Suffering in Silence: Mary Blanks Not Silent Anymore About Transvaginal Mesh Sling

Apr 22nd, 2012 | By | Category: Patient Profiles

Mary Blanks

“I’m a pretty smart cookie. I’ve tested genius, but trust me I’m at half capacity.”

So says 58-year-old Mary Blanks of Erie, Pennsylvania. The Methodist pastor was named Minority Business Woman of the Year for Northwestern Pennsylvania in 1990 as the entrepreneur behind her chain of beauty supply stores, Blanks Beauty & Barber Supplies and for her role as pastor at the church she and her husband, Joe, built.

She closed those stores in 2004, the same year she had her surgery.

Mary says her health problems began several years ago when her bladder totally fell through her vagina, something called pelvic organ prolapse (POP), a common occurrence following a hysterectomy. Her doctor sent her to a urogynecologist who said Blanks would have to have a sling implanted to hold up her bladder as well as a total rebuild of her vagina which was compromised during the hysterectomy.

Mary is no stranger to research. Online she found women saying they were in pain from the corrective surgery.

‘Don’t worry,’ said her doctor, ‘what’s on the Internet is always the worst.’

“That made sense to me,” says Blanks. Assured by her doctor, in October 2004 she had surgery in a local hospital in Erie to rebuild her vagina and to have a sling implanted to hold up her descending bladder and urethra. The doctor used layers of porcine (pig) graft mesh interspersed with layers of her own skin held in place with zero vicryl, a type of synthetic suture in a transvaginal surgery, through the vagina.

Blanks later found from her medical records that she had been implanted with the Monarc Subfascial Hammock, made by medical device maker, American Medical Systems, which had been placed in her  through vaginal incisions using a Monarc stainless steel needle to thread the Prolene mesh graft under the urethra.  Prolene is the commercial name for a type of petroleum-based plastic called polypropylene.

Blanks now says it was odd that she was treated for incontinence since she had not complained of that condition to her doctor, even though it  appeared in her medical records that she had.

After spending less than one week in the hospital Mary was sent home. The first thing she noticed was she couldn’t walk. “About seven or eight weeks later I was still so sick and in so much pain,” she tells MDND.

“I wasn’t urinating, I felt like I wasn’t emptying. I felt like I was still full and I was so tired all the time,” says Mary today. And the pain continued.

When she returned to her urogynecologist and complained she was tired and in so much pain she couldn’t walk, she was given Elmiron to relieve bladder pain to be taken three times a day for the rest of her life. Her general practitioner gave her B6 and B12 shots for the fatigue.

Mary Blanks, Woman of the Year 1990

Then there was a strange turn of event.

In October 2006 after her third time visiting the urogynecologist whom she describes as “the most loving, sweetest, good-looking doctor you’d ever want to meet,” the doctor committed suicide, leaving behind a practice of Ob-Gyn specialists and a family.

Mary’s records disappeared. It wouldn’t be until March of 2012 that she finally located her medical records which had been placed in storage.

Blanks returned to her family doctor still in pain – pain in her legs, her back, her stomach and throwing up.  “It felt like somebody had kicked me between my legs,” she says. But Blanks says he also learned to adjust, and even began another business, J & M Beauty Services, as she went back and forth to the doctors.

As her family doctor was retiring, she now went to his daughter.  The young woman commented on how good Mary looked.

“Every time,” Blanks says. “I’m in a business suit, that’s how I go to doctors.”

But Mary sensed a suspicion. “She kind of treated me like I was seeking drugs and I knew it but what could I do? I’m in her hands now. I said, ‘Look, please help me.’ Toward the end I was just peeing on myself. She told me it was part of growing old. I told her I couldn’t have sex. She said that comes with old age. I was 55-years-old! I wasn’t asking her for drugs, I was asking her to help me.”

Succession of Doctors

As often happens to women implanted with synthetic mesh for incontinence or prolapse and looking for answers – Mary Blanks began asking questions to a succession of doctors.

Her general practitioner (GP) told her to wear a pad and take the antibiotic, Bactrum every day. A trip to the Cleveland Clinic and she received a PAP smear and even though she complained about pelvic pain, Blanks said she never had a pelvic exam. Instead she was sent to a gastrointestinal doctor who swore she had suffered acid reflux disease for 20 years and put her on Nexium. She had a colonoscopy. She was prescribed Cymbalta to treat anxiety. Blanks went to the emergency room for pain and Blanks said every time she pointed to her right side and her pelvis and lower back and legs but never received a pelvic exam.

“I think this metal thing is coming loose inside of me,” Blanks told doctors believing she had been implanted with a metal medical device.

“It was all tied together. They were pretty much saying you must be crazy in so many words. Every time they checked me above and gave me pain meds and sent me home and said nothing was wrong with me. Pretty soon I believed I was crazy. They were blaming everything on fibromyalgia but that is different, it’s a whole other pain. I’ve learned to deal with that,” she says.

Mary & Joe Blanks

Blanks says she asked her GP who prescribed Cymbalta, “I’m in unbearable pain and I can handle pain, trust me. I’m one of those people who is okay with pain. You deal with it. I have a high tolerance for pain. I came out of her office I was in so much pain, begging her for something. My daughter went in and begged her to help me. Nothing. She said I’d be alright if I just took the Cymbalta and gave it a few days.”

Searching for Answers

Mary started connecting the dots. She asked for her medical records to see what the original doctor had done to her. Blanks is not the picture of health. She had suffered a heart attack. She had a metal knee implanted two years ago. She’s treated for fibromyalgia. But nowhere in the records did it clearly say she had been implanted with transvaginal synthetic surgical mesh.

By October 2011, Mary endured another trip to the ER then the hospital. This time she was throwing up and couldn’t stop. Her husband said she couldn’t keep it up. There she received a plethora of diagnosis – Blanks was told she had a growth on her ovary and it looked like cancer. Then her problem was diagnosed as a blood clot on her ovary. Then they said the growth was on her liver, but she needn’t worry.  Blanks says she kept asking for a pelvic check since that’s where her pain was emanating from but doctors kept looking above the waist.

Blanks was assigned a hospitalist, a doctor who works inside the hospital. She warns, “You are not going to believe this.”

“I had been talking to the nurses. I’m a nice person and I like to talk to people. I has just got done saying I just didn’t understand why I can’t get someone to help me.  Now you got to listen to me you are not going to believe me. I have a witness.

“I’m bent over in pain, I don’t know what they had me on and I’m still in pain. He said, ‘Look before we get started let me get you straight right now.’ I said excuse me? He said, ‘Let me get you straight right now. You said nobody would help you. I’ve given you pain medicine,’“ Blanks says she was told by the hospitalist.

“I said, ‘Sir, I’m not looking for pain medicine, I’m looking for some type of diagnosis to find out what’s wrong with me.’  I now know he was trying to bully me. I was confused. You know I’ve been nice to everybody.

“ ‘I don’t care how much pain you’re in,’ she says he said. By now I’m crying. ‘I don’t know what you’re crying about. I lift weights. You don’t mess with me, I’m a bad motherf*……’

“I looked at my husband and he was waiting for me to verbally tear him to shreds but I was too sick. I couldn’t believe it.

“My 6-foot 4-inch linebacker son is sitting in the corner and I’ve  got my hand up trying to keep him away, afraid my son is about to throw this man through the window.”

After the abusive doctor left, the nurses came in to find out what happened.

“Then this man comes back in my room, Blanks says. He said, ‘Look don’t you worry about a thing. We’re going to send you home and keep you comfortable. You’re not going to feel a thing.’ ”

“I took that to mean he was sending me home to die. I’ve been at the death bed of too many people. I know exactly what that meant – drug me up so I can die! At some point there is no more you can do. That’s what he was telling me, there is no more we can do. I said ‘why are you saying this,’ and he walked out of my room.”

He sent her home with the antibiotic Bactrum and Endocet, an opioid pain reliever made up of acetaminophen and oxycodone. Blanks says she stopped taking the drug after it completely knocked her out.

A followup with her family doctor and Blanks was sent home with a prescription for 120 mg of hydrocodone with ten refills. “They don’t give out drugs like that, trust me.”

Mary's son

A Miracle Doctor

Before she went home, Mary Blanks experienced a visit from someone that does not appear on her medical records. Blanks says her witness is her husband who was also in the room. A man walked in her room and said he had something to tell her.

Blanks continues, “He said, Mary, I’m so sorry, what happened to you. I wouldn’t want it to happen to my mother, daughter, or my worst enemy. He said ‘you have transvaginal mesh inside of you and you’ve had it a long time going into your system.’ She continues, ‘It’s not that they don’t want to help you, we don’t know how to help you.’ He said, ‘My office didn’t use that stuff but a lot of docs use it like it’s the best thing since bubble gum. Mary, you’re basically screwed. Even if you find it, they’re not going to take you as a patient. He said if they take you as a patient, even after many surgeries, you’re still not going to be out of pain.”

Mary Blanks and her husband didn’t know what to say. She had finally found someone willing to look at test results and tell her the truth. She never found out the man’s name.

“He put me into action. He told me I had mesh inside of me and nobody can help me. I’ve got to find somebody to help me.”

Something else she found out later. Blanks says the hospital never mentioned her high white blood count which showed she was going to die. She either had lupus, cancer, or a severe infection going through my body. They cancelled out lupus and cancer.

“He knew I was dying. I appreciate and thank God for that. If he hadn’t told me that I never would have known what to do. He saved my life.”

Mad Woman with a Plan

She scanned the Internet. Blanks returned to her family doctor and asked why she hadn’t heard of the two warnings from the Food and Drug Administration, one in October of 2008 and another in July 2011 warning of the risks of synthetic transvaginal mesh including extrusion through the vaginal wall or organs, chronic pain, infections, scarring, shrinkage, neuromuscular problems, a return of incontinence and prolapse and multiple surgeries, among other complications, which the FDA said in 2011 were “not rare.

Her family doctor hadn’t heard about it.

“I said I don’t believe you. How can the FDA miss you?” Blanks barked.

Another search found a doctor at a major Midwestern medical clinic who said he could help. He told her he knew how to remove mesh; he invented the procedure and he even teaches how to remove it.

“You know, I think I got my man,” said Blanks.

She was told by the doctor he could alleviate her pain by snipping a section out because the hammock was too tight. The doctor said he couldn’t get rid of all of the pain but he’d get rid of some of it.

Relief?

On March 14, 2012, Mary Blanks underwent surgery again. On the 17th of March, she says she almost died.

“Now I know what he did when he cut me, he loosened those particles again, so it went through my body like it was introduced again. My body had learned how to fight partially, now I’m fighting like hell all over again. So I’m throwing, up my chest is hurting, my stomach. I can’t explain, nothing would move. My husband had to carry me into the hotel room.”

