOMA or Xanax..he would if his body was rejecting mesh..any advice. Thanks for putting this sight together..D

    • joe says:

      Hi Debra. My name is Joe. I’m compiling info for my wife who had a mesh procedure done in Nov. 2010 and is still in pain from that surgery, the colon resection (successfull) of March 2010, and the massive clots or scar tissue remaining from the surgical drains. She was also severely burned by Flector pain patches and the hosp. where she had this done in Central wisconsin basically shrugs their shoulders and says they can’t cure her pain, only manage it the rest of her life. She essentially needs to talk with like minded victims as she no longer does much of what she used to do prior to this surgery. They even sent her to a pain clinic and enticed her with the possibility of nerve blocks yet refused unless she went through 6 moths to a year of “pain treatments” and see if they would work or fail. Seems to me they should just cut to the chase and block the offending nerve endings. It’s not just one issue though as there are layered pain issues all from thie single surgery. I wish you luck and maybe once Trump and a few politicians and Presidents have this done we’ll get some real action but should you find of either a doctor or lawyer to force action let my wife, Marcie, know @ grigasster@gmail.com. Hope to hear back and God bless…..

  7. LIz says:

    Kathy-
    Who was the surgeon who removed your mesh at Mt. Sinai and how are you now, after it has been removed? I’m curious because my husband has been in chronic pain for the past two years and a dr. in California says that the mesh should come out. We’re trying to find a great surgeon to perform this operation. But I’m so scared that there are going to be bad results from this, as well.

    Sincerely,
    Liz

  8. Trudy Thomas says:

    My heart and prayers are with you all.
    I to am suffering from the mesh. In December 2006 I was admitted to the hospital for surgery for hernia repair. I want to first include the many many times I had gone to the er for my pain but was turned away because medicaid dropped me.
    Continuing this story after I returned home my surgery of having the mesh implant I was experiencing the most unbeleivable pain no words can describe. After many atempts going back to the er I was finally admitted because of evidence of an infection at the site of a ventral incisional hernia repair.
    Initial treatment had been debridement of the wound with the insertion of a wound vacuum-assisted closure (vac), but when I returned to the emergency room an abdominal ultrasound showed the presence of infection deep to the mesh. I was taken back to the operating room and the mesh was removed. While recovering from this procedure I developed signs and symptoms of complete bowel obstruction and was taken again back to the er. While recovering from this problem I developed respiratory failure and was transferred to the intensive care unit for about 2weeks. I then exeperinced a new pain and was back to the operating room for removal of my gallblader which gang green (not sure how to spell that word). had set in to be removed.

  9. Has anyone had Ethicon Pro-Plus Mesh used for hernia repair? My niece is having serious medical complications from it and can’t find a doctor who will help her. She has fistula’s in the bladder and intestines. As a result has lost over 50 lbs, is unable to walk, hasn’t been able to eat for the past two months. I’m really afraid she’s not going to make it if she doesn’t get help. She’s 31 yrs old and a single Mom with four children under the age of 10.

    • Jane Akre says:

      Peggy- thanks for writing. Bruce Rosenberg of The Meshoma Foundation is as great resource for hernia injuries… he himself is a victim. Reach him at 945-701-5094. He has helped many people!

    • Starla says:

      So sorry to hear of your ordeal. Why won’t any Doctors see her? Also, she sounds like she is in an emergency state. Why not take her to emergency room? They would have to help her there.

      • fantasia says:

        How can anyone say to go ER they will help you there? Every time I go to Er theyjust want to pump me full of pain meds that only last a few hours and tell me to go to my primary care physician who says they just don’t know what to do.

    • Starla says:

      Peggy, How is your niece doing. I can’t stop thinking about her. Did you find someone to help her?

      Starla

  10. Starla says:

    On June 19 I got really sick and had to go to the emergency room. A CT scan showed scar tissue had wrapped around my intestine and part of my hernia mesh from one of my previous surgeries. I had to have surgery the following day. Everything went ok but it was a lengthy surgery and a bigger mesh had to be put in where the older smaller one was taken out. I wasn’t healing quite well and developed a seroma (fluid build up) in my abdomen. Another trip to the hospital and they drained 1 ½ liters of fluid off of me. A drainage tube was placed and sewn into my stomach July 24th. This whole time my incision wasn’t healing very well and a small part of it wasn’t completely closing. After about a week and a half of babying that, I started to run a fever. Back to the hospital I went. This time they admitted me. That was Aug. 3rd. After another CT scan showed a infection pocket they inserted another drain on the opposite side of my stomach. I had to wait 3 days for cultures of the fluid to come back to rule out MRSA or Staph. Thank goodness it was another bacteria. I was placed on heavy duty antibiotics right from the start of my being admitted but then they put me on another med and now I’m on Flagyl. I was in the hospital for 11 days. I was released on Monday the 13th. Too well to stay in the hospital but I still have a lot going on. While in the hospital I had to have a pic-line place in my arm to run the antibiotics. I came home still having to pack my incision with 22” of ¼” medical ribbon, 2 drain bags still draining and I’m having to run IV meds here at home for 2 more weeks. My insurance allows a visiting nurse 2 times a week who showed me how to do everything. But we are having to foot the bill ourselves for the meds and supplies. $90 dollars a day. Been doing it for 6 weeks now. You do the math. The infection is on the hernia mesh and that is why so much IV antibiotics. They are doing all they can to not have to take the mesh out. That would mean another lengthy surgery. And I’m told a serious surgery too. I have been homebound since I was released from the hospital since I am still nursing all this stuff. I’ve had drainbags removed and put back in twice as this seroma keeps coming back. I’ve also had 7 CT scans total. I will be on the IV meds (antibiotics) until the end of Sept. or until my seroma stops and I can have this drain out. Just have one in now. My doctors believe the infection is under control as cultures show nothing growing in the serous fluid. I am hopeful I can keep the mesh in. No pain, only at the draintube sight. How long can these seromas last? Anyone experience these? Is it because my body is rejecting the mesh? Only putting out 25-30 cc a day. They won’t pull it until it’s zero output. Sick of being poked and stabbed like you all. Would love to have my life back. Feel free to email me ktltel@yahoo.com

  11. Penny says:

    I had ruptured diverticulitis in June 2009 with part of my colon removed and placement of a colostomy. Had no complications and in August 2009 they did a reversal of the colostomy. I did really good no pain or discomfort at all, I was amazed at not being sore or anything. But about a week after the surgery I became extremely nauseated and each time I gagged it felt as if something inside me was ripping apart the pain was unbareable. I called the doctor and he said I was fine just take the nausea medicine. The next day i noticed down the middle of my stomach where the incision was looked swollen so I went to his office and he examined me…assured me I was fine but he did do a CAT scan just to shut me up I’m sure. A few days later he called and said CAT scan was normal except for the two wounds we were packing ( these were small). The next week I returned to doctor with same complaints… he had me lay on table and examined me… said all was fine. I asked him if I could stand and show him. After I stood up his comment was ” oh you do have a hernia”. So in January 2010 I had laproscopic surgery to repair. When I woke up the doctor told me it was a very large hernia and that the entire midline incision was herniated and I had a hernia at the site where the colostomy was. That surgery changed my life dramatically. After that I suffered from severe pain taking pain medicine every 4-6 hours. Unable to move without feeling like my insides were ripping apart.
    In April 2010 got married and my husband moved me and my daughter to another state since I was no longer able to care for her on my own. My 14 year old daughter had to bathe me, help me to bathroom, clean me and had to do all the things that a child shouldn’t have to do.
    After we got moved and my husband set me up with a PCP. The first visit with this doctor, he called a surgeon and sent me straight to his office. In June 2010 this surgeon did a exploratory laproscopic surgery. When I woke he said my pain was caused because my intestines being stuck to the mesh. He said he freed all the adhesions and some scar tissue. I thought this would be the end but it wasn’t…
    The pain continued so he sent me for injections into the nerves of my stomach to relieve the pain. I had went 3 times was series of shots with no relief. The doctor doing the injections said there was no reason to continue since it wasn’t helping. So I continued with the pain until I was sent to see a gastro doctor who did a scope he said all looked good at the connection site. I was then sent to yet another surgeon and in June 2011 this surgeon thought the pain was caused by the sutures holding the mesh in place. So I was sent for another surgery, he did a abdominal wall exploration. When I woke up, I was told he found sutures entangled in nerves and one that was constricting a muscle. So I was happy, I thought I was going to get better.
    After the soreness from surgery went away I was still in the same pain. I gave up and figured this was how I was going to be.
    Then my daughter came home from school one day and told me about her friend’s mother who had problems with diverticulitis and had nothing but good things to say about her surgeon. And most of all she was living a normal life where I was still dependent on others for almost everything. So I made an appt with this doctor in September 2012. He really impressed me because he spent time to go through the hundreds of pages of medical records I had brought with me. Each time he read a surgical report he would ask me “why didn’t this doctor remove the mesh”
    My answer was always ” I have no idea”
    Next he impressed me by having me stand to check for hernia… instead of laying down like all the other doctor. I just remember having that large hernia and it couldn’t be felt with me laying down. His opinion was that thee was a problem with the mesh and he wanted to remove it. So 3 weeks ago I had surgery to remove the mesh ( oh and gallbladder since I had problems with gallstones). His findings were of course the gallbladder, intestines stuck to mesh (again) and the mesh showed chronic inflammation. He removed the mesh and all the sutures and tacks holding it in place. He then repaired all the hernias ( I now had one on the lower right side of stomach). The repair was done using Strattice ( pigskin) mesh and absorbable sutures. I am extremely sore but he said I would be for a while with all that was done. I am just hoping for a life after recovery.
    The first mesh was Proceed… is this one of the recalled meshes and where do I go from here…

    • Some time next month I’m going to have a hernia surgery. Not a repair! The hernia is around my belly button area. I’ve been reading nothing but horror stories on this site (including yours), however, they’re very much informative and important to know about. Filling me with so much vital patient information which I never realized was happening.

      I’ve been doing some research a mesh-free or w/mesh surgery. I found one surgeon in my area that performs mesh-free and then another surgeon (highly recomm.) that only performs w/mesh. (although I forgot to ask him the most important question: which type of mesh).

      After reading your story and the end result….I’m very anxious to know if your last repair with the strattice (pigskin) mesh was successful and if you are back to living a normal pain free life??

      • Jane Akre says:

        If you’ve never had polypropylene or synthetic mesh or mesh of any kind,,, you are a better candidate for a non mesh repair is what the experts say. Talk to Bruce Rosenberg of the Meshoma Foundation to find out more… 954-701-5094. He is a wealth of information…hernia mesh injured man.

