Comments on: Sick of Suffering in Silence

By: Robert F. Hopkins

Robert F. Hopkins — Mon, 31 Dec 2012 02:02:10 +0000

I am one of the victims of this mesh. It tortured me for 5 years. I do used the word torture in jest. It is the only description that can be applied as to what this mesh does to a human being. In my search for someone to remove it, I went to all the Icons: Tom Jeff (Phila), Penn State (Hersh, PA), Georgetown, Mayo Clinic (Jacksonville,FL), et.al. At John Hopkins, Baltimore I met with DR. Fredrick Eckhauser who conveyed , “He did not get mesh implanted for his hernia because of the problems with it”) , But he refused to help me liked all the others. Some even yelled at me for coming to them, and that there is “no problem with the mesh”. I did get it removed in 2010 in Berlin Germany. Any surgeon who uses or defends this practice with the exception of extreme cases is one lying, two an agent of torture for money, three a coward for bowing to the corp powers that be, and a student of Joesph Mengella. You can bet they, themselves won’t have it implanted in their body, or their kids relatives or friends or implant it anyone with social, economic, or political power. NOTE: The Corporations and Doctors who are implanting this mesh without informing their patients are guilty of torturing human beings for money. And for those who claim they didn’t or don’t know. Ignorance is no excuse, especially for an MD. Robert F Hopkins

By: p is for pain

p is for pain — Sun, 30 Dec 2012 04:30:33 +0000

Someone needs to let the judges know what the doctors and nurses and attorneys are doing, the doctors so cruel, but attorneys say they do not care how the women are being treated they are after the chemical companies. NOT CARING IF THE WOMEN ARE GETTING MEDICAL HELP AT ALL AND WHAT THEY ARE GOING THROUGH.
GET THE PICTURE PLEASE!

i HAVE BEEN TOLD BY MANY IN 4 YEARS THEY DO NOT HAVE TO SEE ME, NEVER IN MY LIFE HAVE i BEEN TOLD BY MEDICAL THESE WORDS.
They know they have murdered me, and for the rest of my life I have got to have medical help, but if I do not bend and bpw, if I ask questions, about what they are doing , they will not see me!

DO YOU SEE THE INHUMAN TREATMENT SOME WOMEN ARE GOING THROUGH? ESPECIALLY THOSE WOMEN WITH NO FAMILY, NO HUSBANDS, NO BOYFRIEND, SO MANY WOMEN ARE TRYNG TO BE STRONG, AS i AM, BUT DAMN THOSE THAT HAVE MONEY IN THEIR EYES AND SEE THEIR SELF AS GOD, AND DO NOTHING FOR THESE WOMEN SUFFERING. I HAVE EVERY RIGHT TO KNOW WHAT WAS DONE IN THAT LAST SURGERY, BUT THE DOCTOR WILL NOT ANSWER CALLS, INFECTIONS STILL ON GOING, AND WAS TOLD THEY GOT MESH OUT PROTRUDEING OUT IN ME, THEY LIED, 1 PLACE SEEMS TO NOT HAVE EVEN BEEN TOUCHED THE MESH YOU CAN STILL FEEL, AND THAT WAS JUST A PARTIAL JUST GETTING OUT WHAT COULD BE FELT.

GOD HELP US, BUT THESE IN POWER DOING EVIL TO PEOPLE SUFFERING ON PURPOSE, , JUDGES NEED TO THROW THE BOOK AT AND GIVE SOME PRISON TIME, .

By: p is for pain

p is for pain — Sun, 30 Dec 2012 04:20:16 +0000

I have read so many people speaking of their pain of the bladder mesh. I have suffered for 4 years, and no doctors and nurses care, fda care less, and surely the chemical companies that got rich careless, doctors and nurses cover for each other , I have gone through removal and have been lied to by doctors in my state . I understand the woman that the son said his mother blew her brains out, I have not got out in a long time except to get food, and my head and the pain from infection tonight. I go to bed every night , knowing it could be my last. last surgery was last month, , I think I have pnumonia, I am weak, as never before, I am up and down all night can’t breathe, my immune system to fight off anything is 0 . 4 years anti biotic do no good. doctor will not answer questions, most cruel if you ask me, I have cussed everyone out, at the hospital especially blacks that seem to play their con games when you leave message, and thety think it is funny a white woman suffering death, and they have the power to make sure messages do not get through.
Never have I known a generation so evil in medical.

By: teresa hughes

teresa hughes — Tue, 06 Nov 2012 01:18:47 +0000

I am so sorry hear of such heart rendering stories which leaves us to believe who can we trust with our bodies.

We do need competent surgeons if we need any sort of surgery as we go through life. I myself have also come across so many consultants who have told so many lies to me and others who are economical with the truth.