Blanks says any time she moved she would get deathly sick again. Now she was unable to make the calls on her beauty supply business. She says she kept getting weaker, couldn’t walk and couldn’t breathe. When she went back to the hospital her oxygen reading was 61 and in the red. The nurse asked her if she wanted oxygen.

Following a pelvic exam, the doctor told her she had vaginitis. Maybe she should bathe more often.

“Now I’m seething. I’m praying, Lord, please help me.”

“He said, ‘Mary, are you talking to anyone?’ I said what do you mean?  ‘Do you have a psychiatrist or anyone to talk to?

“So now you’re saying I’m crazy? You better get it straight. I’m a trained, licensed Methodist pastor. I talk to the Rock of my Salvation to have me standing here in spite of you, and he is the only one who has ever told me the truth.  Doctor, the truth does not change. It’s the same yesterday, today and tomorrow. You told me you could help me and I’m standing here in worse condition. I’m on a cane and the best you have is I need to see a psychiatrist and take a bath? Are you kidding me right now? How dare you!”

Mary was sent home with a prescription for the antibiotic Cipro and one for Flagyl after tests showed she had a colony of bacteria growing inside her.  Today she is bedridden. After finding women discussing mesh online, she’s made an appointment to consult with Dr. Shlomo Raz at UCLA on April 24 to have the synthetic mesh removed.

She told the Midwestern doctor all he had to do was keep her alive until then.

Mary has found a like-minded local doctor who will help her recover when she eventually returns from her removal surgery in Los Angeles. Getting him to promise not to use any mesh products wasn’t a problem. He told Blanks that pharmaceutical reps had tried to push mesh on his office, promising a five percent chance of erosion. Doctors in his practice went to receive training on how to insert the mesh. Even though they were all excellent surgeons, he said they couldn’t get the product to act as they were told during training.

After nine tries, six of the women returned with complications. They no longer use mesh.  #

Learn More:

AMS YouTube video on placing the Monarc subfascial hammock- Warning- this may be disturbing to watch!
http://www.youtube.com/watch?v=_LtPE9-vUz8

Miklos & Moore explain Subfascial Hammock
http://www.miklosandmoore.com/pdf/TOT.pdf

FDA October 2008- Medical Device Alert and Notice, October 20, 2008 – This was the first FDA Public Health Notification about complications associated with surgical mesh used to treat pelvic organ prolapse (POP) and stress urinary incontinence (SUI).
http://www.fda.gov/MedicalDevices/Safety/AlertsandNotices/PublicHealthNotifications/ucm061976.htm

FDA July 2011- Alerts and Notice, July 13, 2011 – This was the second notice – FDA Safety Communication: UPDATE  on Serious Complications Associated with Transvaginal Placement of Surgical mesh for Pelvic Organ Prolapse.  This is a much more strongly worded caution about surgical mesh questioning whether benefit is worth the risk, but falls short of a recall. See symptoms the FDA has received from its adverse event database here.
http://www.fda.gov/MedicalDevices/Safety/AlertsandNotices/ucm262435.htm

Mary Blanks- AMS Monarc Subfascial Hammock sling made of  polypropylene. Blanks has not yet successfully reported to the FDA’s MAUDE database though she says she has made several tries over the phone, but gets cut off before the call is completed. She says she will continue to try.

Share this:
Share this page via Email Share this page via Stumble Upon Share this page via Digg this Share this page via Facebook Share this page via Twitter
Tags: , , , , , , , , , , , ,

79 Comments to “Suffering in Silence: Mary Blanks Not Silent Anymore About Transvaginal Mesh Sling”

  1. Kathleen says:

    Mary!!!! I can’t wait for your appointment in a couple days with Dr. Raz. You will finally get the health care that you deserve. I will talk to you soon. Keep the faith!

  2. Nonie Wideman says:

    Dear Mary, my heart goes out to you. Believe me when I say I know something of your pain…as a transvaginal mesh survivor. The psychological pain for me was as traumatic as the physical pain and illness caused by this defective medical implant. I was treated like an emotional, alarmist, over-imaginative idiot that should not have researched or questioned the source of my pain on the internet, when doctors had no definitive diagnosis that mesh was my problem. Yours is a horror story of neglect, abandonment, physical and emotional abuse by those who have taken an oath to do no harm. I cannot express how sorry I am that other human beings in a helping profession could allow this to happen to another human being. Every time a newly identified mesh victim is no longer silent, I think I could hear no worse than what already has been told … but I am wrong again……. and reading your story makes me relive my own experience all over again…your strength and courage are a testimony to your faith in the highest power…may God show his full mercy to you,and guide the path of the doctors in your journey of healing. May He bestow His wrath upon those who hurt you, deceived you, and abandoned you. No punishment we could give in our society would seem like justice. We must fight for justice however,as to do nothing but hide this medical atrocity behind a wall of silence and shame is to enable it to continue. I have no more words to convey the depth of my sadness….Nonie

    • KIM says:

      Hi Nonie , I’m first responding to your reply to mary, you are word for word that i would love to convey _First I’m to emotional- with all of this evil – your passage was a reminder to myself as a christian I’ve been reading so much of the Bible and on 2 occasions- god lead me to a perfect reading to help me threw two very bad early morning evil thinking and evil pain, I still don’t understand all of this what’s happened to me and all these other woman, I ask god for guidance and to take away my filth of a mouth out loud and in silence for even my dreams are of revenge. i don’t stay on here to long for I have very tough times for 2 – 4 day’s following these stories, I don’t want to sometime not no what’s going to happen to me next ed- I to was given Dr. Raz cite to have mesh removed – but I was also told to talk to several women who had it done first . Sorry see I’m rambling on here – I do hope that you also have had a better out come with all your searches, AND I AGREE 100 0/0 THAT THE EMOTIONAL STRESS IS WORSE THEN SOMETIMES THE PAIN IS .

  3. Mary. This is Linda. When you found my blog I cried at your story and shared it with my lovely lady helpers. I am so glad you are going to Dr Raz. You WILL get well. With his help and your faith and the prayers of many. We will be waiting to hear a good outcome for your future. With love and support.

  4. Brenda K. Jones says:

    Mary, Your story is like so many others! I was reading your story and feel your pain of these Drs. dismissing us. I have been going through this for 6 years. NO Dr. would listen to me and was dismissed by so many and one Dr. basically mentioned the Lawsuits that are out there. I have no pending Lawsuit and don’t intend to. Linda and I went to the FDA in Atlanta in 2007 and there was an investigation done and that had to do with the 2008 warning of mesh. We also wrote to the Georgia Medical Board about our Dr. who put this stuff in us without our consent. I thought I was having my uterus tacked up and came away with years of pain. I have been to 20+ Drs. over the past 6 years with no answers until Linda went and spoke before the FDA last September 8th and 9th and she learned of so many women having the same pain as me. That is when it truly got me moving to research to find the best Dr. to take this mesh out and kept coming across Dr. Raz and I have personally talked to many of these women who have used him and are very happy with the results. I have buttocks pain, groin (severe), back, inner and outer thighs, hard to sit for too long without having trouble getting up, etc. I am Linda Dodson’s twin sister (Brenda) and you can read her story on this site. I could not wait to get to the bottom of your story to see which Dr. you would be seeing and was not surprised it was Dr. RAZ in LA. Are you actually having surgery on the 24th? I will be seeing Dr. Raz on Wednesday and have surgery Thursday for removal of mesh with reconstructive surgery. Hope we can meet!
    I would love to talk with you….770-843-4805. God Bless, Brenda

    • Mary says:

      Im praying for you. How do you feel. I can’t wait I had my consultation tues. I was so worn out I wish I’d known then I would have been honored to meet you, I know we are in the only hands down here and in His hands above. If Jane Akre and Linda h and Amy and so many hadn’t led me to Dr. Raz I’d probably be gone, we all understand the devastation these mesh devices leave behind. We all know the Biggest Kept secret the mesh was quickly taking our lives,

  5. Karen Swim says:

    Thank you Jane for giving Mary a voice and place to share her story. Mary, I am outraged that you had to endure this multitude of complications and stand with you in support.From December 1996 to June 2011, the FDA received more than 784 individual reports from people who had used Transvaginal Mesh. The FDA has warned of the serious complications and advised surgeons to carefully consider all treatment options. As your new physician has pointed out, there are other alternatives without the complications of mesh. You are not alone Mary, others have suffered as a result of this faulty medical device. I know that there is a great firm in your area (www.anapolschwartz.com) advocating for others who have been harmed by medical mesh. It would be worth it to reach out to them and learn about what they are doing and gain support for your journey. Thank you again for sharing your story and bringing attention to this matter. I send love and prayers for your recovery.

  6. patricia says:

    Dear Mary,
    Thank you for telling your heart wrenching story, which unfortunately is all too familiar for many of us. I’m so glad you’re seeing Dr. Raz and hope your will find the relief you so deserve. No one should suffer this way and the outrage of not being believed is beyond maddening. I sent my surgery reports to all of the doctors who refused to believe me with a little note. I don’t know that it will change anything but it made me feel better.
    Wishing you health and healing.
    Love,
    Patricia

    • LENNA says:

      Pat,
      Thank you for the many hours you have spent trying to help other women who have suffered and ignored by the Professionals who actually perform these procedures. Shame on the medical staff who have dismissed these women and are content to just send people out of their offices with Pain meds and suggesting Psychiatric help.
      Love you
      Lenna

  7. Jane Akre says:

    I know Mary is very thankful to the wonderful women who have made contact with her through this website and others- who reached out and understood her dilemma and selflessly gave of themselves, their time, and experience even though they too are suffering. They are the real heroes here!

    • Mary says:

      I am so thankful and grateful for all the information that was made available to me ! Without the doctor who finally told me in November what my real problem was. The aide that I recieved from linda@teapapers provided for me. I found out I didn’t just have to die like the hospital told me with no diagnosis just a death sentence. If I had not found this website that embraced me as a sister . Without you jane, Amy , Linda , Linda and everyone else that even in the constant debilitating pain reached out and helped me. I know I would have been dead! I am just returning home from dr Raz at the ucla hospital with hope he understood he made me no empty promises. Except this that he could give me my life back. I will shout it from the rooftops!

  8. Liz Reece says:

    Mary,

    I am horrified at what you have gone through. What a living nightmare. Yet all too many women have similar stories… and those doctors STILL go on using mesh. How can they live with that knowledge of what happens to women like you, and like me.