  12. cathi says:

    I have had Hernia repair on Sept 25 2012 a year before I had colon surgey, they use mesh on me to repair the hernia went in lopascopicly, I have been in so much pain since I am conidering having the mesh removed is there anyone out there that can let me know if I should go through another surgey and will it be better for me in the long run.

  13. Lee says:

    Ok I had surgery 3 years ago they used mesh .since then I lost 100 pounds can’t eat stomic hearts all the time have even passed out more then I like to admit constant pain .what can I do no med coverage should I go to dr or FDA

  14. Jane Akre says:

    Hi Lee- The FDA takes complaints from patients all the time. It is not a perfect system but it all the government does to keep track of so called adverse events. I don’t know if you had hernia mesh or vaginal. Please contact me at jeakre@gmail.com.

  15. tammie jones says:

    my husband had a hernia and is having problems we need legal help

  16. Dishon Jones says:

    I got a hernia repair with mesh last year.(2011) I started having pain right above the incision. I thought it was due to the surgery, well I knew pain was expected but 6 months after the surgery I continued to have really bad pains after I ate anything. So I thought that maybe i was still healing but a year later going i two years im still having theses pains. I just want dime answers what went wrong, do I need to get the mesh remove, is it life threatening? Can some one please help me I also have the hardest time having a bowel movement please help me. What should I do?

  17. Jane Akre says:

    Dishon-

    You need to become your own advocate for your health. I will refer you to Bruce Rosenberg who is a hernia mesh injured person who can help you with a plan brosenberg1@bellsouth.net

    I do not give legal or medical advice. I’m assuming you have all of your medical records? I’ve never heard of a mesh complication going away on its own, though that would be nice. I hope you take action and get some answers.. there are professionals out there who can guide you.

  18. Michael says:

    I found a leading hernia researcher in the industry in North Carolina. I had two hernia (inguinal) repairs and I was not told about the risk of issues from my initial surgeon. He used the plug and patch for both repairs. The first one (right side) went ago and still bothers me now.

    The left side was hugely problamatic. I had stabbing pains in my testicles, down the legs. My problem was that I had also suffered from pelvic floor pain on the left side from an injury sustained while running. I actually believe my first right side repair which was done almost a year before my left side, had made my pelvis inverted. I had an incident while running and pulled something in my pelvic floor that I am still working on today. I’m hoping i’ll be able to overcome this at some point.

    As far as the left hernia repair, I couldn’t stand it and I had enough of it. I started researching and against the advice of my therapist and family, I drove hours to see another surgeon that I had found online. This is the first doctor that I found that actually understood what I was going to. After seeing him and thinking long and hard about, I decided to have him redo my left hernia. He took out the plug and mesh and put a layer of mesh under the muscle instead of on top. He said my nerves were all entrapped in scar tissue and the mesh and that I was in pretty bad shape. Today, my left side feels better than my right side (minus my pelvic floor pain)!

    I guess I’m adding this because you really do have to be your own health advocate. Most general surgeons will shrug their heads if you say you’re in pain, mostly because they don’t know how to fix it or are scarred to attempt it. If you are still in pain, find someone that specializes in fixing in. I took the risk of loosing a leg or testicle by having mine redone and it’s not an easy choice. I wish you all the best and I think we can all get better some day. Technology will be better. Please help yourself though. I searched medpub (free online medical publication) for months to find a doctor that could help me.

    One day, I may even have the right side redone but I’m wanting to father children first. I do wish you all the best.

    Don’t give up. Pain can be cured or at least made much much better. Even without surgery the body has a great change to eventually adapt and cope!

  19. The Mesh was a Bard 3D Max. It was implanted on both sides (2) Meshes I had the hernia sergery the last part of the month of May in 2008. I started having problems around the first of the year in 2011 and by July of 2011 almost died, and had it removed. The mesh wore a hole in my bladder about the size of a 50 cent piece & both surgons said it looked “like an old wound” The mesh was full of Staff infection and the cause of the wound and was removed. Upon removeal the incision became infected with the staff & split open resulting in exstreamly long recovery time and a ugly scare that looks like I have 2 belly buttons. As far as I know this model mesh has not been recalled but is under review. Even though it might not yet be recalled it still just about killed me and did disfigure me, for life

    • Keven Caldwell says:

      Wesley,

      Thanks for sharing your story. I am curious as to what were all of the symptoms you had that led up to your removal of the mesh? And how did the doctors finally discover the problem?

      I have the same mesh in me (about 1 yr & 3 months since surgery) and have had some unexplained symptoms:

      1) Abdominal pain/pressure and bloating
      2) Urinary symptoms that include burning & pain in my urethra
      3) Gastro issues like constipation and discomfort
      4) Pain in my lower back/kidney area

      I have had a CT Scan, Colonoscopy, and cystoscopy and nothing has shown anything.

      Thanks,

      Keven

  20. Rachel Clingon says:

    I had ventral hernia on Dec.12,2012 with mesh. four weeks later U have a lump the size of an orange at the surgical site. I am also still finding blood on my underwear from where the wound drain tube was removed. It is mostly dark with some fresh blood and has a bad smell. I am so worried about problems with the mesh. I will see the surgeon tomorrow.

    • Rachel Clingon says:

      Dr said the blood was coming from the bottom of the wound. The wound looks ugly. I’m 64 but still don’t want to look ugly. I had previously had a hysterectomy at the same site and some of the edges are healing gaping open. Dr said the lump could be fluid. Nothing was explained to me. I had some bleeding after week 5. I have next apt. Feb. 7th. I’m wishing now I had just lived with the hernia.

      • Ann says:

        Rachael, I feel for you greatly. I also am 64 and I think am feeling pretty much the same way. I have been dealing with Crohn’s disease for 36 years, have had 3 bowel resections and many other issues. I had an incisional hernia repair done in 2011 with Bard mesh and am regretting it everyday of my life since. Unfortunately, I thought the surgeon at OSU was only repairing the hernia, totally unaware of him putting in a 10 x 14 inch piece of mesh! In October 2012 I went to Cleveland Clinic to have my colon removed and now have an ostomy. The surgeon said it took almost the first 3 hours of the 7 hour surgery to get through the mesh. She had to get her biggest guy on the surgical team to get it apart, she told me. AND THIS IS SUPPOSED TO HELP? I would rather have the hernia. The 14″ incision from the surgery is not healing. It drains really bad, and smells like you said. I have to pack this wound myself everyday. I know I should be thankful I am still alive, but like you said, I feel very ugly. Am going back to Cleveland Clinic this Friday to talk to the wound nurse. Wish me luck! Good luck to you, hope you get better.

  21. Kenneth Nesmith says:

    There is a doctor in Las Vegas who has over 5000 hernia repairs WITHOUT mesh. He is a very outspoken Dr. AGAINST the use of Mesh….says it “honestly ruins lives. He has done about 100 mesh removals. He saves the mesh specimens when he removes them. you WOULD NOT BELIEVE what this mesh garbage looks like after it has resided in the Human body. 1) A study in the U.K. found that ALL the mesh they tested is subject to “mineralization” that is to say it gets hard in the body due to minerals accumulating in the mesh its self. 2) As per Dr. Peterson, Scar tissue forms around the mesh, as scar tissue ages it SHRINKS thereby pulling and tugging on the mesh wich subsequently pulls of the surgical “tacks” wich hold the mesh in place causing insuferable pain. In short, what was placed in the body as a soft membrane becomes hard, then suffers tension from the scar tissue. IMAGINE what that can do to a human being in one of their most sensitive areas..The Belly !

    Here is a News Report about Dr. Peterson and Mesh….

    Cavat Emptor : Buyer Beware

    http://www.ktvu.com/videos/news/special-report-doctor-warns-of-pain-associated/vG67c/

    God Bless those who suffer.

    Scincerely : Kenneth Nesmith

  22. Kenneth Nesmith says:

    Here is research about the Mechanical Properties of Surgical Mesh;

    Title:
    Mechanical Properties of Mesh Materials Used for Hernia Repair and Soft Tissue Augmentation

    Research Data and Results;

    http://www.plosone.org/article/info:doi/10.1371/journal.pone.0046978

  23. Kenneth Nesmith says:

    More Commentary by Dr./Surgeon Peterson , of Las Vegas, about Mesh problems and correction…

    http://www.youtube.com/watch?v=ztiZOPWNj4o

  24. terlin says:

    Had inguinal hernia surgery 2011 had bowl and urinating issues, so severe couldn’t sit. Severe bloating above incisions bilateral went through all kinds of test sigmoidoscopy ct scan MRI all negative had mesh removed oct 2012 nerves were untangled cut and buried scar tissue removed from colon groin swelling went down now numb with some stinging but still bloated and pain above incisions can’t sit and still difficult to defacate.

    • Ben says:

      Will those who have had their mesh removed PLEASE share who is removing them? Your stories are helpful, but without the doctors’ names, patients can’t make informed decisions. Thanks.

      Terlin, who removed your mesh?

  25. Anjanelle says:

    I have a 3 year old daughter that is supposed to go in for an inguinal hernia repair and a 16 mth old (also daughter) for an umbilical hernia repair, after reading of the mesh complications I am obviously hesitant. What would be your suggestions for me?

  26. Jonsey says:

    So confused, should I move forward with the hernia repair or not? Have had diverticulitis and now facing this surgery. Scared of the Mesh after hearing so many horror stories. What should I do? Is it reallyife or death to have this surgery?

    • Tanja says:

      Jonsey: I too am scheduled to have an umbillical hernia repaired and after reading this, I became horrified and told my doctor about my fears. He said that he uses Marlex mesh. I googled and got horrified all over. Got a second opinion and the new doc. says she uses biological mesh because it is less chance of your body rejecting it. She also said that the first doctor isn’t wrong for using Marlex simply because it is used to often in these cases and works. She said that if I were not healthy and had any other health issues, she would definitely use the biological mesh. So now, I have to choose and I’m still afraid. Perhaps I could just do nothing and pray that I can live with my hernia which give me no problems, for the rest of my life? So scared and So confused….

      • Tamar Kuperstein says:

        My Umbilical hernia seems to be growing (half a melon) around the belly button. this happen following a laporoscopic surgery at the end of April 2013. My doctor suggested a mesh implant. However I found this statements in regards to the procedure in MedlinePlus:
        •Strong stitches will be used to repair the hole or weak spot caused by the umbilical hernia.
        •Your surgeon may also lay a piece of mesh over the weak area (usually not in children) to make it stronger.
        I am very anxious and may opt for strong stitches or ask for a biological mesh if the doctor will let me.
        Any ideas?