When they take their oath as doctors they should reflect on those words as they gain experience which does not include covering up situations and deliberately lying.

We know mistakes can be made when having surgery but do they have to go to such lengths and play around with our mental health and have us believe that sometimes we are imagining things.

By: Ralph

Ralph — Fri, 05 Oct 2012 04:59:36 +0000

This is sad and very disturbing. Doctors who do irresponsible surgical procedures should be severely sanctioned, up to and including being charged with criminal negligence.

That said, it is still unfortunately the patient’s burden to avoid any kind of surgery whenever there is a reasonable alternative. For those considering undergoing a surgical procedure that is not lifesaving, I advise you to think, and think hard, about whether you really want to take that much risk.

Surgery can have wonderful results when it is really necessary and is performed by a top practitioner. Otherwise avoid it! Just say, “Thank you doctor, I don’t want to have that right now, but I will give it some thought.” Then do as much research as you can. Ask around among family and friends, check Facebook and Google. If anything looks negative or risky, be safe: don’t have the surgery!

By: Judy Sacksteder

Judy Sacksteder — Mon, 24 Sep 2012 00:30:40 +0000

Sarah, Prolapse can be a chronic problem for many women. I am one of those women. It has taken a long time for me to realize it. One of the things I have learned from my ongoing experiences is that prolapse pain pales in comparison with eroded, fragmented, migrated or, otherwise, infected mesh! Mesh should have been done away with a long time ago. But, I guess it has made someone very rich—right? I am right.
When my family flew me home from Jacksonville, Fl to Louisville, I thought I was dying. That is the truth. I could not get up and brush my teeth. I could do nothing for myself. I was very ill. The human spirit, though, is amazing. I told everyone that knew me that I was not going to have my character bashed and my body ruined witihout a fight and I fought. I sold my home in Fl. bought a computer and—–found Dr. Miklos in Alpharetta, Ga. It is about a four hour drive from louisville. He is an amazing Dr. I would recommend him to everyone. He took pictures of what Dr. Pettit stated could not be found. He, also, sent copies of them to all of the doctors here in Louisville that—-refused to help—bashed my character—you know the story.
I cannot tell you which doctor to see. However, Dr. Miklos is gentle and very well trained with a laparascope.
I am sure Dr. Raz is well trained also. My case is different than your moms. The mesh problems that I experienced in 2006 to 2008 were very serious. The mesh had worked it’s way up and around my intestines, bladder and everywhere. My Mother suffered with prolapse. She had two failed surgeries. Prolapse, in and of itself can ruin relationships and your entire life. I do not know your Mother’s background. I can tell you that I was perfectly healthy—until I had both ovaries removed in Florida due to recurring cysts-painful cysts. I was advised to have both of them removed in 2001. I was advised, in Fl by one of Dr. Petti’s partners to have them both removed . I asked them to leave one—for estrogen. My gyn told me that due to possibility of them becoming cancerous, it would be better to remove both of them. What they did not know was that I, already, had a tummy full of scar tissue due to the hysterrectomy in1984 and their ovary surgery could–not be done with a laparascope so—-yes, they added to that existing scar tissue by cutting me open because they could not see the ovaries with the laparascope due to the existing scar tissue. I am blessed to be alive—-really, I am. Health problems starting coming my way after that. I lost one foot of my colon—-yes, due to scar tissue. I know all of these things because I have spent hours requesting my medical records.
Before I write a novel, I am just going to say —be very careful in regards to what physicians recommend for you.
And, for your Mother. Dr. Paul Pettit–was an assisant in that surgery. How is it that Dr. Miklos could remove the scar tissue and between Dr. Pettit and my Gynecologist—Dr. T. Wells—between two doctors—they could not—? If I had a daughter that suffered with prolapse, scar tissue, mesh rejection—whatever–I would not hesitate to get her in to see Dr. John Miklos. He used Co Seal to reduce scar tissue (adhesions and absolutely no adhesions returned after my surgery with him. I know that because I had an exploratory laparoscopy here in Louisville to find out. Make sure whomever your mom sees uses an adhesive barrier.
I will continue to pray for all of you and for the doctors and all medical professionals that practice their Hippocratic Oath—of doing no harm. Godspeed.