    I’ll be thinking of you tomorrow and hoping that all goes well with Dr Raz,

    Liz

    • Mary says:

      I thank you for your prayers! It is really surreal ! Even though it’s a fight every step of the way we must stand and speak out and let the world know what we all know so well as stubble to find someone to totally remove this mesh. Because partial removal is out of the question. The partial remover will make the destruction to our bodies worst!
      I don’t know. Why I was so trusting. I don’t understand why the drs believed these pharmaceutical salesmen. Things must change. I filed my complaint with the FDA. I am determined to let other women know not to allow this mesh be inserted into their bodies. In the airport, at the airport everywhere I see a young woman and I get the least opening I warn them not to let it happen to them. I tell them in Love

  9. Amy G says:

    So sorry for what you have been through. Thank you for sharing your story. Sending thoughts of peace, light and healing to you.

  10. Sharon Stephens says:

    Your story ripped my heart. It makes me so angry! I just had removal with Raz this April and am doing great. I had two mesh implants. He can work miracles.

    • Mary says:

      I met with dr Raz and I believe I heard angels singing. I know that by faith and with this great man on my side everything will be okay. I have a tuff year ahead of me but I believe I will be able to get my life back. But I’m calling for all of us to pray for dr. Raz. Send him good thoughts How ever you are lead but we must pray for this man and his whole entire team. ! I’m very week now in my body but my spirit is strong! I have a righteous indignation over what has been done to us all. I am ready to fight. Fight for those who don’t even yet know what’s been done to them. Fight for that quiet one that can’t fight. And for those whose secrets went to their grave with them.

      • Shirley Ryan says:

        Mrs Mary or anyone who has had removal,
        I need your help. I need info on steps it takes to see this Dr for removal. I have been so sick and I believe God lead me to this site. My number is 713-305-5127 and emai is sjryan157@yahoo.com. I will be praying for answers.
        God Speed
        Shirley

        • Jane Akre says:

          Shirley-
          Mary had her mesh out by Dr. Shlomo Raz at UCLA_
          Dr. Shlomo Raz- removes mesh around the world, 310-794-0206

    • Hello,

      Dr. Raz is my doctor as well. I had removal March 28th, 2013. Can you share some details. I have a Fistula and need to rebuild my urethra. Did you under go any of that? I need some encouragement. Going in July 8th for reconstruction . Help please.

      Terri

  11. Robin Robbins says:

    Linda of teapapers.com told me I had to check out your incredible story and work. And I realized today as I am writing this that this is the day of your operation with Dr. Raz and send many prayers your way!

    My story is of 11 years of immense non-stop pain since a Bard Pelvicol Sling Acellular Collagen Matrix Serial #483047 was put in me June 2001-BEFORE the FDA even approved it. I had a Total hysterectomy in 1997 because of Adenomyosis and a cystocele and rectocele. They told me the hysterectomy all went FINE but later when I obtained medical records for Social Security Disability and my Teacher’s pension I saw the operative reports which said I lost a large amount of blood and there were cysts etc all over my uterus and ovaries and they were sent off for diagnosis after the hysterectomy. It also said my uterus was boggy and had the signs of Adenomyosis. (My Mother had a complete hysterectomy for the same condition at the same age (38) at the same clinic, I had always thought they misspelled Endrometriosis.)

    June 2001 I had a surgery for a prolapsed bladder, cycstocele and recotocele just a few years later. An urologist in Tulsa along with the Oby/Gyn who had done my hysterectomy both did procedures. My oby/gyn told me to go to an urologist also because I had a LITTLE leaking. Mostly it was a severe bladder prolapse where you could feel my bladder at the entrance of my vagina. I asked about alternative methods such as a pessary and the urologist said they were for old women in nursing homes and I was too young at age 42. He said with a kit it would take care of everything without any complications. He gave me no explanation at all what the kit would involve. Said it would take care of everything but he would just stand by and see if I really needed it. I had had major operations before such as the hysterectomy, two fused discs in my neck in 1999, carpal tunnel on both hands 2000 and 2001 and had got through all of them OK. I KNEW the minute I woke up in recovery from this operation in June 2011 with the sling I had the WORST pain in my ENTIRE life! Felt like someone had tied something up to my eyeballs, and I had had two children naturally in childbirth. My pain is like that of childbirth when you are at the pushing stage any time I sit down or lay down a certain way all the time.

    I could not urinate for a couple days in the hospital so the gynecologist sent me home with a catheter. He said everything went FINE, the Oby/Gyn did the rectocele, cystocele and also tightened up my vagina. The urologist said he was just going to stand by but said my bladder neck was very mobile? and so he put a Bard Pelvicol sling in, said everything was textbook perfect. I complained from day ONE, when I took the catheter home and took it out on the day he told me to, I had to go to the emergency room that evening to be catheterized because I had not learned how to self cath correctly. I was in Horrible pain and found someone to finally catheterize me.Next day I went to the urologist and his nurse showed me how to self catheterize.I kept complaining of the INTENSE pain especially when sitting and WORSE LEAKING THAN EVER but always the feeling I needed to urinate and never being able to completely empty my bladder.The doctor put me through 6 DMSO treatments, bone scans,Crts etc. of my bladder, barium enemas, etc. etc. blamed it on my weight which was the same as before surgery, said it was NOT his fault, blamed it on Meds I took that I also took before surgery and they were informed of.

    They did a Laparoscopic surgery 12-2001 to explore to see if there was scar tissue from the hysterectomy causing something, they did remove scar tissue and said I got it really easy. BEFORE surgery they asked my husband if I WANTED to get well!?? He wanted to deck him and told him to ASK! the Drs. down the hall who did the neck surgery & both arm surgeries! I had NO problems with them! My HMO at the time would NOT send me to anyone for a 2nd opinion EXCEPT the original surgeon’s PARTNER! NO! So exactly ONE year later we paid out of pocket for a 2nd opinion.My oby/gyn had gave up on me,gave me a physical therapists number & said she did not know whether it would help or not but she’d done all she could.The physical therapist was a God Send she did some physical therapy and she also sent me to a Uro-Gynecologist who examined me.He said he immediately knew the sling was in TOO TIGHT-he immediately got me in for surgery as soon as possible. Meanwhile I was taking a years leave of absence from my job of teaching of almost 20 yrs in hopes of getting a cure. So EXACTLY ONE YEAR later in June 2002 the new surgeon operated and said he loosened the sling as much as he could,he even tried some trigger point injections way up inside my vagina in the places the muscles were most tense from the constant spasms and leaking. He said at that time he knew I had some kind of nerve damage but did not have a name for it. I was immediately able to urinate after HIS surgery!

    My PT said I hardly had enough muscle tone to do a Kegal exercise. She did physical therapy on me inside and out, and she is one of the few PTS in the U.S. who specializes in Pelvic Floor Disorders and is a Professor at OU University and Clinic.

    The Uro-Gynecologist then wanted to put an Interstem Unit in my back to see it it would help control the constant bladder spams and pain.(kind of like a pacemaker) They put in the wires without putting the unit under my skin, just taped it on for a two week trial.They never really got it attached to the nerves on my left side where the pain is the worst although it is on both sides plus spasms. After it didn’t work he took it out & wanted to try the operation again. By that time I was SICK of surgeries and was getting full Legal Guardianship of both of my elderly parents in their 80′s, my Mom went to a nearby nursing home, my Father moved into an apartment attached to our house. We were their caretakers,Guardians etc.for 5-6 yrs before their death.My Mom in 2008.My Dad in 2009.My Father had Alzheimer’s,Mom had many physical problems plus emotional ones & needed a full care facility.

    SO when I told the 2nd physician that I did not want the Interstem again at THAT time he said he could not keep prescribing me pain Meds & one day sent me a letter saying I was NO LONGER his patient. I had never in my life received such a letter.

    SO needless to say the next 5-6 yrs were very busy with attending to my parents & their matters. I finally got SS Disability after two yrs and appeals,got my OK Teachers Pension almost right away after I officially resigned from teaching which was a very hard thing for me to have to do at age 42. I had a Masters degree and worked hard to get where I was in my career. Mom passed in 2008 and after Dad died in 2009 I then thought I should put my health on the front burner again & look & see if ANY advances had been made in my problems.I looked online & saw the condition called Pudendal Neuralgia it was the FIRST one that had all my symptoms & matched up my story. Thankfully my Physical Therapist was still in Tulsa,I contacted her & she said they had indeed made strides and I most probably had Pudendal Neuralgia.I even had went to a chiropractor who did acupuncture and he tried to learn all he could and work on the Pudendal nerves but unfortunately it just made my leaking MUCH worse & only made the pain any less when the acupuncture needles were actually inserted into the nerves while I was laying on the table.
    My PR referred me to a “specialist” in Tulsa one of the few who could diagnose Pudendal Neuralgia. He had worked with another doctor in Minnesota for training to diagnose it. I went to him in the summer of 2010, he tested me for Pudendal Neuralgia and said I did indeed have it and also gave me 3 injections into the Pudendal Nerves on 3 different occasions at the Hospital on an outpatient basis. They had to use a scan to find the Pudendal Nerve, put the needle into it,move it around and ask when it affected the pain in my pelvic area since it also controls the leg and buttocks region. 1st time I went I ALMOST jumped off the table from the intense pain of the needles being moved around in the nerves and it affected my left leg which was completely numb for 2 days. I told him I HAD TO have an anti-anxiety pill first before the 2nd round. So I was given Valium and the 2nd time it did numb the spasms pain etc for about an hour which he said further proved I had Pudendal Neuralgia. The 3rd time he also injected steroids with the pain deadening medication and it also lasted for about an hour. He then said I was a candidate for the doctor in Minnesota who is one of 3 in the U.S. who does the Pudendal Nerve release surgery.

    But the nerve release surgery he wanted me to do had a 60% chance of success,involves cutting on nerves around my spine and it takes usually at least 2 yrs for nerves to heal IF they do and the longer I had been affected the less the chances. I was very hesitant for them to be messing around with my spine.So told him I would think about it. I have a cousin in Minneapolis who said she and her daughter who is a nurse found mixed reviews on him. My PT told me she did NOT recommend that type of surgery. Meanwhile in July 2011 the FDA had the recall/warning on bladder slings mesh and various types. I looked through my tub of medical records and found my serial number maker etc. in October 2011.Before I never found it because on operative reports it just said ____ sling. I found it on a blank piece of paper copied in a very small square on the bottom of the paper. Sure enough it matched ones mentioned by the FDA and also by attorneys who said Bard is the number one Manufacturer of defective slings.