        • Jane Akre says:

          Tamar- Please contact Bruce Rosenberg of the Meshoma Foundation brosenberg1@bellsouth.net He may be able to direct you. Though not a doctor or lawyer, he is very experienced and has a great deal of research. He also is knowledgeable about doctors… thank you… ja

  27. Al says:

    Had left inguinal hernia surgery 10 years ago have had terrible pain and problems ever since. Doctors here in Australia refuse to help me. The surgeon claims he used surgipro mesh, although nothing is recorded in medical record not even a sticker from the mesh. Doctors refuse to help, Radiologists don’t even want to get involved. If I could find some one to remove the mesh now, I wonder if I could possibly be any worse off?

    • Selina says:

      Hi Al, I am in Australia also (NSW). I have been in excrutiating pain since an implant of mesh to repair an large incisional hernia resulting from 2 appendix ops. I too have been getting the run around from doctors – was told I have nerve damage and would have to control pain with medication….I am now on 60mg morphine daily plus endone & lyrica. Well a couple of months ago a lifted something heavy & immediately had severe pain that got worse & worse so I ended up in hospital. I was never told mesh was going to be used – I went into surgery expecting keyhole & to be stitched up. Immediately upon waking I grabbed my side & said to the surgeon ‘whats that, whats wrong with my side’ he then stated the hernia was too large to be fixed with keyhole so he had to cut me open again & insert mesh. From that moment on my life has been a living hell & as I am also a single mum it has been really hard just trying to cope with every day life. There were other complications, seromas etc etc.& everytime I had a scan they all said there was no obvious problem that the mesh was intact. Anyhow to cut a long story short when I went to hospital a couple of months ago I went to a different larger hospital than where the surgery happened & found a sympathetic specialist who gave me the name of a hernia specialist in Sydney. this wonderful doctor is going to remove the mesh & he does public patients as well at one of the big sydney hospitals. You HAVE to take this into your own hands!!! Google for specialist hernia repair surgeons in your area – if you are in a country town as I am BYPASS it and find someone in the city who knows what they are doing. Ring a few of these surgeons yourself & organise an appointment then go to your Gp & get the referral letters. That is what I did, my gp did not have a problem with me doing that & in fact they have no right to refuse you. this surgeon did blood tests that show I have high grade inflamation & the scans show a huge difference to my muscle tissue etc on the hernia side. He said sometimes there is a low grade infection in the mesh that does not show up in blood results…all my white cell counts etc are ok but there is high grade inflammation in my body which obviously is because of the mesh. He has given me no promise that removing the mesh will improve or make a difference to my pain but the way I see it it cant get any worse & I would rather have this stuff out of my body. I also have an extrememly high pain threshold which is what has helped me through this – I know if i did not have that I would be incapable of living life at all – even with the meds I am on they do not take all the pain away but I can cope so do not want to increase my doses. Good luck to you & I hope you find some relief & a good surgeon who will help you. You might also want to google ‘class action mesh lawsuit australia’. Kind Regards

      • Jane Akre says:

        Hello–I am wondering if you connected with a Dr. John Garvey in Australia as the mesh expert you mention? A woman from Sydney would like to know. Thank you! Jane Akre

      • Gary Schnapp says:

        Selina,

        Kindly tell me the name of the doctor in Sydney, Australia who will remove your mesh, and a contact phone number, if possible. I live in U.S.A. but will travel to any destination to have mesh removed after my laparoscopically-inserted mesh has been causing me pain for two-and-a-half years.

        Thank you,
        Gary Schnapp

        • Jan says:

          Just reading thru all your comments & found out about a U.S. surgeon in Las Vegas: Dr. Kevin Petersen of No Insurance Surgery. Go to their website & all your questions will be answered, even if you do have insurance.

  28. Patty says:

    I had inguinal hernia repair with mesh in December of 2004. I was problem free until August 2011 when I was hospitilized with abdominal pain and a high fever. The doctors were unable to find anything wrong and sent me home. Again in May of 2012 I was hospitilized with the same symptoms and again released with no answers. I had other infections and was given antibiotics. In November I went for a cat scan for an unrelated problem. The same day I got a call from my doctor telling me I had a 3 inch abscess in my abdomin. I was admitted that afternoon and had surgery 3 days later to remove the mesh that had gotten entangled in my small intestine. The doctor had to remove a total of 3 inches of my small intestine. I had complications with the healing of the 12 inch wound and had to see a wound care doctor 2-3 times a week for 2 months. Just this week I consulted an attorney about taking legal action. I was told these law suits had been settled already and I probably didn’t have any hope for any restitution. Have any of you consulted an attorney and what were you told?

  29. MaryJo says:

    I went in for an umbilical hernia surgery and came out with a double hernia surgery in aug 2008. I gained 50 pounds by January. Went back to the doctor who said there was nothing wrong with me. Since then, the weight hasn’t came off, I have awful pains in my stomach every so often. Sometimes i get a sharp sharp pain that bends me over n feels like i just got outta surgery again then it’ll just go away. If I feel a gas pain, I need a bathroom cuz I can’t be for sure if its just gas or I’m gonna squirt something out. When I have to pee I have to go then cuz I can’t hold it. If I cough or sneeze I might tinkle. I know this could be from other issues but I never had any of these problems until I had the surgery. Does anyone else have this or heard of this being a problem? Is this normal and it’s just in my head that its from my double hernia surgery?

  30. Xiomara M says:

    I had an open repair ventral hernia on January 17,2013 , next day at the hospital I had some temperature and the next day i was trowing up. they let me stay in the hospital for four days. I got home next day i had this really bad pain ,believe me it was like being in labor and i started to trow up since then i been taking milk of magnesia, mira lax everyday and the pain doesn’t go away i still trow up at least once a week and the cramping and the pain doesn’t go away. I had a ct scan last week and it showed that i have fluid around the surgery are and the mesh has moved. my gastroenterologist thinks there is an infection but two of the surgeons at my doctor’s office can not rule an infection, but i’m still with pain and nauseas and trowing up. I have an appt. next tuesday with my doctor i’m waiting to see what she will said about it, but for the last seven weeks i have been miserable feeling like crap everyday. Has anyone out there have or had this symptoms?

  31. George says:

    I had a bilateral inguinal hernia repair with mesh, and have been in constant pain, it recent got worse when I started to cough and sneeze. I live in Los Angeles ,has any one had their mesh removed? You can email me if you guys need some one to talk to. Raidernation07es@yahoo.com

  32. Dellia says:

    I had laparoscopic hernia surgery two weeks ago. I am in more pain now, then before the surgery. The “bulge” that was the “hernia”, is now hard and still there. I feel pain and pressure in the upper abdomen area. The surgeon was very vague about answering questions. I have a follow up appointment next week. I don’t think he is going to be helpful at all. He was all about his “money”. If he places the blame on me or won’t help, then what? I think he used mesh. I am so upset and hurt right now. I saved to have this surgery. Now it appears I will go broke trying to get it removed. We can’t afford this. I am the only caregiver for my kids. My husband works. There is no one to help me. I am just lost…

  33. Brandy says:

    I had a emergency ventral hernia repair done almost 3 weeks ago and while I was rolling around in pain begging for drugs my husband told the Surgeon to fix me at all cost except putting a Mesh patch in. The Surgeon is not happy with the decision but it is one we made together several years ago when we discovered I had a Hernia for a botched C-section. The surgeon came in after and told me I would have another Hernia since I refused the patch. Me personally I feel better today than I have in over a year and after sitting here reading all of your stories I am soooo grateful that my husband and I made this decision. I hope to prove the doctor wrong and heal well and for ever. I started eating better 11 months ago I gave up soda lost 60 pounds and had to quit smoking as of the surgery. I hope I made the right decision. I wish nothing but pain free peace to each and everyone of us everyday.

  34. Pat says:

    March 29, 2010 I had experienced a ruptured appendix, as I was admitted into the ER of the hospital, for that is when it was found that my appendix ruptured, since March 26th. Had to have Emergency surgery that night, and ended up staying in the hospital for 8 days. The surgeon I had was a great one, as she basically ‘saved’ my life that night She had to cut 4 inches into me, as this affected my belly button area. Did well after that, but a few months later I developed a large hard ball-like at my belly button. Found out that this was a hernia.. either due to stitches tearing, or? Was referred to another surgeon, instead of the one that performed the original appendix surgery, as I had surgery (was supposed to be outpatient, but ended up staying over night in the hospital) on March 14th of last year (2012). Was aware of the idea of having mesh placed, but that was about as far as my knowledge went.

    Another three inches were cut in me, which was above the previous surgery of the appendix at the time of the hernia surgery. Was told that he had placed five inches of mesh (never knew what kind of mesh he used) over the area of the belly button hernia. I had felt allot of tenderness around the area of my belly button, and also of my lower stomach. By July of 2012, my lower stomach swelled up so badly, as I actually looked (still do) as if I were about 6 months pregnant (I have NEVER been pregnant…. just visualizing what I would look like, if I were). I had complained to my Primary doctor about this for quite a while, and he actually did find that I had ANOTHER hernia, which was located at the lower left near the groin area… last November. He could push everything back in. On December 2, 2012 I fell into a chain link fence gate, as I really meshed up my face, and also had dislocated my left shoulder. I am 62, and one can’t just ‘bounce back’ as when they were younger. ER visit and they were able to (by putting me out, because I was in EXCRUCIATING PAIN!) put my shoulder back into place. I then had a torn rotator cuff. Wasn’t able to use my left arm, and still can’t. No strength in it, etc. Will take a very long time to heal. Anyway, I did have a CT Scan the first of January to see about the hernia. My doctor said that I didn’t have to worry about it, as there is ‘fat’ growing it, etc. This has been a MAJOR concern of mine, and the idea of the arm to heal has been more of a priority with the doctors. Finally, I was able to see the surgeon who had performed the appendix surgery (the surgeon who had performed the hernias surgery last year, retired) a few weeks ago. She looked at the records of the surgery and said that the mesh had been placed over the hernia hole and was stapled to the good flesh inside. Sounds to me, that there was NO repairing the hernia from before, as to just cover it with 5 inches of mesh and STAPLE it. Both my husband and I have told that surgeon that I do ALLOT of physical work. We live on over 2 1/2 acres in Southern California, as we have horses, dogs, cats and other farm animals that need to be fed and taken care of. I DO NOT

  35. Pat says:

    To continue………. I DO NOT just sit at a desk job, and do little exerting exercises. Now, I am going to have to have surgery and have the previous mesh removed (having to cut the entire 7 inches again that had been cut away in me during the past two surgeries), and that the first hernia will have to be sewn and also to have the lower hernia repaired, too. The staples have been RIPPING away, and it really does HURT to feel those darn things ripping underneath my skin.. YIKES! And, I was told that I will be in a great deal of pain, for a very long time. And too, I am responsible for paying the copay of the hospital stay of $250.00 a day. Both my husband and I are on Disability. We don’t get very much each month, and the cost of the hospital stay will take a long while to pay off. This hospital wants their money NOW! Have gone through this with the same hospital twice before, and to have to go through it again…geez!