By: Concerned Daughter

Concerned Daughter — Wed, 15 Aug 2012 01:54:37 +0000

Wow I am so sorry that you had to go through all that. Its a shame that Doctors treat their patients like that. I understand to a degree what you are talking about because my mom went through the same thing. No one believed she was in pain. Her Doctor that pur the sling in said she was still healing. My dad told her its all in her head. Sadly they have no idea, and they dont care! After your surgery with Dr. Miklos are you better? I have read many things about him and we had thought about going there since he would be closer. As it stands right now we are going to see Dr. Raz for a consultation in a few months. I emailed him and asked him of he could help my mom. Within an hour he replied and asked further questions into moms complications. I was very impressed. He is well known all over the world. As a matter of fact he is going to Russia next month to teach Doctors how to remove mesh. I spoke with his secretary and she said they are booked out 5 months for mesh removal surgery. This guy stays busy! Thank you for sharing you story! My dad had wanted mom to go back to Dr. Pettit, and I said no way, he didnt do anything to help her! This will back me up even more. Thanks!!
God Bless
~Sarah

By: Judy Sacksteder

Judy Sacksteder — Tue, 07 Aug 2012 00:58:15 +0000

My name is Judy. Sarah, I know Dr. Paul Pettit—very well. In 2006, in Jacksonville, Fl I had a porcine pelvisoft graft placement–in September. MY body immediately rejected it. I suffered badly from itolerable pain and urinary retention—self cathing for 8 months. I was so ill that my family flew back home to Louisville, Ky where I was born and raised. Dr. Jason Thompson did the surgery and would not do anything for me–stating that the graft had not eroded—was just fine. I couldn’t work and was on narcotic pain meds. I travelled from Dr. to Dr.
here in Louisville—was told I was just depressed. upon pelvic exam, I was told there was no erosion—the graft was fine–was told by a urogynecologist here that I was just addicted to drugs and needed to come off of them. I could not eat because of nausea and severe pain and bloating—-severe constipation without taking any meds at all. I, finally, travelled down to Mayo–I used to work there in cardiology and had my first bladder reapair there by Dr. Anita Chen–with no graft. I saw Dr. Paul Pettit. He examined me–Said the the graft was fine and he would never be able to find it because by this time, it had been in about 16 months. He told me to come off the pain medicine and try lyrica and that pain meds were often difficult to quit and to admit myself in a clinic. He treated me like a drug addict. My family can testify and validate that I am not that. I saw Dr. Pettit around January 2008. In March 2008, I was examined by Dr. John Miklos in Georgia—an excellent surgeon known all over the world. He examined me with a laparascope–looking from the inside out–not the outside in. He told myself and my son
that the first thing he saw was the mesh—it had not encapsulated and had splintered into a lot of pieces and
was floating around in my abdominal cavity. Remember this was three months after the Pettit visit at mayo. Dr. miklos took pictures of the mesh pieces and told me that because of the inflammation of that mesh material I had developed severe adhesions—the third worst case he had ever seen—he removed those as
well and I have been in chronic pain ever since.

I met Dr. Pettit also,in 2001. He assisted Dr. Tracy Wells with what was supposed to be an ovary removal—both of them. In the op note, he stated that due to severe adhesions which he could not cut out because of safety reasons, that the procedure had to be done via an open laparotomy and not the laparascope. They left the adhesions. as a result, I had a colon blockage in 2005 due to adhesions which choked off part of my colon.

It is interesting to note, that Dr. Paul Pettit is a colleage of Dr. Jason Thompson who put the graft material in.
It is my opinion that Dr. Pettit does not have the expertise to be responsible for using a laparascope or any type of robotic procedure. He does not tell the truth either. The graft material was easily removed by Dr. Miklos.

Godspeed, Sarah.

By: Concerned Daughter

Concerned Daughter — Fri, 03 Aug 2012 21:55:25 +0000

His name is Dr. Pettit. We contacted the Mayo Clinic today to ask why he was unable to remove all the mesh and this was the reply: the mesh has wrapped around her organs and he was afraid he would damage her organs if he tried to remove it. That being said, the Dr was not going to do surgery until he had ran further tests and found she had a prolapse. Only then did he decided he would remove the sling and fix the prolapse. The surgery was done robotic. We have set up a consultation with Dr. Raz in C.A. and we are hoping he can help her. He has been able to remove mesh slings wrapped around organs, and even the spine. This is our last resort. ~Sarah

By: Jane Akre

Jane Akre — Thu, 02 Aug 2012 22:12:29 +0000

Sarah –

I am so sorry you have had these problems. Could you tell us who at the Mayo Clinic in Florida did not remove the mesh completely? It is a difficult procedure and few can do it. She said she didn’t want mesh to be put in and he put it in anyway? Really? You have really been through it and I”m sorry.

I’m not a doctor or a lawyer and no one really wants to sue. It does however, send a clear message to the manufacturers that injuring innocent people is not acceptable. And there is power in numbers. If you haven’t done so, you should also file an adverse event report with the FDA ( see page one on how to do that). It is the only way the agency has any idea how many of these devices are failing. Really there is no tracking, unlike your automobile which has a VIN number and you can be alerted when there is a recall.

If you log onto the FaceBook website by the same name or TVT-no.com you can have some of your questions answered by people who have been there. You are another example of how mesh effects not just women but whole families…please visit the resources and stay in touch… jane a.