    I then contacted my personal attorney who did my disability and she said to go back to the last Dr. who diagnosed me with Pudendal Neurgalgia and see what he said about the FDA announcement and to see IF I went to the doctor in Minnesota if he would also address the problems of the sling. When I went to him he again said I needed to go to the doctor in Minn. and an intern examined me before he came in and said he could feel “stitches” at one of the places it hurt very badly to touch in my vagina and he told me of the problems they had found with slings of almost all types. As soon as the Doctor came in he took him aside and said something very quickly to him and said NO NO NO! and the intern did not say anything else to me. The doctor said the Doctor in Minnesota would NOT address the sling issue and he himself would NOT either because it was just something Lawyers made up to scare people. He had been contacted by my attorney for records from him that had NOTHING to do with the original operation, at least he diagnosed me with a NAME for a condition and told me I was NOT crazy. When he said he could not do anything else for me than send me to Minnesota I thanked him for his services he had done and left.

    My personal attorney then sent all my info to a larger Law Service who at least have an office in Oklahoma City and who are handling these cases for suits. After they saw all my records of 11 years they said I had MORE than enough evidence and they would take my case on a contingency basis.So I signed with them a couple of months ago and my personal attorney and asked my personal attorney if I could contact Doctors I saw online that were supposed to be able to remove mesh and or repair laprascopically. She said yes,just have ANYTHING removed sent to them! My symptoms have become even WORSE this last year with spotting, some discharge and bleeding when I am really tensed and spasming most. The place the intern said he felt the stitches my attorney (who has a nursing degree) said in no way would they be stitches after 11 yrs and it was probably the sling trying to work its way out. When I FEEL that place it feels as if something metal is underneath the tight muscle trying to protrude. The pain is SO BAD now I can hardly ride at all in a car, cannot sit even in a recliner and am propped up in bed most of the day. The only time I do not have pain is WHEN I am in a swimming pool, the pudendal neuralgia Doctor said that was because there is no pressure on those nerves when I am in the pool. I will be glad when we open our outdoor in ground pool again. Because I can do PT exercises in the pool and get pain relief for that amount of time. My husband had taken me to an indoor pool for a couple of months this winter but the car ride home almost undid whatever pain relief I got though it did help my muscle tone I am sure.

    By the way in the last 3-4 yrs I have lost 100 pounds and only have about 30 more to go most I lost by swimming. People often ask if my symptoms are better since losing the weight, actually I LEAK WORSE but am still very glad for the weight loss for all the other health benefits. I wrote this long letter To two doctors in Atlanta. My personal lawyer questioned the fact that they wanted me to sign off on Medicare the only Medical Insurance I have because I am disabled on Social Security. Plus they want to put THEIR kind of improved mesh sling in! She explained to me that even if I could come up with the money for surgery myself that if I had further complications or God forbid the surgery went very wrong then I could not use Medicare! I sent my story to Linda of teapapers.com and she told me about Dr. Raz and his taking Medicare and she was going for surgery plus I heard from Patricia who has had a surgery with him. They recommended he was the one for my condition that has caused Constant Chronic Pain for 11+ years from day 1 and now has added symptoms of discharge and bleeding? I was desperate as you can imagine after these 11 LONG years and the fact mine was FINALLY warned about by the FDA in July 2011 even though I had it put in 2001! My husband and I have been very affected by this matter the last 11 years, he is also on disability because of other health matters and he is 56 yrs old, different conditions that kept piling up after two ruptured discs in his lower back that he never had an operation on and he worked with for over 25 yrs. He had to have neck surgery like mine etc. Carpal Tunnel release surgery on both hand that did NOT work for him and now they say he has tendonitis and he had a shoulder surgery. This all put him over the edge the 2nd year I had my Father. Thankfully he also was able to get SS Disability and OK Teachers Pension Retirement and so could help me with my Dad who I do not think I could have done by myself.

    I have an appointment now with Dr. Raz and feel much better after talking to people who knew first hand about him. All my attorney said to me today was if I get to the point of any operation to be sure you keep all materials, remnants of sling or anything removed in the operation for their office to get for my suit. NOTHING monetarily will replace the last 11 yrs of my life and the emotional and physical pain. But if we have to find SOME way monetarily to get funds for a procedure that has promise we certainly will try. And any settlement from a suit would help that plus perhaps get their attention by hitting their pocketbooks and prevent future further suffering. But I would trade all our worldly processions for my health back. TO have my life changed in ONE DAY at age 42 and go from an active woman who had kids and taught school almost 20 yts to being almost a shut in for 11 years has really taken a tole on me and my family. I visit a psychiatrist who had to double my anti-depressant this last year because of all the pain etc. I also take 4 pills of 10 mg Percocet a day that just BARELY takes the edge off any pain. I WAS on Lortab 4 pills of 10 mg a day for over 10 yrs and had built a tolerance for it. I have always took all Medications exactly as directed 1 every 4 hours and each day it is usually the 2nd or 3rd pain pill that allows me to do ANYTHING and by then is afternoon. I had to go to a PAIN clinic (know why they call it that now!) and go through many hassles to get it changed to Percocet. Thank God my old Family Doctor of over 25 yrs now prescribes it because he can say I was originally prescribed it by another Doctor. He used to prescribe my Lortab also. I also have started this last year taking Trazodone for sleep which works unless I leak so bad it wakes me up and I also take Valium for anxiety because the more anxious I get the worse the spasms. By the time evening arrived I cannot sit at all and am in the worst pain. I too have especially this last year prayed that when I went to sleep that the Lord would take me home not wanting to face another day. The things that keep me going are the animals I rescued and my grandchildren who visit when they can and my kids and of course my husband. The oldest granddaughter is 5 and used to come over once a week, she has been used to seeing her Grandmother in bed many times but I loved rocking her and telling her stories and on good days could do a little with her although I paid for it for days. She still loves me very much though and seems to understand and her Grandfather is crazy about her. Thanks SO MUCH FOR reading my LONG letter, I feel I have a lite at the end of a LONG tunnel now and also thank David VERY much for contacting my husband. I always ask for prayers for him because he is carrying so much of the load.Blessings to you all. To finally know I am not alone and for the FDA to make the announcement a few months ago has helped me explain SOME to people who will really never understand but do ask. My story did prevent my sister in law from having one and she is using a pessary and says it works great and can be taken in and out when she wishes! So I am glad I changed ONE person’s mind and prevented them from the many years of torture I have endured physically and mentally! Thanks and Blessings! robinest58

    • Mary blanks says:

      Robin, I am now 8 months post surgery at ucla with Dr.Raz and slowly but surely recovering. I suffer a lot of nerve pain dr. Raz informed me my nerve damage from the sling damage and removal would take up to two years to heal and he was right ! Lol. I have extreme hot and cold sessions or I should say on fire and freezing! When I came back from surgery my family Dr. Informed me she was releasing me as a patient! It was almost a death sentence because only your family dr can prescribe pain meds I was really in trouble after going through this extensive surgery where dr. Raz said he had to remove the mesh from being entertained and crumbled into my muscle attached itself to my thigh bone and remove it from surrounding organs and flesh. Dr. Raz saved my life and I. Know he agreed to perform surgery on me at the last hour. It took me three weeks to find a dr that would even thnk of taking me as a patient.

      My pain has started to subside some and I am able to sleep all night most of the time. I keep checking to make sure the infections are gone and I am thankful I haven’t had any . It is a long hard road to recovery but I keep fighting. I try to get up as much as possible to retain some strength. I am taking the supplements recommended by Linda Kilpatrick Note: I was hard headed concerning the supplements until about six weeks ago then when I was at the bottom really struggling after talking to Linda I went out and purchased the supplements took them that night THE NEXT MORNING I FELT ONE HUNDRED PERCENT BETTER!! Ladies take the supplements our bodies have been ravaged by these infections they need the help.

      I know that all this happened but it seems like a dream . This is the hardest test I’ve ever been through without my faith in God I know that I would have gave up. But we must not give up if we fight we will win this battle. I realize I will never be the woman I was but life is getting better.

      I know if The Lord ad not led me to tea papers .com and Linda and the other warriors(Jane, Linda, Linda,and all the others who tirelessly try to reach out N help I’d would surely be dead. I marvel at how close I came to death and never even knowing what my major problem really was. I marvel at how we all have gone through pretty much the same trials of years of being diagnosed that there was nothing wrong,misdiagnosis, bullying , etc. now to be on the other side with the hope of recovery. It’s been a long fight but my life is worth fighting for.

  12. LENNA says:

    Mary,
    April 25th, Hope your Appointment with Dr. Raz has helped you to get a diagnoses. So sorry for all your needless suffering.
    In my Prayers
    Lenna

  13. Mary:
    Your story moved me to tears. You have been forced to come to terms with your mortality when the reality was you just needed the correct diagnosis and a Dr who will remove the mesh and get you back on your feet! I am appalled at how you have been treated…I am also a the lucky recipient of a vaginal mesh device and I often refer to us “meshies” as “The Failed Mesh Experiment” because that is exactly what we are! There were never any proper clinical trials done to ensure the safety of the polypropylene device and it is appalling to me that the medical community on a whole does not understand the full scope of the devastation this mesh not only does to us financially, physically but also emotionally.
    My heart goes out to you and I wish you all the best with your mesh removal surgery!!! You are truly an inspiration to all of us walking this long tiring road which will ultimately end in our mesh removals and the restoration of our health.
    Prayer to you,
    Diane

  14. Amy G says:

    Jane-

    You tweeted the question- Why does mainstream media not see the story behind medical devices? I propose this theory.

    It is the same reason why we look to see what rape victims did to deserve “it”. Why we ask when someone is diagnosed with liver or lung cancer if they smoked or drank, why we ask when a child dies in a car accident “were they in their carseat or seat belt”. We can’t bare to see our own human vulnerability, By dismissing the victims of medical devices gone wild, we can see them as “drug seekers”, “money seekers” or just plain “crazy”. Humans do not like to accept their own vulnerability and humaneness to fall victim to predators or disease. We find comfort in seeing if we don’t screw up by making certain our child is in a car seat or if we never smoke, we may have some control in our human experience. It is far easier to blame the victim than to see how vulnerable they and all of us are.

    Would Elizabeth Smart the teenager from Utah, make the cover of People Magazine if she was a distraught emotional wreck from being abducted and raped for over a year at the age of 14 or if she went on the stand as a broken person crying? I don’t think so. I think we would cringe and look the other way, because as humans if we accept the victim persona in others, we must acknowledge our own vulnerabilities of being human. We don’t like seeing or acknowledging victims, if we see them for what they truly are, victims, then we must recognize our own potential for vulnerability and the very real human experience of being victim. Which in the end, we all are to some extent. It takes a very strong person to honor and hold the experience of being victim and to have the courage to endure the stories of being victimized.

    Being a victim sucks, acknowledging someone who has been victimized forces us to confront the times when we were victims too.

    I commend you on your ability to honor the experience of the victim, not many journalists can do this.

    • Jane Akre says:

      Hi Amy- I also think it has a little to do with laziness on the part of reporters, especially when their bosses do not support any investigation that takes time away from the daily turn story. WE have to feed the beast and quantity often suffices, quality comes second. You cannot do a well-researched story quickly!