    I have allot more TRUST in this surgeon, as I had said she was the one that had done the great job of the ruptured appendix. Surgery is planned for some time in May.

    Sure hope that this surgery does the job, and that I can lose the excess fat/skin that has developed over the past year in my lower stomach.

    • Brandy says:

      Pat check with the financial office at your hospital there might be programs to get the copay paid for you because of your age and income. In North Carolina we have Vocational Rehab and they help with things like this. My heart goes out to you this morning! I know when it’s removed the relief will out weigh the pain!

  36. michael ketcham says:

    i just had incarcerated hernia surgery umbilical and it,s 3 days after . now i,m having numbness , knot like feelings inside. like the intentines is gone through the wall again and not to mention i had blood coming from my rectum after a bowel movement. waiting for the nurse to get here.

  37. Jeanette says:

    Still looking for help, dr that put in mesh wont do anything
    I’ve see three more drs they say I need to see dr that put the mesh in
    I have he won’t do anythig. He blowed me off
    I’m in pain it feels like someone is stabing Me
    and still have pro lapsing constipation incont swelling in the aria infection ect
    What am I to do help

  38. bettybellagio says:

    Hi Jeanette,

    I have run into that exact same thing. The stabbing is horrible and still happens (less often) after 100% mesh removal. I recommend getting it out – totally. If you’re in a small town like me, other Dr.’s don’t want to deal with mesh issues because of the political aspects. The hippocratic oath is in the past (not all, but most I’ve met so far). If there is anyway to see Dr. Raz in CA, that should be the 1st stop. He isn’t bothered by other Dr.’s screw ups. I think he spends most of his time fixing things other’s have caused. Also, there are instructions on the web for Dr.’s to address mesh issues. They are more political than true, as far as my experience (for over 4years anyway), removing the part that hurts, causes more issues. Estrogen cream isn’t a miracle cure. Mesh does cause pain. It is so maddening that it isn’t being regulated. Someone here said that it should be buyer beware with the FDA and I agree! We are in great need of more experienced Dr.’s in this area, and how to pick up the pieces of our lives once we’ve been injured. Instead we find stonewalling, denial, and Dr.’s thinking we’re crazy because he’s never seen this before. It’s about greed. They should be sorry that anyone of us was injured in the first place and to add insult to injury is just plain wrong. It will come out – eventually. I hope in time to help us.

  39. Elizabeth says:

    I had a triple incisional hernia repair with mesh done last Aug, 2012 and thought it all went really well…extremely painful recovery…had my breakdown, etc. At some point in the healing, the pain from the incision site went away and was almost immediately replaced by a peripheral pain all the way around in a square shape…I contacted the surgeon and he ordered a ct scan and of course nothing showed up…it is now almost a year later and I developed another hernia above the repair on what was left of the old incision site…saw the same surgeon today and he said I was the first patient ever to complain about pain caused by a mesh…I told him quite adamantly that I do not want another mesh put in me and if possible, to have the mesh he put in removed…he said there was no surgeons in BC Canada…I asked about Shouldice and he said I should speak to my family doctor and get a referral…I am in constant, but bearable pain…can’t wear pants or undies that have a band that reaches my belly button area…I have to wear an abdominal binder when the pain gets too much…pain is always there, even when laying down in bed. I am searching online for surgeons who can remove and repair without mesh…doubt I can go to the States…don’t really know what costs are for this type of surgery…but am saving up every cent I can to get this done. I keep reading about the Desarda method and the Shouldice method…it’s all so confusing. I can’t believe this all started with a rotten gallbladder removed in Emergency in 2007…I hope this isn’t going to turn into a disability.

  40. JOJO says:

    Does any one know any attorneys that take ethicon proceed mesh cases if so please let me Know ..:)

    • Aaron says:

      Did you ever find any lawyers that are dealing with this? My wife is having severe pain and complications from a 2 year old surgery.

      • Jane Akre says:

        Aaron- The last hernia mesh cases were for Kugel and I’m not aware of any Mass Torts against any hernia mesh manufacturer…. But I could be wrong. Lawyers? Since so many are coming forward with complications I cannot imagine that eventually there will be litigation. Be sure to report your complication into the FDA’s MAUDE database in that this is the only way the agency keeps track, as poor a system as it is.

  41. Gabe says:

    Surgery 04/25/2013 . I just had two hernia surgies, inguinal and imbalical. I did have the Dr. Do the repair wish mesh. Not knowing the aftermath. But one thing I’m Uncomfortable withis that the hernia was near my left nesticle. BUT the incision wasn’t near the testicle. I can still feel something uncomfortable there! From where I feel the hernia near the left testical is about 3-4 inches. So I’m very concerned thinking this Dr. Didn’t do his job! Even day of surgery I notice that where he marked the area where he would make the incision was across my waist not going downward. And I felt all this before surgery. And it’s still there! What can I dooooooo…………

  42. Heather says:

    I have had a TVT in December 2011 and 2 inguinal hernia repairs on each side, one in August of 2012 and the other in December 2012 with a Mesh but not sure what type and ever since I have been in Chronic Pain and now my doctor wants to send me for nerve blocks but those are not nice to have so I don’t know what to do now.

  43. jason flatt says:

    Hello,
    I had an inguinal hernia repair with mesh on my right side November 2012. I have an occasional shooting pain in it but I know that is probably from the nerves being cut. It only happens sometimes but otherwise I am fine. I broke my Fibula about 3 weeks ago playing basketball and have been nursing it as it is on the same side as that hernia repair. 1 week after breaking my leg I had been feeling a dull pain in the right side of my testicles. I went back in and wouldnt you know it another inguinal hernia now on the left side. This time I had a broken leg on 1 side and 1 day to prepare for this surgery on the left side. BOY what a different surgery this time. I felt a burning unlike the last surgery was clammy and sweating as I was trying to recover. My temperature seems to take me from hot to cold consistently. I am now 1 week and a half outta this surgey. I have intense shooting pains. Hopefully I will recover flawlessly but dang it hurts. On this side. I have also nausea and a lack of an appetite with ultra frequent bowel movements. I hope I dont end up where you all are so wish me luck. Also since I had thw hernia I was anaemic and had autoimmune symptoms does anyone know if thats common with inguinal hernias. Let me know. God bless u alk

  44. ana says:

    I went in for a hernia repair woke uo to two hernia repair a month later if I lay on one side hurt if wear my jeans waist I get discomfort and nausea. I feel nause all the time not sure if this is normal. Pain meds help a lot just wondering what’s wrong anyone feeling nausea all the time

    • Betty says:

      Ana,

      Nausea is not normal. I didn’t have hernia mesh – (SUI mesh), but I did have constant issues from nausea. Turns out my nausea was caused by ulcers, which developed from pain meds. I recommend you see a gastroenterologist.

      Blessings

  45. betteanne rutten says:

    Had diverticulitus complicated by salmonella. Developed perotinis and then life threatening sepsis. Renal, lymph, and respiratory functions are still diminished. Emergency resection, 9 days ICU, 2 weeks hospital, 3 months home health care. 5 months later, colon re-sectioned. Did well, then developed huge hernia lower left side near pelvic area. Mesh repair-most painful surgery of the 3. Later had to have 3 drainages of seromas which formed. these were CT scan assisted. Although I am now quite mobile after almost 3 years since mesh repair, I have constant pain where mesh is connected over pubic area. Ultra sound and CT scan shows clear abdomen. I do look perpetually 5-6 months pregnant and always will. With the mesh compressing the lower abdomen, it’s like a toothpaste tube, as the abdominal cavity bubbles to the top. There is nothing to be done. Guess I’m lucky to be alive, but still no relief from the discomfort and sometimes pain.

  46. Jocelyn says:

    In August 2012 I had a surgery to repair an umbilical hernia in which the surgeon placed a mesh, three weeks later I was back in surgery where he opened me, took that mesh out and used a different mesh. I think Allomax is the brand name. About 6 weeks after surgery I developed a huge bulge at the site of the incision which I’ve since found out is a ventral hernia. It’s extremely unsightly and cause a vast array of complications including chronic vomiting and chronic pain. The surgeon denies anything wrong, or anything that can be surgically fixed. My complications outweigh my quality of life by far and I live in misery daily. I don’t know what to do at this point. I spoke with a big name attorney in Houston and they didn’t want to take my case. I’m at a loss right now and just wanting my life back. Any advice is welcomed.

  47. Kimberly Whitman says:

    Sometime in the 80’s my colostomy herniated and I had a mesh patch put in and my colostomy was moved to other side. I have had pelvic/abdominal pain throughout the years but the last couple I have had alot of discomfort plus nausea which my doctor hasn’t been able to diagnois. What chance is there that the mesh is causing my problems? Could I have scar tissue attached or other issues? How do I find out if the mesh could be the problem?

  48. Jane Akre says:

    I often say it but Bruce Rosenberg is a hernia mesh injured patient who has founded the Meshoma Foundation. He makes it his job to know all about hernia mesh, though he is not a doctor or lawyer, but a patient advocate. brosenberg1@bellsouth.net or 954-701-5094.

  49. Brandon Holder says:

    hello,

    In 2010 i did not have insurance and my 3.75 inch hernia was repaired with plastic mesh, 2 years later i had a Vericocelle(sp) repair and the doctor said he will look around and see if he could find a nerve to no avail. After that I went and sat down with a doctor and was told i have very little options for this. he performed a expository laperoscopy and found to the far left of my hernia repair that the mesh had “balled up” and was causing the pain. that was 2 months ago and the same pain is still there. When i first was diagnosed left inguinal hernia i was not offered any other option such as natural sinew or any of that. Still to this day i have the same chronic “hot coal” under my skin feeling and i don’t know if it will ever be normal. I am a car builder, artist, and the only member in my household with a job and it is tearing me apart, every time i bend or stretch it causes intense pain that pulsates and lingers for days and when i do have a good day i may move wrong and im down for a week or so.. I am currently on no pain meds besides otc ibuprophen that i have to take large amounts just to take the edge off which is terrible on the kidneys.. I am at the point where i don’t know what to do. I don’t want to be 25 and on disability the rest of my life. i feel i should take legal action but every law firm i contact only takes on vaginal mesh (no offense to you ladies) and all these surgeries i have had to pay for. So i continue to deal with constant pain while doctors tell me there is nothing else that can be done.. Good luck to you all i wouldn’t wish this on my worst enemy.