  15. Jane Akre says:

    Mary tells me – She was told in the office that ‘you don’t know how many women have told me this that a doctor sneaked into their room and told them the truth.’ Mary says its now time to tell the truth, they are doctors, not people, they are not mini-Gods. When they are misled they don’t know what to do either. Now is the time that she wants to get it out that we must not allow these people to put this in us before we totally check it out ourselves. If it hadn’t been for Linda at teapapers I would be dead today she said Dr. Raz office said, because of the stronger antibiotics she got. She sounds weak but spirited. You’re going to be okay she was told. Fortunately her husband’s insurance will do a preapproval and she will get her removal date, hopefully soon.

    “I need them to know just because someone took that Hippocratic oath, it doesn’t mean they took it seriously.”

  16. Jane Akre says:

    Mary Blanks –

    “We need to be praying for Dr. Raz. They’re coming from all over the world. He needs our prayers.”

  17. Linda Dodson says:

    Thank you Mary for sharing your story! By now, you have met with Dr. Razz and I hope he can help you. My sister, Brenda Jones who has been in touch with a lot of the women on this website had her surgery yesterday to remove her rectocele mesh. Dr. Razz had to fix a very severe bladder prolapse, which was not planned. He sutured it the old fashion way. Her rectocele mesh was protruding through her rectal wall and he had to cut into her rectal wall a 1/2″ in order to get the mesh out. He used her own tissue to wrap around the rectal wall. She was supposed to stay just one night in the hospital and he’s now saying at least five days in the hospital. He will make a decision on Sunday IF he has to go back in and do a temporary colostomy.

    He told her that she was in serious condition prior to him performing her surgery. Her pre-op blood work did show that somewhere in her body that she was fighting off an infection. Dr. Razz told Brenda and her husband that the whole area was infected and inflamed. This has been ongoing since her initial surgery 2/2006. Dr. Razz also said the Dr that put the mesh in did in fact suture through her rectum. Brenda and I refer to this Dr as Dr. Quack.

    I live in TN and I am terrified and so very worried about her. She and her husband Larry said about Dr. Razz and all the other Dr’s associated with his office and the hospital are the best and most professional medical personnel that they have ever met.

    I have had my cystocele mesh removed within a few months after the implantation, but now I fear that I am going to have to have the rectocele mesh removed. I am experiencing problems and have tried to ignore them. I think it’s time that I make an appt with Dr. Razz. Brenda did tell him that I probably would be calling him.

    I’m sure Brenda will post once she gets back home to Georgia and will provide more detail as it pertains to her experience.

    Linda Snow Dodson

    • Jane Akre says:

      Linda- We’ll be sending healing prayers to Brenda. At least she is with a pro!

    • Mary says:

      I pray and believe your sister will be find . Please call dr. Raz because I went to a dr in Cleveland because he had a how to video on Internet do again I trusted him and he assured me that he could help me and be could relieve alked into his office. I needed support of cane and my husband. This mesh must be completely removed! I never was told I had an infection but I did, but after the surgury in Cleveland the infection iny body smelled so awful that I was ashamed to go around people, and again I bed ridden . I was not before I went to him’
      My life was placed into a worst mesh hell than I could ever have imagined. When I try to talk to the Cleveland doctor I am now being Told they didn’t get the message ! Just thinking about my after surgery meeting and all the drs that just stood by and did nothing , told me
      Nothing it makes me so anger ! But I refuse to sit by and victiimized over and over again.

      I found a wonderful dr here in Erie to help me stay alive and help me contain this infection until I’m able to recieve my surgery. He knows mesh fails and kills. He is alsoy anchor for me to be able to come home after dr. Raz operates him being in LA and my home is in Pa . I feel we all must find this home I call it anchor do we can safely come home . I felt that was most important! I know I’m alive because of my faith in God. I never would have found this terrific support system . Before I just knew that something was trying to take my life and drs were almost calling me crazy and I was beginning to believe them. They were the drs so I had no reason they were hiding the Great Mesh Secret while they waited for my condition to be hidden n my grave

  18. Ruth says:

    Mary, I have been so moved by your story and so grateful that you are finally getting the help you so desperately need. I, along with many others, have been praying for you and will continue to do so. Thank you for reminding us that Dr. Raz and his team needs prayer too. When I read your story I was reminded of this verse: “And will not God bring about justice for his chosen ones, who cry out to him day and night? Will he keep putting them off? I tell you, he will see that they get justice, and quickly”. We need to pray for those who are bringing this mesh story to the public and to lawmakers and calling for changes, because this madness must stop.

  19. EH says:

    Oh Mary! My heart bleeds for what you and others have been through. Dr.’s will lie, and use any excuse they can when they don’t know what to do. I had one tell me that I had shingles! Mesh doesn’t cause pain. I pray Dr. Raz can give you everything you need and speedy healing. I have had 3 surgeries with him now. 6 in all, not includingi all the other “procedures”. I feel for your search – I had 11 appts and was throwing up, not able to go, had to learn to self-cath (which was normal you know?) We are still in need of help with post mesh removals with all the complications it brings with them. That Dr.’s are still so ignorant, that news media ignores this, that our world doesn’t seem to care, just a sign that we are getting all the closer to Jesus. Keep up your faith – in the end it’s the only thing that really saves you anyway! God Bless.

  20. kathy cromwell says:

    Mary, My heart is breaking for you reading this story. I have suffered in silence since my sling implant as I feel so violated and had fear as to being treated this way and the complete fear of knowing who to trust and turn to for help. The sadness I feel for all women that have been violated with this mesh is like nothing I have ever felt. I do not know what to do with the sadness, so I stuff it, In reading your story, I am so angry.
    Will anyone stand up for us in the medical world? Will anyone help us?
    God Bless you beautiful Mary for speaking out. Peace to you.

  21. Peggy says:

    This is insane the way women are having to suffer so long to get help, most doctors and nurses do not want to touch a woman that has been used as a guinea pig for the mesh. nor do they give some woman pain medication, nothing for nauseating, infections, and are treated cruelly by some in medical field. They are lied to and it is costly going on hours to see doctors that might help them. to be lied to again.

    Some think they have a case with Judge Goodwin filed by attorneys , over a year ago , and find out they do not, as i did. Judge Goddwin needs to be over all cases state and all mesh cases and bring in some federal doctors to examine to see how woman have been scarred by this mesh permanently for the rest of their life. bleeding from the mesh, cannot have sexual relationship, the pain, anger of being treated less than human.

    A lot of fraud I believe is going on and being covered up. JUDGE GOODWIN A FEDERAL JUDGE NEEDS TO KNOW HOW SOME WOMEN ARE BEING LIED TO, HE ALSO NEEDS TO DEMAND THESE WOMEN GET THE MEDICAL ATTENTION NEEDED , SOME ARE WEAK FROM FIGHTING WHAT HAS HAPPENED TO THEM AND TO BE PUT THROUGH PURE HELL FOR YEARS AND NOONE DOING ANYTHING , DOCTORS GETTING PAID WITH ATTITUDES TOWARD THESE WOMEN AND LYING. SOMEBODY NEEDS TO INTERVENE.

    THE WOMEN ARE NOT CRAZY, JUST BEING PUT THROUGH HELL. BEING A GUINEA PIG WITHOUT BEING TOLD WAS ENOUGH, AND THEIR PAIN AND SUFFERING FOR YEARS.

    • Lupita Tagle says:

      Peggy, I was reading your problem like every women all over. You are so right Peggy this Doctors don’t because they know lawyers these days won’t file a law suite. I was also used as a GUINEA PIG not by one, two. three there were four Doctors and 2 students. You would think they were going to do brain surgery, I only needed one good doctor and if the OB/GYN Dr. GABRIEL MEDRANO ,M.D. had listen to me when I showed him the report from the FDA on July 13, 2011 and told him several times I did not want the mesh implanted him and the other tree Doctors didn’t care what I had requested they did it anyway. Dr. Caroline Lawler, M.D GYN, Dr.John Boldt ,M.D. Surgeon, and Dr.Kathryn, MD. I wrote a certified letter to the UNIVERSITY HOSPITAL IN SAN ANTONIO, TEXAS and also a certified letter to Dr. Grabiel Medrano I wrote to them in November in 2012 still haven’t heard from either one of them. I wish some of you would see their advertisements where they that UNIVERSITY HOSPITAL is no.1.What other patient don’t every thing that goes on all around their clinics which they have several clinics all around San Antonio. They remodeling the hospital and other older buildings spending millions and millions of dollars. They also have thousand of students that are in the Medical Schools. Guess what those students need to be taught because they pay millions of dollars, so we are used as GUINEA PIGS. I think my problem was because the student did the surgery and no one else was supervising. I didn’t need four doctors the hospital gets paid by the state. Maybe they just wanted to collect more money from the state, I’m still trying to figure out why they did a lousy job and I can’t get any answers. Peggy you are right what you said about some cases not being filed in court and we need to be very careful who we hired as a lawyer.OH BEFORE I FORGET ,the UROLOGY at UT MEDICINE SAN ANTONIO UT HEALTH SCIENCE CENTER. He did a Urinary Incontinence vaginal adhesion OAB he inserted a scope vaginal into my bladder and the nurse was suppose to take photos through the computer with the equipment being use. Margie the nurse told the doctor the photo part wasn’t connected, so the urology Doctor told her take my cell phone and take pictures when I tell you to. WHAT DO YOU OR ANYONE ELSE THINKS OF THAT. i GUESS HE REALIZE LATER WHAT HE DID WASN’T VERY SMART I KEPT asking for the photos and there was only one and I don’t really know if it;s the same photo that photo is from, he took about 5 or 6. We women need to get together and do something like MADD this doctors are taking our rights away. I am trying to get it out to the public here in San Antonio, Texas every women that had surgery speciallY at the UNIVERSITY OF SAN ANTONIO, TEXAS. I also read Mary’s notes My God she has really gone through alot and Doctors telling her all those things that she needs to see a therapist or other Doctors. I am still trying to decide who to give my case to, I don’t want my case sitting on a drawer or end up on file 13. Well I wish the best to all and every one of you that are going throught this suferring to dtay strong and Pray To The lord that’s what keeps me going it’s hard when you don’t have insurance and have noone to talk to. May God give you strength, peace, love keep you save my prayer to all of you May God Bless you

      • Jane Akre says:

        Lupita- You said you didn’t want mesh and it was put in anyway. Did you state that is writing? That is unbelievable!

        • Lupita Tagle says:

          Yes , Jane I had told the OB/GYN Dr. Gabriel Medrano before the surgery when I had the FDA report dated on July 14, 2011 is the same day I had the appointment. He told me that the UNIVERSITY HOSPITAL USED A DIFFERENT MESH. He didn’t even know or was acting dumb that there are several different models. So I made it very clear that I didn’t care what size or model I did not wanted in my body, that I preferred using my own tissue which the bladder is lifted with your own muscles. I ask him do you have experience do this kind of surgery w/the muscles he said yes. On the day of surgery 08/01/2011 he saw me just before the surgery was to take place and I made sure again and reminded him that I didn’t want the mesh repeated twice. My son was with me and he said, Mom the says he is not going to use the mesh and he did it anyway. When I wrote to the UNIVERSITY HOSPITAL and Dr. Medrano LETTERS were CERTIFIED MAIL no one answered my mail and I told them I want it some anwsers and wanted to know WHAT THE HECK THOSE 4 MORANS were doing at the time of the surgery. Were they having a break @ the cafeteria or were they on the cell phone OR WERE THEY ON CLOUD 9 ?? Four doctors and two students. Oh by the way I can’t sue them because I was suppose to report in writing the complications w/in 6 mos. I was giving it time because I thought I needed to heal. I did report it to the hospital and to Dr. Medrano’s nurse Juanita LVN but I did by phone not in writing until later. So they are getting away with it. Now I’m having all kinds of pain and bacteria infection I can’t decide which lawyer to give my case to. All I do is pray everyday for all of us that are going through this nightmare.

  22. Heather says:

    Mary,
    If you see this post could you update us on your condition and new info you might have learned.
    Blessings.

  23. I’m also in severe. Pain. Need doctor and prayers. Going. Through rough journey. Any advice or help. Desperate imn GA. Mesh sling.no insurance!

    • Lisa says:

      If you are willing to take a trip, I have had success with Dr. Christopher Walker. He is a urogynecologist in Orlando, Florida. If you google him you will see all of the amazing reviews about him from other patients on doctor rating websites. Him and his staff care about you like they are family. I hope that helps.

  24. [...] If you do not believe me then here is proof.  I wrote this blog one morning back in March of this year when I was feeling very down.  I was reading one after the other of emails from women who were extremely sick.  I asked a friend mesh sufferer who is also in the medical field what was going on.  It was because of her that I wrote the blog above after this.  When I read a very short email from this woman I knew what was wrong.  Up until that point I had only heard it described by other women who had been to Dr. Raz at UCLA as deep tissue infection.  This is the blog I wrote that day when I felt so sad for women.  http://teapapers.com/bladdersling/2012/03/mesh-can-kill-you  Who is this woman you may ask?  Most want to stay anonymous, but this woman almost lost her life and wound up doing her story to try to help other women.   I talked to her on the phone the day I got her short email and asked her if she could travel.  She said somehow she would go anywhere and do whatever it took.  She did.  Her story turned out well.  Dr. Raz took care of her and although she will never live a completely normal life again, she is alive and back working on her own business.  She was one of the long term mesh people I am talking about.  It had been in her body almost nine years.  This is who she is.  http://meshmedicaldevicenewsdesk.com/patient-profiles/suffering-in-silence-mary-blanks-not-silent-an…  [...]

  25. sporky says:

    My heart goes out to all of us! I too knew when 4 days post op showed my husband how swollen my legs were. He said get my bag and get to the car I’m taking you to the hospital. I had 16 lbs of urine drained due to inability to urinate. Initially i was told I’d go home with a cath but didn’t since I went to the bathroom once at hospital a few hours after my surgery. In my post op state i asked the nurse why there wasn’t an out put bowl to check how much urine is coming out vs blood. She replied, “all you need to do is pee pee and you can go home.” I still said to my husband thats crazy how will we know? I’ve delivered 3 babies vaginally and had several surgeries with zero complications! This is a nightmare and still in it. My mesh was found to be coming out 5 months post op. My surgeon wouldn’t do a pelvic kept having the nurse do bladder ultrasound,. I made an apt to see a urogyn who examined me immediately. All the doctors keep saying see your PCp for swelling that’s heart related. My ekg and chest xrays were perfect! Definitely not my heart and nobody knows why the strange fluid. I had to self cath for 3 months now can go but urges are terrible. Have to cath sometimes. My legs, feet, and body hurts. I do have good days where it isn’t so bad. So now having pelvic pt weekly and surgery next month to clip the mesh. Very scared, and not sure who to trust. I’m seeing a rhuematologist in December to rule out…MS, lupus, arthritis….ect. I’ve said it from early on get this stuff out of me so I can have my life back. I was water skiing two summers ago. Working out 3 to 5 times a week up until surgery. I have three boys oldest 19 and youngest five. I have every reason to want to be well and enjoying life with my boys. Planning to check into Dr Raz and my options before this next surgery. Praying for physical and mental healing for us all!

  26. e wyant says:

    I too had the mesh belt put in.but that wasnt the surgery agreed upon.I was supposed to ha ‘ve vaginal colon proplasent fixed and my bladder tied up by a muscle from my own body.when I woke up I felt like I was in a ocean of pain.wave after wave.then found out what she did.had to a catheter in me and use one foe months.my bladder actually stuck to the mesh.she just reached in pulled loose.there is no word to describe the pain.I have been in pain since 08.she told me she could take it out that she choses not to.that had to deal wit h pain issues am being difficult.been to other doc won’t touch me.even went to mayo.he said that you are fine.nothing he can do.will have to bear with it.This Dr Rs is in la.I am in the Midwest.I don’t know if my insurance will cover it.I can’t hardly wa lk.lay in bed a car. no sex life to speak of.I can’t be a mom grandmother.it’s as if my life was snatched away from me.that doctor has no compassion at all.refuse to see her anymore.I wake up in pain go to bed in it.doctors say nothing wrong things look okay.doctors are supposed to heal the sick and pain not cause it.why. didn’t the FDA check this out the same as drugs? we were used like lab rats.I just want to feel human again.to enjoy life again.

  27. e wyant says:

    I went to the mayo clinic to Dr G there.tHEY WILL NOT I REPEAT WILL NOT HELP YOU.THEY SENT ME HOME.TOLD ME TO DEAL WITH MY PAIN PROBLEMS.BUT THEY DID WANT ME AS A SUBJECT IN THEIR MEDICAL STUDY.THEY PUT THIS IN WOMEN THEMSELVES.AGAIN MAYO WON’T HELP.I THOUGHT IT WAS ONE OF THE BEDTIME HOSPITALS.THEY ARE NOT.THEY JUST TOLD ME TO GO TO PAIN CLINIC.

  28. Pam Sender says:

    Dr. Raz is a miracle worker as far as I’m concerned. My original surgeon did an office procedure on the exam table a few months after surgery because something was poking into my vagina. It was more painful than childbirth. I never went back. A few years later, I commented to my Internist about abdominal pain and she sent me for a transvaginal ultrasound. The sonographer could not touch the left side without scrapping me off the ceiling and the Radiologist didn’t seem to think that side wasn’t important and found nothing unusual.

    I assumed that I would spend the rest of my life in pain and unable to have sex with my husband. One night, we saw a TV commercial about mesh complications and we looked at each other and I asked if that could be the problem. My husband simply said that I haven’t been right since the original surgery. I did some research and thought this could very well be my problem. I got a referral to the “best” urogynecologist in Chicago. I waited 5 months for a appointment and was told to go to PT and do yoga, next appointment I was sent for a colonoscopy and general surgeon for my hemorrhoids. Finally, she said she would do take it out and all the while patronizing me. I asked her fellow for more details and discovered that they only intended to cut the mesh out that was sitting on my vaginal wall and that they would refer me to the pain clinic to “retrain” my brain because it was used to thinking I was in pain. I did not go through with the surgery and went to see Dr Raz. He thought he could help me and didn’t seem to think it was particularly difficult.

    My surgery with Dr Raz was in early November. A routine 45 minute removal turned into 2 1/2 hours of surgery to repair my urethra which the mesh had torn causing the blood in my urine. The pain was caused by 3 of the 4 anchors that were

    • Pam Sender says:

      Sorry, anchors attached next to nerve ending bundles. I guess it wasn’t my brain thinking I was in pain after all. Didn’t want to be on pain killers for the rest of my life. Anyway, my follow up is at the end of the month. I have had a significant amount of incontinence. I’m concerned that I will be having a second surgery.

      Moral of the story, do as much research as you can so you are informed about the various outcomes of what your doctor may recommend. Then, go see Dr Raz for a second opinion. He got the whole mesh out! And, he is a kind and warm person who actually hugs his patients.

  29. Cindy says:

    Mary you will love Dr Raz as he has been my doc since 2010. I know what u r dealing with. I am going for revision number 5. Hang in there, doc Raz is my Rock!!!!!!!!! His staff, entire staff is very compassionate. And yes he aways hugs me and when I cry he tells me I am not aloud to cry

  30. michele driver says:

    Dear Mary,
    Our stories are almost the same. I am Wesleyan. I have a lot of things first off Jesus Christ. My church and my church family. What I’ve lost is hope. I have took those same meds. When I a for pain relief they told me the street value of lortab. Please pray for me.

    • Mary blanks says:

      Mitchell I am so sorry that i have been so long .i pray for us all constantly. Have faith in God let him lead you. Have you made your appointment with dr. Raz. If not don’t wait another minute he surely saved my life. If he saved me when I was months from my organs shutting down he can help you. I am a miracle. I pray Gods grace and mercy go before you and that He give you wisdom and knowledge to rightly divide the truth. May the favor of God go before you. And may His peace rest with you!!

  31. Teresa Reesman says:

    I think we all should be the FACE of this Mesh..I want us all to go on 20/20 or Dr. OZ and warn women everywhere, then potition the FDA for the removal of all “mesh representives” in Dr, offices..I want them RECALLED! I have had my sling in for 4 years now and it was fine the first year, and then I experienced the worst paid I had ever known..I had my throid removed and it couldnt even compare to this..I later found that it was a UTI..but I have had UTI’s before with my pregnancy..this was NO Regular UTI..This starts in your lower back and radiates through to your pelvis and then it aches right into your pelvic bones so that now you are screaming,crying,cant walk,sit,or lay down..when I was in the ER they gave me Moriphine and I was still screaming..then they gave me Daladid..within 2 minutes the pain was gone..they ran MRI’s and Cat Scans found nothing..had Urology do some scoping and found nothing..since then I have been hospitilized twice more with the same thing, and had 17 UIT’s that my regular care phisican puts me on Cipro and tylonol..but I am desperatly afraid that I will become ammune to this antibiotic,,I can tell exactly when one is “coming on” usuallly when I have artificial lemon or lemon aid..then within 24 hours I have a UTI and back to the dr…I want this thing taken out, and like so many others I don’t know if my insurance will cover going out of state and will this be considered “elective surgery” pre existing” I am trying to be a care giver to my 91 year old father and it is difficult with all the pain and hospitlizations..I had the Boston Scientific and want to go to the Dr, in La but maybe I should go for some pilimary test with my OBGYN that inserted it..any thoughts..scared in Texas..If you know if any Dr.’s that Dr. Raz has taught how to remove in the Houston area please let me know..832-646-0293.