    • Betty says:

      Hi Brandon,

      I’m so sorry you’re going through this. My son is your age. WARNING: Ibuprofen can cause severe ulcers and kill you especially if you take high doses. When my mesh nightmare began no Dr. would believe I was even in pain and I took ibuprofen at the max dose to just get by. I am on oxycodone and occasional dilaudid. I have good days and bad days. My Dr. monitors me regularly and said that this for my case is actually better for pain control. This is probably a political statement. The issue they discuss with oxycodone on addiction is for those who get a “high” off of it. I’ve been told by many Dr.’s that you don’t get a high if it’s going to pain. The other thing is you can grow tolerant to it. I keep a log of what I take and when I take it. I’ve been off of it 3 times now and didn’t really suffer withdrawals. It can be weaned off. If ibuprofen is helping you like it is me

      • Betty says:

        sorry meant to say it did me. My email went wacko. I hope to see hernia mesh repair go into lawsuits as is the vaginal mesh. All of it is suspect. Hang in there, Blessings

  50. Catherine. bernardy says:

    I’ve had 2 Hermia repairs in same area. Now I’ve constant pain, burning and problems moving my bowel thrum that area. Could it be the mesh? Also left side of lower abdomen has a big bulge.

  51. Debbie Blacl says:

    I am 40yrs old and have had three Umbilical hernia repairs here in the UK and they are killing me. I have synthetic meshes and it has destroyed my life. At this point I’m looking for anyone to help me find an alternative. I suffer from debilitating pain every day, am now on Morphine. I just got out of hospital today (my third time this year) and my mesh is infected. I almost died twice because the mesh was stuck to my bowel. I have pain every day, the infections give me raised blood pressure, my organs become inflammed nd make me gravely ill and every day I feel the pulling and tearing of my flesh as the meshes and scar tissue rips and tears apart when I move. I geat headaches, vomit, am nauseous every day and sometimes just can’t even get out of bed. I hve two boys under 5 and I worry this mesh rejection is going to kill me. Is there any alternative anywhere in the world to meshes? i will save up and pay to have it in the US or Canada if I have to. I can’t carry on like this. I’ve doing a lot of research based from Harvard that states Mesh rejection is causing sufferers to end up with Auto Immune Disease, Cancer, Diabetes etc…please can someone help me. I don’t want to be like this anymore. I feel like my life is over before it’s even begun. My boys deserve more than the Mum they have.

  52. Kimberly Brehm says:

    My name is Kim. I had a double incisional hernia repair done on Wen. August 7th of this year. I was told he was gonna use mesh, but was not told of all the complications it might cause. I was in a lot of pain before the surgery, so I just wanted it done!! I also have a problem with my back, so trying to deal with all the pain becomes challenging sometimes. I take pain meds, but believe me they don’t always work.

  53. GGKY59 says:

    2009, my mother, then 75 had developed Diverticulitis, and was bleeding severely from the anal area. She was taken into surgery and repaired using a medical mesh. 2011, she was still feeling pain from the surgery, so they went in and the mesh removed . A year later she began developing hernia’s. 3 surgeries later, due to constant infections, still no relief from the pain. Just recently it had gotten so bad, so much so that her skin had began to die off on the belly area, she was rushed to ER,…today, my mother is back at the same hospital with a huge hole in the center of stomach, wide open, never to be repaired. I am beside myself with frustration and misery over this poor woman having to endure this pain for the rest of her life. I want to hold someone responsible, could it have been the mesh that was first used, please help me somebody?

  54. Eddie Wood says:

    I too have undergone right side inguinal hernia repair about 8 months ago, and have had mild pain and discomfort for months. I’ve recently experienced very bad pain in my entire lower abdominal area and groin.
    Burning, stabbing, etc. feelings all day everyday now for several weeks.

    I also feel very weak with flu like symptoms.

    I do have an appointment with the Dr. that performed my surgery in November.
    I feel like somethings very wrong as these feelings are constant, and may be causing other health problems.

  55. Kim says:

    I had uper abdomen herina repaired for one month after I had drainage like a brownish green I would push on ensison and the fluid would gush right out dr said that was normal this was in July finally in August it was starting to heal by the beginning of sept it was all closed up now we r at the end of sept and that area is hard very red and sore and it burns and there is also some swelling can someone tell me if this is caused by the mesh this all has taken place this year2013

  56. lucy Goodrow says:

    Ok ihada hernia done with mesh approx 5 years ago i changed drs and he explained that my mesh with staple had gone in a big hole which was my first hernia he explained to me that my chances of strangulation could happen but because the whole was larger then intestines my chases were reduced he also explained how he would repair with a much larger mesh so this would not happen again he also told me that 3out 5 would have to have surgery again ,
    will in the last 24 hours i have a slight fever and pain in my pelvic area so i desided to look on line now i am very confused with this mesh situation also my father died after a hernia surgery way before ,i was only 4years old it was from a bad infection, i am now 74 years old please advise i am ready to say i will take my changes without second surgery no one has mention all these mesh issues

    • Jane Akre says:

      Lucy- Please contact Bruce Rosenberg of the Meshoma Foundation. He is mesh injured by hernia mesh. brosenberg1@bellsouth.net 954-701-5094. He may be able to help direct you to regain your health. Thank you for writing. Please stay in touch! ~ja

  57. fantasia says:

    I was injured about 18 months ago. I have had severe left Iliac crest pain, lower hip pain, lower back pain, buttock pain, pain into my mid thigh and left quadrant pain that goes into the meaty flesh above the pubic bone. I was also having some LBL, that I had no idea could be related to my injury. Every single physician I had seen I told them that when I was injured I had he weird sensations like I was perforated, like my bowel or bladder was perforated; which should have been a big clue to all the physicians. I began to have recurring UTI’s and a severe bladder infection that I had to treat myself due to a 3 1/2 week wait to get into any doctor. X-rays showed nothing. Months later MRI’s showed nothing, after that painful imaging with dye showed nothing but a little bursitis. I know my body and know something was wrong. I went to a hip surgeon who claimed my pain was from my spine, I went to a spinal surgeon who said it wasn’t my spine, that it was my hip causing my pain. So I went back to the hip surgeon who said there was no surgery he could perform. I wasn’t asking for surgery I wanted someone to make a diagnosis. So I went back to my spinal surgeon who said there was nothing he could cut on. So I was finally referred to someone to due a nerve conductivity test, he was unable to get a response from my inner left leg, so he decided to stop mid test to spare me more pain from the test and referred to place who had different nerve conductivity equipment, these tests are not without pain. The second test was negative. My Chiropractor referred me to a spine specialist who said he was disgusted with the opinions of the first two specialists because he stated it was both my hip and spine. I started doing my own research and found I had many symptoms of Labral Tears and asked to be tested. It took over 3 weeks working with the front office staff to set up my special needs, surgical IV therapy due to past failures of inserting IV, being put out due to involuntary body spasms etc… When I got there I asked the nurse for the surgical IV therapy and she said she was there to do my IV. I told her about past problems and she ignored me and proceeded to blow three veins attempting to start an IV. I then asked her, the MRI tech and other staff to confirm that I would be put out, and then the Doctor came in and said he didn’t know what I was talking about because he hadn’t heard anything. I wanted to yank out the IV, put my clothes back on and walk out! When I told him about the 11 calls back and forth over the past several weeks, he claimed to know nothing. I told him before scheduling I made sure everything was set up. He asked who I spoke to and he said she’s just the receptionist, I said that wasn’t my problem she is the one who said she went from tech to tech to confirm my needs would be met. It was a horrific procedure and there were not enough pain meds and they had the nerve to complain about me moving when I had no control of the spasms that made my body jerk. Just rude unprofessional people, I will never go back to that hospital. A few weeks ago I referred myself to an orthopedic surgeon for another injury to my knee. At this visit he wanted to focus on my hip and shoulder (I had frontal sternoclavicular joint instability) and that he would address my knee at another visit. It seemed that instead of giving me his opinion, he just went by the test results and wanted to inject my bursa with cortisone. I told him that I had a very high tolerance to lidocaine and then my primary care and several surgeons know this and asked him to contact them if need be. He ignored me and only used 1% lidocaine and the pain from this procedure was horrific. He seems oblivious to my lower quadrant/pelvic and groin pain and swelling from my pubic bone to my hip. He had me lay face down and started raising my leg which caused a terrible tearing sensation and I felt like I was perforated again. A few days later I tried to lift a bag from a standing position and as I turned to the right there was a horrific tearing pain again, more than what I felt after the initial injury. I began to have extreme nausea where I have to carry around a barf bag just in case, along with pain moving up towards my belly button. Then the stomach gurgling and pain with my left lower intestines when bodily waste would get near those nerves I would double over in pain. I stopped eating so stop that pain and have lost 10 pounds. My primary care wanted me to go to the pain clinic, to see if I qualified for a pain pump. I said no, not until there is a diagnosis and from my research those pumps or implants are dangerous and caused even more complications and worse yet I saw on TV that they are not even FDA approved. I wasn’t going to let anyone mess with my spine and I have issues with my body rejecting foreign materials from previous surgeries (not mesh). Then my primary care wanted to me to go see a Psychologist who helped manage pain. I refused until there was a diagnosis. I started doing more research and made another appointment with my PC and asked to be checked for a hernia. I didn’t even know women could get them, I only heard men speak of them. Two days later at my follow up, my PC walked in and said I am going to award you an Honorary Doctorate Degree, you have a hernia! Who knew that an inguinal hernia could cause all this referred pain? Now, I have done a lot of research on Inguinal Hernia surgeries and am scared S_i_t less. I have only had one successful, complication free surgery out of all my prior surgeries for other issues and all this mesh crap scares me. I can’t have staples, pins screws etc inserted without complications and infections, now I read about all the complications of hernia mesh. Through my research I hear that women should only go to a surgeon who specializes in female hernias since they are different than hernias in men. But in Oregon you can’t search by surgery, you can only search by category which leads you to a General Surgeon. I want a specialist in female hernia’s not someone who is just a general butcher. That is what my Mother had with her Double Mastectomy, he said “have you considered reconstruction surgery”, and then in that very sentence said “At your age you don’t need them”. WTF! I wanted to turn to him and say you are in your late 40’s you don’t need your penis anymore. I am so scared, but something needs to be done and I don’t want mesh and can’t have staples, wire or etc. I called the Pacific Northwest Hernia Center up north thinking OK that is all they do, they must have a specialist in female hernia’s and I was put off by the receptionist when I said I wanted to see a physician who specialized in female hernia’s and her response was all our doctors can do hernia surgery. I said so can any general surgeon, but I want someone who specializes in female hernias and can’t have mesh, wire, staples etc. So where does that leave me. I rather die, than to have another surgery go bad and have even more pain because a Dr didn’t listen to my concerns or prior surgical difficulties. I have no quality of life (I am not suicidal but if God picked my number I wouldn’t put up a fight), this is just surviving, this is not living.

    Any suggestions from Oregon?