    • regina says:

      So I couldn’t figure out what was going on with me.SO I began reading and this is where I’ve ended up. Praise God ! I will be lifting all of you up in Prayer as we all walk through this dark valley but we are not alone !!!

      • Jane Akre says:

        I’m sorry Regina but the doctor you recommend at Baylor University is responsible for at least two major mesh mishaps that MND is aware of and was named in one lawsuit as the implanting physician. MND will not post her name as a recommendation in good conscience…. thank you!

  32. kim says:

    As I read your story, I feel like I wrote it. I had a partial hyster with the bladder suspension back in 2001. Since that time, I have been diagnosed with all the same things you were. Ive been to every specialist you can think of. I am a 45 year old mother of 3 teenagers and I feel like im 80. Ive been diagnoed with fibromyalgia, lupus (withdrawn) degenerative bone disease, acid reflux, depression, and a bladder cyst disease, (cant think of name because I have memory loss) I also have a clot on my ovary. My pain is overwhelming and has been for many years. I have no life. I have to feel better. THANK YOU FOR SHARING YOUR STORY. GOD BLESS YOU..

  33. Terri says:

    Dear Mary,

    Please update how you are doing after seeing Dr. Raz. I had a hysterectomy, bladder sling, and posterior repair around 3.5 years ago. Got a bad infection afterward. For four to five months post surgery, I still had pain and a dropping sensation when I stood. Attempted intercourse was painful. As the swelling in my vagina went down, I began to have even more pain with attempted intercourse. Eventually, my husband felt a sharp protrusion poking into my vaginal wall. We could tell it had to have been from the surgery. My doctor kept telling me it was a muscle and said I just needed to “relax.” I kept telling him that my muscles aren’t sharp. He prescribed vaginal physical therapy which did nothing to relieve the pain but cost me a great deal in copays. I went to my primary care nurse practitioner. She said she could feel the mesh and worried it would come through my vaginal wall because the skin had atrophied severely since the surgery. She suggested I see a female OBGYN. Meanwhile, both of my parents were diagnosed with cancer and I was so focused on taking care of them that I waited to go to the OB. When I did, it took her less than a minute to say it was indeed mesh causing the problem. By then, I also felt it rubbing against my the inside of my pelvic bone when I walked or even when I sat. At this point, it’s constant. She said that she had three patients who had come to her with mesh issues and none had been able to find a doctor in our region who will do anything about it or even be honest about it. She sent me to a doc outside of our region hoping it might be different. It wasn’t. He tried to tell me it was muscle and not mesh. (Must be the party line.) I called him on it and asked if doctors were afraid/unwilling to deal with mesh. He came a little clean and said that, yes, some doctors were concerned because the mesh adheres to the vaginal wall and there’s nothing they can do to really extract it. He said he’d give me trigger point injections for the pain. He also told me that my bladder is again prolapsed, so the sling failed in addition to causing great pain. I just saw the female OBGYN again. She said that her three patients had not been able to find anyone who would “deal with” the mesh issue. They reported symptoms similar to mine. Please direct me, if you can, to someone who can help. This has been a nightmare. I am again becoming increasingly incontinent, I cannot have sex with my husband without extreme pain (to the point where we’ve stopped trying).

    • Mary blanks says:

      Terri, please go to Dr. Raz. He took me really at the last hour but eight months post surgery I can finally see that there is a light at the end of this. If I had had this surgery performed any where else I believe that I would not be here. Dr. Raz fought for my life and did not give up. I am getting better a tiny little bit every day. I am infection free and for the most part I’m not incontinant Like you I have fibromyalgia so for us the healing is harder but we heal. Now I realize that the fibromyalgia made every step 100 per cent worst . I had this mesh in eight years and I am recovering so please take my advise and make hat appointment. And while waiting don’t be hard headed like I was take the supplements recommended by Linda especially the marshmallow roots , probiotics, vitamin b complex and d. Please do that as prescribed on bottle it will help you immensely I will keep you in prayer. Please pray for me also and we will make it

      • Jane Akre says:

        Prayers for you Mary- You’ve had a long hard road.

        • Kathy says:

          It is so painful to read each and every painful mesh story. I keep trying to trust that at some point these doctors will STOP implanting mesh into our vagina ( a non sterile surgical site) but in the meantime what do we do with our pain, stress, worry and lack of faith in someone looking out for our health.
          In years past I would speed walk if I was worried, now, I have a tough time walking.
          It is making me crazy that the FDA is a fraud, the mesh warning for incontinence is less than for Prolapse. It also isn’t out there that many symptoms begin many years later. this makes sense as to me that after Menopause and as we age and things start to sag on the outside, that they would on the inside… … I would assume that could cause more pain. If the bladder or Ureatha drop more into the mesh? Does that make sense to anyone?
          I was only 47 and sexually active with my husband. I was never warned about ANY problem with mesh by my doctor before the surgery, but the sex part is a crime against my marriage and I am ANGRY today.
          Thank you all for the support. God help us all.

      • KIM says:

        HI MARY, THIS PICTURE ON HERE THE ONE IN THE PINK IS THAT YOU TODAY- MARY I HAD TO READ YOUR LETTER’S FOR YOU CAUGHT ME RIGHT OFF – I HAVE A SISTER IN CHURCH THAT LOOKS JUST LIKE YOU, I ALONG WITH ALL THAT ARE ON THIS SITE SEND PRAISES – I ALSO WAS TOLD BY MY CONCEALER TO GET TO DR. RAZ IF POSSIBLE , I’M WORKING ON THAT I DON’T FLY SO WILL HAVE TO DRIVE AND I DON’T NO HOW I’M GOING TO DO THAT I JUST WAS ON MY FIRST LONG RIDE TO NEW JERSEY IN JULY TOOK 14 HOURS WHEN IT USED TO TAKE ONLY 6 FROM MY DRIVEWAY TO MY BROTHERS HE HAD A HEART ATTACK AND I HAD TO SEE HIM MY DR. DID 6 SHOOT’S IN BOTH BUTTOCKS AND ON MORPHINE AND PERCOCETE. BUT I GOT THERE MY DRIVE IS DIFFERENT WITH THIS – FIRST ANGER – I PRAY EACH DAY THAT THE LORD GIVE ME WISDOM WHERE TO SEARCH . AND THIS WHOLE THING IS SO EVIL — WHAT HUMANS ARE DOING TO ONE ANOTHER. O MARY I PRAY THAT YOU ARE WELL AND THAT YOUR HUSBAND AND SON SEE YOU WITH A SMILE ON YOUR FACE THAT IS A SMILE OF JOY FROM SOME RE-LEAF, I HAVEN;T READ FURTHER DONE ON YOUR REPLY AND I THOUGHT I WOULD JUST WAIT TILL I GET CLOSER TO TODAY’S DATE BUT I DIDN’T WANT TO TAKE THE CHANCE TO SAY HI AND THAT I WILL PRAY FOR YOU AT CHURCH THIS SUNDAY MARY. YOUR SISTER KIM

      • regina says:

        Ms Mary,
        Praise you for your testimonial and your advice for others. I am lifting everyone up to our Father. I wondered if Dr Razor removed mesh that was attached to your bladder or have you heard of anyone he has done this for. I too am sick and have the symptoms of cervical cancer but don’t have a cervix. I’m wondering if this is all from this mesh left inside me. I was able to have the part that was hanging out of me in my vaginal area removed but still have some in me the Dr said it was already attached to my bladder. I have started having infections also. I stumbled upon this sit trying to read about cancers and it lead me to you. If you know of anyone please let me know or give them my email. I don’t usually get on my email but will check here and there for responce,

  34. cheryl says:

    Help! I am interested in finding out if Dr Raz has helped anyone for mesh removal with only one surgery and no cholostomy If so, how long is the recovery? Can he stitch your pop in the same surgery? I do not sit without pain an I am very nervous to travel all the way to California twice, much less for multiple surgeries. Thank you for your help.

  35. Terri says:

    Mary, I had my appt. with Dr. Raz last week. He confirmed that the mesh has traveled into my vagina on both right and left sides … “like barbed wire.” He also discovered that the original surgeon sutured through my vagina and fascia into my rectum … so that the unabsorbable sutures are sticking into my rectum … which is what’s been causing severe pain when stool sits in the rectum, etc. My vagina is, via the sutures, attached to my rectum in two places so that the two (rectum and vagina) move together. When I get pain in the rectum, my vagina goes into spasm. So, he will have to remove those, too. Yes, he’s a very kind man. However, I’m concerned because, thus far, I’ve not read of anyone back to “normal” after mesh removal. I’m seeing lots of stories of severe incontinence. Dr. Raz said I’d likely need a second surgery for that some months later. Mary, how are you now? Are there other sites I can look at to see women who are now pain free and continent? Like everyone else, I’m scared to trust another doctor. I’m weary of this as I’m sure many women are. When you have time, can you point me in the direction of other blogs, etc.

    • Sylvia Lafferty says:

      Dear Terri,

      I too am concerned about removal and more damage being done….with all of the cutting, I would think it would just cause more harm and the danger of perforation. I am not so sure I myself will go through with mesh removal. I think it is very dangerous.

  36. Jessie says:

    I believe these companies are using us as human testers. Guinea pigs in their sick game of raping the general public with a cactus right in the anus, just to earn an extra buck. It is like a bad science fiction movie.

  37. Laurie says:

    I have an appointment with Dr Raz June 5, 2013. Thanks for all the info. Has Dr Raz fixed anyone with one surgery?

  38. Lisa Hawkins says:

    Dear Mary, as I read your story I began to sob. It was as if I was reading my own story word for word. I have been turned away from so many doctors. I have searched for pain management. I get a little luck even though I have been labeled as an an abuser, you see I also have malabsorbtion syndrome. I throw up so much that keeping adequate pain meds down is very difficult. I feel as if I am at the end of my rope. I want to have the dignity to die without judgement. I feel as if Im dying at the hands of the medical community. Im glad your husband supports you. Mine is young and doesnt understand. He doesnt know how just sitting up, putting my feet on the floor and trying to get dressed is not only painful but tiring, so much so that Im out of breath and just want to go back to bed. Im not lazy and I want to work. Im dying lonely in my room watching the days go by. Im tired of fighting and praying for a miracle that doesnt seem to come or compassion from the very community who did this to me. No way out!