  58. Carol reed says:

    I have read all of these sad and horrible medical problems that these people have written and the only consultation is that I am not alone. Almost all of the medical roadblocks either with the outcome of the surgeries I have experienced myself. As far as doctors go no they or the hospitals are not going to help you. What most people forget is that hospitals are corporations first and hospitals second. It is a shame and yes I am also on that merry go round to, go back and see your doctor. They will stick up for their feiiow peers first before they will you. Sad. I decided to go through all my medical records from doctors who have seen me in the seattle area and they stick together like glue more mesh repair, colostomy or illiostomy. I am going to try some of the foundations or doctors that have been mentioned. There should be litigations against the companies but big corp stands in the way and will fight this. Proceed is the mesh used in me and my doctor never told me he was going to use it. What ever happened to the right to information act and patient rights act. Guess they mean nothing. Guess a large legal firm that feels some compassion for people like us could step forward but won’t hold my breath. Proceed is made in France but its affiliate is with the Bayer company. It’s all about big bucks. My life is a living hell. Nerve damage in legs, groin, and into left foot. Give myself enemas everyday because of pelvic pressure and loss of nerve sensation. We may not know each other personally but we are all in the same situations. Can only hope some help from a legal firm or a knowledgeable doctor surgeon will step forward. Can only hope

    • Jane Akre says:

      Carol- I’m so sorry to hear about your complications. It sounds as though you do not have reliable medical help- that is first and foremost… many people can improve their health. Bruce Rosenberg may advise you brosenberg1@bellsouth.net 954-701-5094. He is mesh injured himself and consults with patients. He knows the best docs and has enough information to help direct you. Please contact him. I’m so sorry that it seems every doctor and his brother knows how to put mesh in, but when it comes to dealing with complications, they tend to scatter…. no one wants to deal with complications!! Few know how to deal with complications!!! Does it make sense to put in a medical device that we know has some percentage of complications- perhaps as high as 30 percent – and no one knows how to deal with it!? Not to me. Please become your own best advocate, gather your medical papers, know what insurance you have and contact Bruce… he can help. Thank you and please stay in touch,,, you are not alone there! ~ Jane a.

    • Sandy says:

      Carol, I am in the Seattle area like you. I am 1 week back from Dr Peterson, Las Vegas NV, no mesh hernia repair for bilateral inguinal hernias and 2 Spigelian hernias. Before I scheduled my hernia no mesh hernia repairs, I spoke with a fine, smart and charming general surgeon at a well respected medical center and I said I had researched the “no recourse or safe way back” from mesh usage and did not want mesh and was assured mesh was wonderful and prevented a “reoccurence” of a hernia and insurance would pay for it. All the doctors use mesh I was told! I said I didn’t want to take the chance with mesh; so he verbally told me he would use mesh on my abdominal hernias and I would be home the same day and up and about (I am caregiver to my disabled.family member and cannot be stuck in bed for a long period of time, etc.). He even described in his surgical referral form that he would put mesh in my abdominal hernias. I said I didn’t want mesh and the doctor was not willing or able to use no mesh or refer me to a doctor experienced and skilled in no mesh surgery.
      So, I am now off pain meds, can walk until I am tired, supervise my son’s day, and enjoy the spring, thanks to the honesty and openness of you all on this website, Bruce Rosenburg…I recommend calling him…and Dr. Peterson’s skill, compassion and medical ethics…and his understanding and knowledgeable staff and Valley View Surgery Center and their knowledgeable medical staff.
      I am saddened that the medical device corporations have knowingly (read the interdepartment memos and emails from the lawsuit recently settled against the corporation) worked hard to keep the doctors and medical centers from speaking up honestly about the reality of mesh horror…more saddened..and horrified…that the doctors and medical centers went along with the minimizing, denying and discounting of their patients reality.
      That being said, how do we all become activists against the current medical practice going on?

      • Jane Akre says:

        Sandy-

        Thank you. Would you mind sharing the links you refer to or tell us where the memos are? We want to read them..~ ja

  59. Pat says:

    If I would have know what I know now I would never had a umbilical hernia repair 4 years ago. And have been to the Mayo Clinic in Scottsdale trying to figure out what is wrong with me. In the last 4 years, I have had ever test done known for gastro problems and everything checks out ok. Now they want to do start a pain management injection, and they don’t know what is causing the pain. I started researching what could be the source and I am beginning to think my umbilical hernia repair is the source. When I mentioned I had a hernia repair a year before all this started they blew it off. This must be a touchy subject. And what really sucks…is my umbilical hernia wasn’t that bad. So now what?

  60. We need help , my wife had 5 hernia repairs using mesh and now is in constant pain and runs a fever constantly, recently she was hospitalized because of bleeding and infection and from constant fevers, they kept her for 5 days and ran test , put her on antibiotics and steriods and discharged her. She is still in constant pain, can anyone help us with phone numbers we can call to get assistance, my number is 931-698-9596, thanks

    • Lauren says:

      Hi James,
      Do you know whether the 5 meshes that your wife has had implanted were all Synthetic?
      I sell Hernia Care products outside of the US, I can’t help with referring you to anybody; but I can certainly make unbias product/material recommendations.
      Happy to help.
      Lauren

  61. I have a mesh put in 2008 or 2009 . I started having pains a year or so later in my stomach .it was a naval repair and I went through pains for years I went to my reg Dr . All the telling him about my stomach problems and I was told it was my nerves and I had Ibs witch made since from the pains and the runs all the time …so I took meds and more meds had scopes done in my stomach etc.. this went on until last year my mess deteriorated in my stomach little did I know but went in because I had a hernia again in sane place. Yep got a new one put in July of 2012 and my stomach stop hurtingand the runs quite. I wish I would of known this years before. So it’s been over a year again now my back is hurting all the time and legs tingle and around body off and on. Muscles seem to ache legs and arms, numbness , plus now I’m having pains sometimes around stomach but nothing like before as far as stomach . But now my back ,legs and feeling weird . Has anyone else had any of this this stuff going on. Ichad a Kat scan done plus heart test and blood work .. please help what test should I get done?

    • Jane Akre says:

      Herbert- I think a great resource for you is Bruce Rosenberg at 954-701-5094 brosenberg1@bellsouth.net He is mesh injured and has made it his business to know about medical procedures. He will be very helpful. You need to gather all of your medical records.. thank you. Please stay in touch with your next step. ~j. akre

  62. Robert Larsen says:

    I have been suffering pain over a number of years now from ruptured mesh operation, last set of x-rays revealed bits and pcs. of mesh particles scattered around and throughout my abdominal wall . I am from Canada and the operation was performed at the Shuldice Clinic in Toronto, Ontario, Canada
    Can someone advise me where I can follow up with possible legal action, please provide contacts in the Toronto area where I can get help !

  63. Pmann says:

    Any advice would be appreciated!! I am a 45 yr old male. I had a para esophageal hernia surgery at age 27. That failed 4 months later and then had another surgery to fix it which they did by using mesh to take the place of my diaphragm. This lasted 10 yrs which is when it popped again and another surgery. Fast forward to 2013. I had acid reflux again and knew something was wrong. I went in for a 3-4 hr surgery but it ended up being 14 hrs.

    Question: The surgeon found out that a portion of mesh peeled off and migrated up to my esophagus strangling it. He was only able to remove some of it. He also found a small ball of mesh in my small intestines. My question is does anyone think this could be a lawsuit bc the mesh went to places that it was not intended to be and caused havoc? Any feedback would be appreciated.
    Thx

  64. Milica says:

    Anyone knows good hernia repair surgeons in Grand Rapids, Michigan area???

  65. Hi..I am a 49 year old female…and had my first laporascopic gall bladder removal in the early 90’s…Followed by a ventrical hernia soon after, which the same surgeon implanted the first mesh. One surgeon told me I was the first patient they performed the lap gall bladder removal surgery on….the other surgeon said no! In any event, these surgeons informed me after the fact. . Soon after….I had another hernia…which the same surgeon REFUSED TO REPAIR AGAIN. I had a total of 4-5 hernia repairs….AND….4-5 bowel obstructions. I had 3 mesh put in me…unfortunately I do NOT know which kind of mesh was placed inside. One mesh had to be removed…during a bowel obstruction, cause my intestines wrapped around my appendix…but that surgeon said he had to remove a mesh which he found in my BEHIND …BECAUSE HE SAID IT HAD MOVED! I AM VERY SICK AT THIS POINT. I have every ailment in the book…and have been nauseous 24/7 SINCE THE VERY FIRST HERNIA REPAIR. I have been living off REGLAN for nauseau…and probiotics. I am in pain all the time. I had to leave my city job in 2000….due to all these complications. I am now being told….I need to have these meshes removed. I contracted MRSA AS WELL SOMEWHERE ALONG THE LINE. I have been on heavy duty antibiotics….on and off for years. Over the last year, the surgeons told me ….they cannot give me any more antibiotics…cause now they feel the antibiotics do more harm than good. On Friday, Feb. 7th. 2014….I spent nearly 150. dollars, and all day taking buses, and car service, from New Jersey to New York’s Columbian Presbyterian Hospital on York Avenue….to see specialists in this field. I am now scheduled for ANOTHER SURGERY 7 YRS LATER….TO HAVE THE MESHES REMOVED. I am deathly afraid of the results….In addition to the fact that they cannot put new mesh inside….cause now they say….that is NOT the way to go….soooo we’re back to square one….where I am possibly going to deal with hernias and bowel obstructions again. After this surgery heals…the surgeon said….I will need ABDOMINAL WALL RECONSTRUCTION. I AM A SINGLE PARENT WITH A 15 YR OLD CHILD…THAT HAS NO ONE TO LOOK AFTER HIM OTHER THAN MY VERY ILL SISTER :(…..I AM IN LIMBO….as we all know….If any suggestions, or advice….plz contact me…at ursiegirl2007@aol.com……………..Thanks…..This is my story

    • Jane Akre says:

      Ursula- Please reach out to Bruce Rosenberg immediately… too many doctors are involved in your case in my opinion and ultimately no one has to take responsibility. You need your medical records… Bruce is very helpful…954-701-5094… he is hernia mesh injured and is well versed in the doctors around who might be best able to help… and he knows what questions to ask. Please reach out to him right away and thank you!~ ja

  66. Sharon McBride says:

    Jane, I had no idea this type of help existed. At time of my vag. Mesh removal, also had one my inguinal hernia meshes removed. I say meshes because the surgeon used a hernia a plug pus an additional piece of mesh to wrap the inguinal canal. (for additional support)The pain never let up since the surgery, unable to bend excruciating. At the time of my consult for my vag. Mesh removal, I begged the explanting surgeon to remove the hernia mesh and repair the hernia. I only learned of the additional mesh used to wrap the inguinal canal after explant. The mass of mesh removed was like a hardened piece of plastic. The hernia has since recurred, worse than before. Fear and scheduled reconstructive surgery for end of April are preventing me from yet another repair.
    Any suggestions for me Jane?
    Thank you, and best

    • Jane Akre says:

      Sharon- I’d refer you to Bruce Rosenberg on that ongoing hernia situation. he is not a doc but is hernia-mesh injured and a great researcher. Sounds as if your tissue is weak and docs may suggest more mesh… you may want to explore sutures only but I’m not a doc and do not give advice. brosenberg1@bellsouth.net sometimes hard to get a hold of. 954-701-5094. Anyone who knows how to write grants,, Bruce could use one for the good work he is doing!!! Thank you.