    • Jane Akre says:

      Lisa- Have you received any medical help? Do you have a law firm? No one should be left alone and in pain…. please let us know where you live so others can reach out to you in your area… Some of the patient advocates may have advice for you to get on a path to better health… Please respond to this request and please stay in touch…. ja

    • KIM says:

      HI LISA, I’M KIM FROM UP STATE NY, LISA PLEASE READ THESE STORIES – I’VE BEEN READING SINCE MY COUNSELOR TOLD ME ABOUT THIS WEB SITE. IF YOU ARE CLOSE TO ME – I WILL DO WHAT EVER I CAN TO HELP YOU FOR MY HUSBAND IN NOT YOUNG BUT SELFLESS, AND I SHOULD HOLD MY TONGUE AND SAY SELFISH AS WELL – I;M JUST AS ALONE AS YOU DOING IT ALL BY MYSELF I’M 52 AND THIS HAPPENED TO ME AT 48YRS OLD AND JUST ALSO FOUND OUT THAT I HAD A SLING PUT IN ME AS WELL. I’M JUST NOTICING THE DR. NOT WANTING TO SEE ME. AND I ALSO HAVE A MAJOR PROBLEM WITH DEPRESSION. BUT I’M GOING TO FIGHT THIS TO THEE END OF MY LIFE , THERE IS THIS DR. RAZ THAT EVERYONE IS TALKING ABOUT LISA IF YOU NEED HELP THERE SHOULD BE HELP JUST ASK THIS SITE I BELIEVE THERE MUST BE SOMEONE ON HERE THAT CAN HELP YOU IF YOUR CLOSE TO ME I CAN HELP YOU. BUT PLEASE TAKE WEEKS TO READ ALL THIS HERE I CAN ONLY TAKE A FEW HOURS AT BEST FOR I GET TO EMOTIONAL . LOVE YOU SISTER IN PAIN. KIM

  39. victoria says:

    i DON’T KNOW ABOUT ALL WOMEN WITH MESH, BUT I DO KNOW THIS, The infections start up and for a long time, the woman does not know what is happening, going to doctors with infections, not understanding what and why the infections will not go away. months go by, anti biotics after anti biotics, exams, and no doctor, nurse will tell them the mesh is protruding out in them causing bleeding and more. MONTHS AND finally they find 1 that talks to them and tells them the truth, and their colleagues get angry because they told the truth, and chit hits the fan.

    FROM THAT TIME ON, one call does it all, and they are treated like the companies that lied, it is hard to find 1 doc, nurse that talks , and those they do find that admits the mesh is causing the suffering, but that doc, tells the truth, that they do not have the knowledge to remove the mesh. others cruel, a long and drawn out, going from 1 doc to another not knowing what will happen to be treated cruel or to be told that they are sorry but they don’t have knowledge to help them. adding to frustration and anger and needing help, the mesh has moved into other body parts, causing more damage, more surgery, again lied to. told the mesh cannot be removed. what hope?
    makes you want to implant mesh into every one that lied ands was cruel, that made money off of women suffering as they have and will, never to get back to what they were before mesh implant.
    GOD BE WITH ALL OF THE WOMEN LIED TO AND THOSE THAT SUFFER FROM THIS MESH. IT WILL NEVER BE OVER FOR THE WOMEN TO BE WHAT THEY WERE BEFORE MESH, NOT EVEN CLOSE.
    most had the surgery due to bladder falling after having children, just bladder leakage. a nightmare is what it turned out to be.

  40. P Fincannon says:

    I’m in the early stages of complications from the sling surgery as I have “discounted” all my pain in the past as just “signs of aging” and maybe rheumatoid arthritis, which is common in my family line…also discounted all the sling mesh class action lawsuits as just another suit that lawyers are trying to get richer on.

    However, the last few months I have been declining at a rapid rate…I have to use pee pads on my bed and change several times a night. The pain in my lower back and right side I can no longer control with Aleve, and I feel like I’m 90 years old after I sit or lay for awhile and then try to get up.

    I went back to see my GYN this week for a physical and although I listed all my complaints, I stopped short of listing my concerns with the sling mesh surgery I had six years ago. He told me my bladder had completely prolapsed and was “spastic.” He never addressed my severe back pain, leg pain, or the pain on my right side. Never a mention of the sling or where it might be. He did mention that he would have to pull my records as they were in storage and review my surgical procedures…nothing more.

    I don’t know where to go from here…at 54 years old, I feel like I’m so many years older. I’m scared. I so hope that other women who have SUI and prolapsed organs will find alternate means of dealing with it. Praying for all who are experiencing complications from the sling mesh.

    • Jane Akre says:

      Hello P-

      thank you for writing. Your symptoms sounds like a mesh-related complication when compared to others. I’m no doctor or lawyer but it sounds like you need competent help. Where are you located? Please let me know because some patient advocates might be able to direct you to a doctor who can help.. being told you are ‘getting old” at age 54 is generally not an acceptable answer. Please begin the journey with help instead of suffering alone. Thanks for writing and I await your answer. Also do you have insurance? Do you have your medical records? You will need them to go from here. ~warm regards, jane a.

  41. Pat says:

    Hallelujah! If nothing else happens for me after reading about all the women suffering so much pain and complications resulting from their mesh implants, one thing I know w/out a doubt is that I am truly BLESSED today for coming across this site.
    I too am a victim of the same kind of suffering from my own implant many years ago. It has led to much anxiety, confusion, bouts of depression, embarrassment, constant pain, and a whole lot of prayers…not so much for the pain to be removed but for the Lord to help me thru’ it.
    I just had an MRI last week because my primary Dr. thinks my lower back pains and the pain in my buttocks and down my legs, are because of my spine. He has not called yet for a follow-up discussion.
    Since the implant, it seems everything has gone into reverse mode. If I need to “go”, trying to hold back as I make my way to the bathroom causes a gush. If I relax it’s flowing out anyway, but not gushing. I have to carry a pad or two w/ me and an extra set of clothing because of uncontrollable accidents I’ve had while in public. I now choose to stay at home almost always, and my wonderful, understanding husband is always happy to do the shopping for me. Once in a while, I’ll go along, but I always need a shopping cart to lean on because of the pain.
    I am so blessed w/ the husband the Lord gave me. Our sex life is extremely limited because of my husband’s concern for me. I feel like I have been half sewn-up so when we’re done, I burn w/ pain as if I’m all torn-up and raw inside.
    After reading the experiences of all the women, I think I’ll look into making an appointment for more information about having my mesh removed. I had no clue that it needed to be removed. There’s no way I can afford to make a trip for this procedure, but who knows, there might be someone here in Hawaii I can consult with. I’ll pray on it.
    May you all feel God embracing you w/ His compassionate love.
    Thank you, ladies, for all you’ve shared. Please add me to your prayers as you all will be in mine.

    • newhopemom says:

      I would loveto be able to talk with someone on a more personal level if anyone is willing/able. I have dealt with all of the same issues since my implant 10/12/2010….and now….many surgeries later….I am at my lowest in life. If any who has gone through this feels the same….I can be reached at teaguefarm@yahoo.com. thank you.

      • Jane Akre says:

        If you want I can pass you along to Mary if you allow me to share your email…. I wwill ask her if that is okay too…. thank you! I’m so sorry.

  42. Speaking Out says:

    […] First, I had to look up to see when this happened to remind myself of how far this woman has come in so short a time. If you read this blog you will know when and how this came about. http://teapapers.com/bladdersling/2012/03/mesh-can-kill-you It was dated March 27th 2012. I had to remind myself of the date because even I can’t believe this woman has done so well in so short a time. I never used her name or any details when I wrote this blog because I respect the fact that many women do not want to speak out. But later she did speak out to a lady who has become a friend and she is a medical news reporter. Her name is Jane Akre and she has been horrified that this has happened to so many women, even though she does not have mesh herself. So you can read about Mary here at that time. http://meshmedicaldevicenewsdesk.com/patient-profiles/suffering-in-silence-mary-blanks-not-silent-an… […]

  43. haze freeman says:

    I have just come back from my consultant surgery to be told that it would probably be too difficult to take out the tape as i have had it for 7 years. It could be that it is abrasing my bladder wall causing infection after infection. I cannot see anyway out of this mess. I too wasnt told that that the tape only stayed in place because tissue grew on it and kept it in place, and the tape could erode or cut through the tissue and cause internal bleeding and infections. After reading other comments I now feel part of a community, and sympathise totally with your aches, pains and discomfort. Scotland have just banned the use of taping, England unfortunately are burying their heads in the sand so no support there. I dont believe in God,but I do believe in strength in numbers. Lets make these companies that supply the tape, without health warnings pay the price for our suffering.

  44. regina says:

    Dr Jane
    Do you know of any Dr’s close to Texas or maybe in Texas that is performing these surgeries ? I don’t know how I could afford getting to Dr Raz.
    Thank you for your help !
    Regina

  45. Cindy says:

    I went to my dr in dec 2013 he put monarc sling to pull up my urethra, I was peeing on myself if I coughed or snezzed or throw up. I am a 50 year old women and they put it in jan 2 2014 when I went home I had never hurt like that before it was worst than when I had a baby I laid around the house for a week but made myself get up then I bleed for over a month but the dr said that was normal when before he did the surgery he said three or four days about four months later I started having chest pains so they put me in the hospital and found nothing after staying there for five days then about I started to have infections and pain in my pelvic area and on my left side and blood in my urine so I went back to the dr and he did a test ad looked at my uretha and said its fine and then I said well what am I suppose to do about the pain he gave me pain meds and sent me home then when I went t my regular dr and he showed me notes urologist said I was seeking drugs that upset me because I also have fybromyalga and my regular dr gives me meds for that so I went to another urolist and he said I needed a specialist so he sent me some where else and he said they pulled my urethra to tight and he needed to to fix that and now also pull my bladder up he said I must had lifted something heavy but trust me I haven’t felt like doing anything and between pain and infections sex is not that much any more thank god I have someone that wants more than just that. But just the other day he laughed and said well its time for you to go to the dr again becauseI have always been healthy till this year and I fell apart I am tired all the time its summer time and I stay in the house most of the time I very gratefull for your story because it opened my eyes to know I am not making this stuff up. please write back and let me know what happened I need more info and direction to know what to do

Leave a Comment

We hope you find this a helpful resource. National News Editor, Jane Akre, began MDND with the hope of providing the latest news, information and perspective from the regulatory, industry and patient point of view, something that goes under-reported in much of the coverage of medical devices. The public is just now becoming aware that many devices do not undergo the same scrutiny as prescription drugs and are instead grandfathered in under an FDA loophole that has gone largely unchanged since the 1970s. As a result, patients become the post-market clinical trial subjects, and many suffer devastating and permanent injuries.