  67. Phoebe says:

    I am going through a similar thing. My doctor went in laparoscopically and before going in, he never bothered to see if it had worsened or anything. Like going in blind to anything else that may have occurred in the months since I had my first ultrasound. He performed the surgery and never even spoke to me about how serious my surgery turned out to be. I have one mesh near my belly button, and one near my pelvic area. And finally one BIG mesh over all that, which covers a majority of my stomach now. The lower part of the mesh has rolled up into my muscles and is extremely painful. How can I go about having this repaired? My surgeon was less than accommodating and did not seem to care much about taking the time to educate me on my surgery. More or less patched me and sent me away. Needless to say that was the worst moment of my life. Walking away from the hospital hours after the surgery was almost impossible. But again no one told me it was so severe. I had had a hernia repaired before and thought this was no different. I was so wrong, it was and has been an absolute nightmare. After a few months I realized something was wrong, and only then did my doctor tell me that I was supposed take it EXTREMELY easy for 8-12 months!!!!! What!!!!! Why tell me months later!?!!!! That could’ve saved me a ton of grief. I am a mother of three and this is my worst nightmare. I can’t be a mom. I can’t even live normally now because of this. Any advice? What do I do?!? Where do I go from here? Please help.

    • Jane Akre says:

      Phoebe- That sounds ridiculous… brosenberg1@bellsouth.net is a mesh-injured man and president of the Meshoma Foundtion…. he is very knowledgeable about hernia mesh injuries and is connected to the top docs around. Please contact him 954-701-5094… You should not suffer so…~ ja

  68. Ellen Carr says:

    On 3/24/14, I’m having mesh removed from a hernia operation in 2002. The hernia has returned. The main reason for the mesh removal is I have an ulcer on my stomach for the last seven years that will not heal. I had MERSA around 7 years ago. I’ve been passed around from wound doctor to wound doctor and nothing has worked. I’ve been on antibiotics so many times for infections of the ulcer. The last wound doctor sent me to a surgeon because he thinks the mesh is the reason the ulcer will not heal. The surgeon is going to remove the mesh. He says there might be problems if any of my organs are stuck to the mesh. The surgeon can’t tell me if the hernia will be repaired. It depends on how the mesh removal goes. I don’t know what type of mesh was used. I’m going to find out. I’m getting nervous about this operation. I remember when I had the hernia repaired the 1st time the pain was horrible. I’m almost 66. I was 53 and in much better health at the time of the 1st operation. I’ve been reading about the horrors of mesh. I sure hope I made the right decision to have the mesh removed. After 7 years of having an open ulcer I can’t take the infections anymore. Plus the expense of buying medical tape and special bandages is costly. I feel “I’m between a rock and a hard place.”

    • Jane Akre says:

      Ellen- Please contact Bruce Rosenberg brosenberg1@bellsouth.net 954-701-5094. He is hernia mesh injured and might direct you to a preferred removal surgeon. See his Patient Profile. Likely when it is removed they could put more mesh back in which may not be a good choice for you… please contact him. Thank you!

  69. Barbara Dykes says:

    Jane you are truly an angel. It would be so difficult for us to stay informed about the things going on in this “Mesh Mess”.I had Prolift done in 2008, here it is 6 YEARS Later and tho it has been removed, it has left me with frequent UTIs, off and on cramping.Not to mention the loss of relations with my beloved hubby.Now my youngest son had hernia mesh due to a lifetime of baseball. So far, no symtoms for him except a “tightness” when he is over active. He coaches my grandsons team and would not show pain regardless..I read that “spoliation and sanctions are being “reconsidered” in an order written yesterday. As a former career Hospice RN whose job was to seek comfort for my patients, I just cant fathom J&J’s disregard for safety. When I came upon the site “JohnsontoxinJohnson, it brought me to tears. It really IS all about the money.reading this site keeps me from feeling so isolated. I have become a recluse and have thought my family would be better off without me.Anyway, just wanted to thank you again for your hard work. You are one of a kind.

  70. Charlie says:

    I had a umbilical hernia repaired with mesh in 2011 I have been in pain ever since went to ER they say I have another umbilical hernia. I took the ct scan and report back to the surgeon he contacted hospital to get copy of the report of my first surgery he told me they can’t find it. He then suggested he do a exploratory surgery I at this time refuse so he sent me to pain management which does no good I have my first surgery report doesn’t say what type of mesh. It’s 2014 and I still have a lot of pain above my belly button which radiates towards my back my insides feel raw the morning are really bad and when I have bowel movements it feels like something is pulling inside. What can I do ?

  71. Genie J. says:

    Quick question. I had am upper belly button hernia repaired in 2003. With a mesh. My stomach now sticks out in that area and is like a hard ball above my navel. What could that mean?

    • Jane Akre says:

      Sounds like a meshoma but I am not a doctor. Bruce Rosenberg is very knowledgeable and hernia mesh injured. He has the Meshoma Foundation 954-701-5094. Please give him a call, be patient, he’s sometimes hard to reach…

  72. Pmann says:

    Help… My story is that I had Gore text mesh used to fix a hiatal hernia. Over the next few years we found out that some of mesh tore off and migrated up to wrap around my esophagus strangling me. I had a surgery to repair this and my surgeon also found a ball of mesh in my small intestines. Is this sound like normal and to be expected or grounds for a law suit? If any has info I would appreciate it.

  73. Jackie says:

    I had a ventral hernia repairvwith Parietex mesh, four years ago. It is still uncomfortable and painful..especially with bowel movements. I have been assured, by the surgeon, that nothing is wrong.
    It hurts to exercise. Go to the bathroom and I continue to run a temp if 99.3-99.7, for the past year! And my abdomen is tener in routine exam. Just doesn’t seem normal to me!
    Waiting on CT Scan now and then I have been instructed to see a pain management doctor.
    Just not sure about any of this!
    HELP?!?!?!

  74. Twanda Taylor says:

    I had a hysterectomy in June of 2012 in the process they had to remove a large hernia so the doctor could get to what he had to take out.Well they had to use surgical mesh to hold my stomach together I didn’t even know they had put it in until about 3 weeks later. I was released from the hospital 2weeks after surgery because I caught phenomonia I was in an extreme amount of pain so I went back to the E R. they did x-rays and saw that I had clamps and mesh .The mesh had formed something called a aeronautical which is a large pocket of fluid .I have to have it drained every 2 to 3 months since then .I went to see the surgeon today and he’s threaten me saying that he won’t drain it nomore after this time forcing me to have another surgery to have it removed.Yet I explained to him that the other doctor that did my hysterectomy said that if some one had to go back in that it would kill me.That I would have to find another doctor when he know darn well another doctor is not gonna touch this mess he has made.I don’t know what to do. And on top of that every time I ask questions he has no answers just don’t know jack.

  75. Twanda Taylor says:

    If anybody has any solutions I’m open to all I don’t know what else to do. My email address is twandataylor@att.net please feel free to contact me.

  76. Kyle says:

    I had a hernia surgery almost three years ago. Located on my right side, lower intestines. I had a 6×6 piece of mesh to repair the wall. The doctor told me that if the pain near the mesh didn’t go away within the next 6 to 12 months to see a doctor for a check up. The pain went away within the first few months, but after a year I’ve had this sharp pain come and go when I’m either resting which would come and go with a light needle like pain or when I take a deep breath in and at it’s peak right before I exhale, there’s a very sharp pain under my lungs.
    I’ve also noticed that after the surgery when the stitches were gone I would look at my stomach and it seemed like the side that had no mesh, looks pushed out(swollen), like the mesh has pushed everything over as if there isn’t enough room. My lower stomach is always tense and most of the light needle like pain is internal and on the side that has no mesh.
    I don’t know what kind or name of surgery it was. I’m sure I can find out, but with no insurance it’s hard to do anything about it, or even to get answers.
    I’m just a little concerned and curious if I should be worried about any of this.
    Oh. I have heart burn, acid reflux, occasionally vomiting fluids, hot/cold sweats and I never have an appetite.

    • Jane Akre says:

      Kyle- Please give Bruce Rosenberg a call.. The Meshoma Foundation does a lot of research on hernia issues… he would be very helpful to you I believe… thank you.~ ja

  77. dolores alarcon says:

    I had a hirnia repair in 2000 and i been having lot’s
    of pain but can get any one to help me.They tell me that it has to be a virginal in plant please if any one can help me so they can take it out let me know thank you

    • Jane Akre says:

      Hi Dolores- You will need to gather your medical papers… Call Bruce Rosenberg who is hernia mesh injured for some education on your options… 954-701-5094.

  78. alison lennox says:

    hi i had a hernia opp in 2010 i am now left with part of my bowel and stomach hanging out which is now a stoma and i have to wear wound bags as the toilet comes out an into it i have been told that this cant be fixed because it would cause worse problems than i already have as i still have mesh in my stomach i am still in a lot of pain i went to a lawyer to see if i could take out a law suit and the layer has came back and told me that he had writen to a top consultant and he has told the lawyer that in his opinion there is no neglegence involved can you give me your opinion on this case thank you very much mrs alison lennox

    • Jane Akre says:

      Please contact Bruce Rosenberg at 954-701-5094… He is hernia mesh injured and does research. He is not affiliated with any doctor or lawyer but is a wealth of information…….let us know how you do. You will need your medical records including nurses notes and surgical notes… stay well- ja

  79. D Hilton says:

    Hello Everyone!
    I’m glad to have found this source of information. My case is very complicated & it only started to really dawn on me yesterday that the mesh used to repair my incisional umbilical hernia back in 2004 …could be the MAIN source of my lower back pain & partly why I am now I chronic pain patient.

    I do have other health issues which cause pain in my abdomen — I have Polycystic Liver Disease & at last check, which was about 4yrs ago — I had over 30 liver cysts. These are in a range of sizes, and locations on the lobes. I don’t have any ideal what the total volume is. I have already had 2 failed surgical drainings on 2 grapefruit sized cysts – which I ended up having unroofed. This is where I had the incision from. The liver condition is hereditary on my Father’s side.

    I also have quite a few problems with my spine. Arthritis, bone spurs in both of my shoulders, Spinal Spondylosis, Spinal Stenosis, Slipped Disc S1 S2, Herniated Discs L4 L5 S1 S2 also in the Cervical, Sciatic pain that runs down the right leg from the back of the buttock. I also have sciatic pain that has been progressing in my arms ..alternating down both arms, causing numbness down to the fingertips at times. Sometimes I have quick involuntary hand motions. Fibromyalgia, Degenerative Disc Disease.

    At my most recent Lumbar CT this year, the Radiologist made an emergency phone call to me early the next morning after my scan — advising me that it appeared that I had a ruptured appendix. Well, I did have a couple of days of very bad lower abdominal pain …but it had subsided. I have pain in my back, my sides & my abdomen area all day long–what’s new? I had also been running a fever. I haven’t gone by to pick up my copy of the report & DVD to keep for my records, but definitely plan on doing so in the next day or two!

    I guess what made me start thinking it could be the mesh, is because I can’t lean over at the kitchen sink and wash dishes for 5 minutes without being in totally pain. And when I reach down, that’s right where the bend is. Same goes for cooking a meal for my kids @cooktop. Then I have to go prop myself up on the couch with this whole pillow system I’ve devised. And I’m a Pain Patient (very under medicated — our “system” has been ruined by abusers & drug users and now normal patients that need help have a hard time getting the pain meds they so desperately need to improve their quality of life!) just imagine if I wasn’t on medication at all? But the quality of my life has continued to go downhill.

    On a previous Doctor visit, I asked the Doctor (actually the PA — I only get to see my Doctor if I make special arrangements, but yet it costs the same! And I’m cash pay?) to write me out an RX for an electric adjustable bed for my Tax Records. It has probably been a good 8yrs that I have been sleeping on the couch :( But now …I’m sad & embarrassed to say, in the last 4yrs a good portion of my day is spent on that couch. And if I do the slightest thing to put me in pain, it’s back on the couch.

    I’m calling the surgeon who did my hernia repair today to request a copy of my records, and find out off hand what kind of mesh was used. I am also starting the process of getting insurance. Because of my pre-existing conditions, I did have to wait until 2014. My ex-husband actually dumped me off our policy while we were still married, before we had even gone to mediation …to save himself some $$ I don’t even know if that is legal to do?

    I saw recalls on Kugel Composix & Ethicon. Are there other names on recalls of incisional mesh?
    On that CT scan — is that the best way to diagnose if mesh is still intact, or if it has adhered itself to other organs?

    Is there a limit on a lawsuit? It hardly seems fair …considering the patient has limited medical knowledge in most cases, and in some cases ..such as mine, they have other medical conditions that might have masked some of symptoms.

    Any help is greatly appreciated. Thx

    DH

    • Jane Akre says:

      Hi D- Please contact Bruce Rosenberg of the Meshoma Foundation. He is very knowledgeable about hernia mesh complications since he suffers from
      them himself. 954-701-5094.. brosenberg1@bellsouth.net I hope that helps, I know it will….

  80. T Hill says:

    My heart breaks for all of you. Sadly I know the pain of hernia mesh repair. Unfortunately there are no medical answers for me. I am inoperable. In 1988 following a MVA that nearly took my life I was diagnosed with a Lumbar Hernia, the rarest type in the world. There have been only 300 known lumbar hernias in the world. A large mesh was implanted horizontally from mid- abdomen to several inches from my spine, vertically from my ribs to my lower hip. I had pain from the beginning that has increased over the years. Four years ago after tugging on a object the pain became so extreme I couldn’t tolerate it. It was determined by several high profile surgeons that the mesh has failed, crumbled, folded, ripped and torn and surrounded by adhesions. It’s become “part” of me with it’s own nerve and blood supply. I am inoperable. The only certainty is that I will one day, sooner rather than later, succumb to a bowel obstruction, which will also be inoperable and I will die. I hope each and everyone of you will have a better outcome that I face. You are your own best advocate. If possible take action. Don’t give up. Bless you all.

  81. Rick whitehurst says:

    Has anyone else had a bladder perforation or bladder damage from this mesh? I was doing some heavy lifting one day and the next i was peeing blood. i can feel some discomfort where the mesh was placed in 2006. Docs are doing cts and bladder checks now. i inquired about the possibility of mesh problem and they got real quiet

    Thanks. Any info appreciated.

    • Jane Akre says:

      Rick- You may already be in contact with Bruce Rosenberg of The Meshoma Foundation 954-701-5094. He is hernia mesh injured and in touch with the lading medical professionals in the area. Very knowledgeable….

  82. Mechelle Haq says:

    With all I am reading I am now afraid to have this surgery…I have to have a ventral hernia surgery and I have been studing up on it since I was so messed up with the G. bladder surgery. I hurt every day and my stomach burns all the time.. After all the stories I am reading what can they use that is not going to hurt me…?

    • Jane Akre says:

      Mechelle… you may want to check with a non mesh hernia repair…. That is done by Kevin Petersen in Las Vegas and the Shouldice Clinic in Toronto among other places. Bruce Rosenberg is a hernia mesh injured man who does the research.. please check with him before you go further. 954-701-5094.. Please be patient in reaching him… it takes a few trys. Petersen is here…
      http://www.noinsurancesurgery.com/about-us.htm

  83. I had a very large ventral hernia removed in October 2013. In December, 2013, I had a drain placed related to abcesses. In January, 2014, I developed MRSA. I had surgery and my surgical site was left opened to heal from inside out. I was on Vancomycin IV for 8 weeks. Since May 2014, I have developed a very strong burning sensation. I have had my wound cultured 3 times since May and all have come back positive for endobacteral species with heavy growth. I have also developed a chronic fever since then. Surgery has been scheduled for August 19 to remove mesh. I am very tender and warm to touch at the site. Hope I am doing the right thing. Have had colon resection twice related to cancer. My Dr says I have nothing left in abdomen and good possibility my bowels have already attached to mesh. I may end up with colostomy. Praying this does not happen. I am very stressed out over this upcoming surgery.

    • Jane Akre says:

      Teresa– Please contact my colleague Bruce Rosenberg, a hernia mesh injured guy who has done more research on hernia mesh injuries than anyone I know… He understands symptoms, and knows the best people to address them without mesh… He is not selling anything. He has the Meshoma Foundation. 954-701 -5094. Takes a few trys to reach him sometimes but it is worth it. Please contact him… he is a wealth of information! ~ ja

  84. sylvia says:

    I had a hernia operation in 2008 where they used a BARD prefix Plug LOT: LOTHURJ0030.
    I have had no problems at all but am worried that something might show up soon as the mesh maybe shrinks.
    Does anyone know if this particular mesh was recalled or known to give problems?

    • Jane Akre says:

      Sylvia- Bruce Rosenberg, is hernia mesh injured and very knowledegable…. 954-701-5094…. he can direct you.

      • sylvia says:

        Actually, I am having one problem which until now I did not relate to the mesh – diarrhea. Can that be caused by the mesh?

  85. Rick R says:

    I am a single 57 year old male, about 12 years ago i noticed my stomach was getting noticeably larger and larger, then years passed and my belly was an odd shaped. I went to my Doctor for two years, he wouldn’t even touch or look at my stomach, he insisted I was getting fat, and suggested stomach stapling or whatever they call it. Slowly it became more of an issue as the years went by. . Finally I pleaded with him to get me a scan, which he did, then he never mentioned what the results were. Two years later he said the scan showed I had a hernia, (i was blown away, (this is the first I had heard).
    Now the surgeons and doctors say, “You’re high risk, your blood pressure is high and remains high. You are obese, you have sleep apnea, your odds are not good surviving a surgery” . My stomach is now bigger than a basket ball and hanging down to almost my knees. My life is over, I cannot walk far or properly….I have missed so much, my daughters wedding, my Mom’s funeral , graduation… I just stay inside.. I have no idea what to do. I was adopted, so I haven’t any family per say. The Doctors have my on 30 pills per day, that’s my only medical help, I take pills and more pills. I am really feeling depressed and at wits end. I was always active and a handsome man, now… not so much.

    • Jane Akre says:

      Rick we are not willing to give up on you. Call Bruce Rosenberg 954-701-5094 hernia mesh injured but very good at intake and accessing your situation. Give him a few calls because he gets very busy with all the hernia mesh injured. There are non mesh repairs of course…..

  86. Dan says:

    I had a surgery operation in the early 1990’s and again just less than 3 years ago. I had a wide mesh put in during the last surgery and although recovery was longer than expected (about 3-4 weeks). the Doctor said this will resolve the issue and I will not need to worry about another hernia for decades. Everything seemed fine…until last week. I woke up with the all-too familiar pain and recognizable bulge from my abdomen. This time it looked a couple of inches higher and wider. This was after no stress to my muscles at all. So here are my questions:

    1. How do I know what kind of mesh was used in my last surgery?
    2. How do I know if it was a mesh failure?
    3. Does it matter if I go back to the same doctor in regards to the mesh? (He is highly regarded, recommended, and head of the department…which is why I went to him to begin with)
    4. What should I do prior to the next surgery?

    • Jane Akre says:

      Hi Dan- You are right to question and not just be a compliant patient… You own your medical records so do not hesitate to collect them… everything operative notes, nurses notes, what is sent to insurance… they all belong to you! Second- contact Bruce Rosenberg 954-701-5094 to get a phone assessment of what’s happening. He is hernia mesh injured and the most knowledgable person I know on the subject. ~ ja

  87. Barbara says:

    Good morning, My husband had a hernia repair surgery on Monday morning 2/18/14. He came home the same afternoon. He has been in some pain and is moving real slow. His bowels have not moved now for 4 days. What can we do to get them to move?
    Any help is appricated.
    Thank you,

  88. Melinda says:

    Had hernia in right groin doctor told me simple two hour surgery outpatient didn’t wake up until the next day the pain is still so unbearable it has taken over my life and it’s been five years since the mesh was put in it has-the doctor that did my surgery called my family doctor and told him I needed meds for depression and this was because I told the doctor I could never make love to my husband again I’m single now thanks to the bard mesh and not sure what my next move should be can’t work anymore either hurts to drive I feel like my life is over GOD helps us all

  89. Lynn Screws says:

    I had mesh put in, in 2012 at MCG in Augusta Ga. I live in pain everyday. I dont have ins. so they will not see me anymore. The doctor I do see just writes pain meds and says that is all I can do for you. I am tired of suffering. Someone needs to pay for what is going on with me. HELP

Leave a Comment

We hope you find this a helpful resource. National News Editor, Jane Akre, began MDND with the hope of providing the latest news, information and perspective from the regulatory, industry and patient point of view, something that goes under-reported in much of the coverage of medical devices. The public is just now becoming aware that many devices do not undergo the same scrutiny as prescription drugs and are instead grandfathered in under an FDA loophole that has gone largely unchanged since the 1970s. As a result, patients become the post-market clinical trial subjects, and many suffer devastating and permanent injuries.